Chiari I Malformation

Oversight Committee Members

• Allison Ashley-Koch, PhD
  Duke University, Durham, North Carolina
• Ulrich Batzdorf, MD
  University of California, Los Angeles, Los Angeles, California
  Chair
• Ari Blitz, MD
  Johns Hopkins Hospital, Baltimore, Maryland
• Paolo Bolognese, MD
  Chiari Neurosurgical Center at NSPC, Lake Success, New York
• John Heiss, MD
  Surgical Neurology Branch, NINDS, NIH, Bethesda, Maryland
• Petra Klinge, MD, PhD
  Warren Alpert Medical School of Brown University, Providence, Rhode Island
• Roger Kula, MD
  The Chiari Institute, Great Neck, New York
• David Limbrick, MD, PhD
  Washington University School of Medicine in St. Louis, St. Louis, Missouri
• Brandon Rocque, MD
  Children's of Alabama - Neurosurgery, Birmingham, Alabama

Core Demographic Database, Epidemiology

• Cormac Maher, MD
  University of Michigan, Ann Arbor, Michigan
  Co-Chair
• Brandon Rocque, MD
  Children's of Alabama, Birmingham, Alabama
  Co-Chair
• Tim George, MD
  Pediatric Neurosurgery Center of Central Texas, Austin, Texas

Presentation, Natural History, Signs Symptoms

• Ulrich Batzdorf, MD
  University of California, Los Angeles, Los Angeles, California
  Co-Chair
• Roger Kula, MD
  The Chiari Institute, Great Neck, New York
  Co-Chair
• Gavin Britz, MD
  Houston Methodist Hospital, Houston, Texas
• Graham Flint, MD
  Queen Elizabeth Hospital Birmingham, Birmingham, United Kingdom
• Petra Klinge, MD, PhD
  Rhode Island Hospital, Hasbro Children's Hospital, Providence, Rhode Island
• Yong Liu, MD
  Tsinghua University YuQuan Hospital, Beijing, China
• Jeffrey Wisoff, MD
  NYU Pediatric Neurosurgery Associates, New York, New York

Co-morbidities, Risk Factors, Genetics

• Clair Francomano, MD
  Greater Baltimore Medical Center, Towson, Maryland
  Co-Chair
• Allison Ashley-Koch, PhD
  Duke University Medical Center, Durham, North Carolina
  Co-Chair
• Deven Atnoor, PhD
  Data Analytics, Lexington, Massachusetts
• Andrew Brodbelt, PhD
  The Walton Centre, Fazakerley Liverpool, United Kingdom
• Miroslav Gjurasin, MD, PhD
  Children's Hospital Zagreb, Zagreb, Croatia
• Rodney Grahame, MD
  Hospital of St John and St Elizabeth, London, United Kingdom
• Alfons Macaya, MD
  Vall d'Hebron University Hospital, Barcelona, Spain
• Juan Sahuquillo, MD
  Vall d'Hebron University Hospital, Barcelona, Spain
• Eric Trumble, MD
  Florida Hospital Medical Group, Orlando, Florida
• Roy Weller, MD, PhD
  University of Southampton School of Medicine, Southampton, United Kingdom

Spinal Anomaly, Stability/ Imaging

• Ed Benzel, MD
  Cleveland Clinic Center for Spine Health, Cleveland, Ohio
  Co-Chair
• Douglas Brockmeyer, MD, FAAP
  Primary Children's Hospital, Salt Lake City, Utah
  Co-Chair
• Harold Rekate, MD
  The Chiari Institute, Great Neck, New York
  Co-Chair
• Brandon Rocque, MD
  Children's of Alabama, Birmingham, Alabama
  Co-Chair
• Noam Alperin, PhD
  University of Miami Miller School of Medicine, Miami, Florida
• Olivier Baledent, PhD
  The Amiens-Picardie University Hospital, Amiens, France
• Barth Green, MD
  University of Miami, Miami, Florida
• Jeffrey Greenfield, MD, PhD
  Weill Cornell Brain and Spine Center, New York, New York
• Victor Haughton, MD
  University of Wisconsin School of Medicine, Madison, Wisconsin
• John Heiss, MD
  National Institute of Health Neurosurgery, Bethesda, Maryland
• Fraser Henderson, Sr, MD
  Metropolitan Neurosurgery Group, Chevy Chase, Maryland
• Jamie Jacobs, BS, MAT
  Intrinsic Medical Imaging, Boston, Massachusetts
• Bryn Martin, PhD
  University of Idaho, Moscow, Idaho
• Arnold Menezes, MD
  University of Iowa Hospital & Clinic, Iowa City, Iowa
• Misao Nishikawa, MD, PhD
  Moriguchi-Ikuno Memorial Hospital, Osaka, Japan
• John Oshinski, PhD
  Emory University School of Medicine, Atlanta, Georgia
• Marcus Stoodley, MD
  Macquarie University Hospital, Sydney, Australia

Treatment

• Paolo Bolognese, MD
  Chiari Neurosurgical Center at NSPC, Lake Success, New York
  Co-Chair
• David Limbrick, MD, PhD
  St. Louis Children's Hospital, St. Louis, Missouri
  Co-Chair
• Palma Ciaramitaro, MD
  Centro Regionale Esperto Siringomielia-S. Chiari S.C. di Neurochirurgia, Torino, Italy
• Jorg Klekamp, MD
  Christliches Krankenhaus Quakenbruck, Quakenbruck, Germany
• W. Jerry Oakes, MD
  Children's of Alabama, Birmingham, Alabama
• Gerald Rodts, MD
  Emory Healthcare, Atlanta, Georgia
• Marshall Wisoff, BS
  ConMed Orthopedics, Largo, Florida

Outcomes

• John Heiss, MD
  National Institute of Health Neurosurgery, Bethesda, Maryland
  Co-Chair
• Mark Luciano, MD, PhD
  The Johns Hopkins Hospital, Baltimore, Maryland
  Co-Chair
• Simon Archibald, PhD
  Integra LifeSciences, New York, New York
• Richard Ellenbogen, MD
  Seattle Children's Hospital, Seattle, Washington
• Bermans Iskandar, MD
  University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin
• Richard Kuntz, MD
  Medtronic Inc., Minneapolis, Minnesota
• Fabrice Parker, MD
  Le Centre de Reference - Syringomyelie, Le Kremlin Bicetre Cedex, France

CSF Staff Representatives

• Kaitlyn Esposito
  Chiari & Syringomyelia Foundation, Staten Island, New York
• Paul Farrell
  Chiari & Syringomyelia Foundation, New York, New York
• Andrea Grosz
  Chiari & Syringomyelia Foundation, Forest Hills, New York
• Dorothy Poppe
  Chiari & Syringomyelia Foundation, Staten Island, New York
• Cathy Poznik
  Chiari & Syringomyelia Foundation, Twinsburg, Ohio

NINDS/NIH

• M. Carolina Mendoza-Puccini, MD
  NINDS CDE Program Officer, National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland
• Robert Riddle, PhD
  National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland

NINDS CDE Team

• Sherita Ala'i, MS (Until 2018)
  The Emmes Company, LLC, Rockville, Maryland
• Joy Esterlitz, MS (Until 2020)
  The Emmes Company, LLC, Rockville, Maryland
• Robin S. Feldman, BS, MBA
  The Emmes Company, LLC, Rockville, Maryland
• Kristen Joseph, MA (Until 2019)
  The Emmes Company, LLC, Rockville, Maryland