Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Oversight Committee Members

• Kimberly Sullivan, PhD
  Boston University School of Public Health, Boston, MA
  Co-Chair
• Jarred Younger, PhD
  The University of Alabama, Birmingham, AL
  Co-Chair
• David Cella, PhD
  Northwestern University, Evanston, IL
• Lily Chu, MD, MSHS
  Stanford University, Burlingame, CA
• Dane B. Cook, PhD
  University of Wisconsin, Madison, WI
• John DeLuca, PhD
  Kessler Foundation, West Orange, NJ
• Mary Dimmock
  Patient Advocate
• Nathan Holladay, MD, PhD
  Salt Lake City, UT
• Mady Hornig, MA, MD
  Columbia University, New York, NY
• Nancy Klimas, MD
  Nova Southeastern University, Ft. Lauderdale, FL
• Anthony L. Komaroff, MD
  Brigham and Women's Hospital Harvard Medical School, Boston, MA
• Gudrun Lange, PhD
  Mount Sinai School of Medicine, New York, NY
• Elisa Oltra, PhD
  Universidad Catolica de Valencia San Vicente Martir, Valencia, Spain
• Daniel Peterson, MD
  Sierra Internal Medicine/ Simmaron Research Institute, Incline Village, NV
• Peter Rowe, MD
  Johns Hopkins University, Baltimore, MD

Baseline/Covariate

• Anthony Komaroff, MD
  Harvard University , Boston, MA
  Co-Chair
• Jose Montoya, MD
  Stanford University, Stanford, CA
  Co-Chair
• Alison Bested, MD
  Nova Southeastern University, Davie, FL
• Fred Friedberg, PhD
  Stony Brook Health Sciences, Stony Brook, NY
• Leonard Jason, PhD
  DePaul University, Chicago, IL
• Eliana Mattos Lacerda, MD, PhD
  London School of Hygiene, London, UK
• Denise Lopez-Majano
  Patient Advocate
• Anna-Louise Midsem
  European ME Alliance, Hobro, Denmark
• Zaher Nahle, PhD, MPA
  Solve ME/CFS Initiative, Los Angeles, CA
• Lubov Nathanson, PhD
  Nova Southeastern University, Ft. Lauderdale, FL
• Matina Nicholson
  Patient Advocate
• Elisa Oltra, PhD
  Universidad Catolica de Valencia San Vicente Martir, Valencia, Spain
• Nicole Prestley
  The University of British Columbia, Vancouver, BC, Canada
• Richard Simpson
  European ME Alliance
• Michael Zeineh, MD, PhD
  Stanford University, Stanford, CA

Fatigue

• David Cella, PhD
  Northwestern University, Evanston, IL
  Chair
• Mary Dimmock
  Patient Advocate
• Fred Friedberg, PhD
  Stony Brook Health Sciences, Stony Brook, NY
• Jin-Mann Sally Lin, PhD
  Centers for Disease Control and Prevention (CDC), Atlanta, GA
• Luis Nacul, MD, PhD
  London School of Hygiene, London, UK
• Leorey Saligan, RN, PhD
  National Institute of Nursing Research (NINR/NIH), Bethesda, MD

Post-Exertional Malaise

• Lily Chu, MD, MSHS
  Stanford University, Burlingame, CA
  Co-Chair
• Mary Dimmock
  Patient Advocate
  Co-Chair
• David Cella, PhD
  Northwestern University, Evanston, IL
• Dane B. Cook, PhD
  University of Wisconsin, Madison, WI
• Betsy Keller, PhD
  Ithaca College, Ithaca, NY
• Anna-Louise Midsem
  European ME Alliance
• David Patrick, MD
  The University of British Columbia, Vancouver, BC, Canada
• Richard Simpson
  European ME Alliance

Sleep

• Lily Chu, MD, MSHS
  Stanford University, Burlingame, CA
• Susan Levine, MD
  New York, NY
• Katherine Rowe, MBBS, MD
  Royal Children's Hospital, Melbourne, Australia
• Kimberly Sullivan, PhD
  Boston University, Boston, MA

