CDE Detailed Report

Choose one. Some individuals with high complete lesions may not feel abdominal bloating. In such cases the code "Never" and not the code "Unknown" should be used.

For each bowel care facilitator indicate if it was used

Choose one. Abdominal pain or discomfort is a common symptom in individuals with SCI but also in chronic constipation or irritable bowel syndrome. It should be documented separately from abdominal bloating and perianal symptoms covered by those specific variables. In some individuals abdominal pain is an indirect signal of the need to defecate. In such cases it is covered both by that specific variable in the Bowel Function Basic SCI Data Set and here. In subjects unable to feel abdominal pain the term "Never" should be used.

Record the transit time in hours. The code Not tested is used if the transit time is not determined.

Record the time duration in minutes based on each individual?s own assessment of average time consumption. The code "Not applicable" can be used by some individuals with stomas.

Choose one. Most individuals with complete SCI are unable to feel perianal pain during defecation. In such cases the code "Never" and not the code "Unknown" should be used. Indirect indicators of perianal pain during defecation such as perspiration, spasms or headache are not registered here. The code "Not applicable" is mainly for individuals with stomas.

Record in time duration in minutes based on each individual's own assessment of time consumption. This element begins at the end of the previous element (Stool intermittent or continuous defecation with or without assistance past three months average duration).

Choose one. If the individual has not had liquid stools within the last three months the code "Never" and not the code "Unknown" should be used. In individuals with episodes of fecal incontinence to liquid stools before the last three months without any episodes within in the last three months the code "Never" and not the code "Less than once per month" be should used. The code "Not applicable" is mainly for individuals with stomas.

The site identifiers or IDs should be assigned by the study.

In individuals with episodes of fecal incontinence to solid stools before the last three months without any episodes within the last three months the code "Never" and not the code "Less than once per month" should used. The code "Not applicable" is mainly for individuals with stomas.

Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).

Choose one. The code "Not applicable" is mainly for individuals with stomas or individuals without sensation of need to defecate.

Choose one

For each bowel care position indicate if it was used

Choose one. To be considered as one attempt the bowel emptying procedure should be separated from the previous bowel emptying procedure by some other activity. The code "Not applicable" is mainly for individuals with stomas.

For each bowel care position indicate if it was used within the last three months

Choose one. Most individuals with complete SCI do not have any subjective sense of rectal filling. In such cases the code "Never" and not the code "Unknown" should be used. The code "Not applicable" is mainly for individuals with stomas.