Pain

• Lucinda Bateman, MD
  Bateman Horne Center, Salt Lake City, UT
• Emmeline Edwards, PhD
  Division of Extramural Research, National Center for Complementary and Integrative Health (NCCIH), Bethesda, MD
• Rachael Korinek
  Patient Advocate
• Leorey Saligan, RN, PhD
  National Institute of Nursing Research (NINR/NIH), Bethesda, MD
• Yolanda Vallejo, PhD
  Integrative Biology and Infectious Diseases Branch,<br />National Institute of Dental and Craniofacial Research, National Institutes of Health, Bethesda, MD
• Marcie Zinn, PhD
  The Neuro-Cognitive Research Institute (NCRI), Chicago, IL

Neurologic/Cognitive/CNS Imaging

• Gudrun Lange, PhD
  Mount Sinai School of Medicine, New York, NY
  Chair (Overall/Cognitive)
• Jarred Younger, PhD
  The University of Alabama, Birmingham, AL
  Chair (CNS Imaging)
• Jose Montoya, MD
  Stanford University, Stanford, CA
  Co-Chair (Neurologic)
• Kimberly Sullivan, PhD
  Boston University, Boston, MA
  Co-Chair (Neurologic)
• James Baraniuk, MD
  Georgetown University, Washington, DC
• Jonas Bergquist, MD, PhD
  EMERG (Uppsala University), Uppsala, Sweden
• Emmeline Edwards, PhD
  Division of Extramural Research, National Center for Complementary and Integrative Health (NCCIH), Bethesda, MD
• Neil Harrison, MB, BS, PhD, MRCP, MRCPsych
  EMERG (Sussex University), East Sussex, UK
• Eliana Mattos Lacerda, MD, PhD
  London School of Hygiene, London, UK
• Jin-Mann Sally Lin, PhD
  Centers for Disease Control and Prevention (CDC), Atlanta, GA
• Denise Lopez-Majano
  Patient Advocate
• Anna-Louise Midsem
  European ME Alliance
• Zaher Nahle, PhD, MPA
  Solve ME/CFS Initiative, Los Angeles, CA
• Benjamin Natelson, MD
  Pain and Fatigue Study Center, New York, NY (Ad Hoc)
• Lubov Nathanson, PhD
  Nova Southeastern University, Ft. Lauderdale, FL
• Matina Nicholson
  Patient Advocate
• Nicole Prestley
  The University of British Columbia, Vancouver, BC, Canada
• Richard Simpson
  European ME Alliance
• Michael Zeineh, MD, PhD
  Stanford University, Stanford, CA
• Marcie Zinn, PhD
  The Neuro-Cognitive Research Institute (NCRI), Chicago, IL

Autonomic

• Peter Rowe, MD
  Johns Hopkins University, Baltimore, MD
  Chair
• Italo Biaggioni, MD
  Vanderbilt University, Nashville, TN
• Mady Hornig, MD
  Columbia University, New York, NY
• Ben Katz, MD
  Lurie Children's Hospital, Chicago, IL
• Denise Lopez-Majano
  Patient Advocate
• Katherine Rowe, MBBS, MD
  Royal Children's Hospital, Melbourne, Australia

Neuroendocrine

• Nathan Holladay, MD, PhD
  Salt Lake City, UT
  Chair
• Mary Dimmock
  Patient Advocate
• Christopher Mullins, PhD
  National Institute of Diabetes and Digestive and Kidney Diseases (NIH/NIDDK), Bethesda, MD

Immune

• Mady Hornig, MD
  Columbia University, New York, NY
  Co-Chair
• Nancy Klimas, MD
  Nova Southeastern University, Ft. Lauderdale, FL
  Co-Chair
• Simon Carding, PhD
  EMERG (Institute of Food Research/University of East Anglia), Norwich, UK
• Mary Dimmock
  Patient Advocate
• Mary Anne Fletcher, PhD
  Nova Southeastern University, Ft. Lauderdale, FL
• Nathan Holladay, MD, PhD
  Salt Lake City, UT
• Andreas Kogelnik, MD, PhD
  Open Medicine Institute, Mountain View, CA

Quality of Life/Functional Status (CPET)/Activity

• Drew Helmer, MD, MS
  War Related Illness and Injury Study Center VA- New Jersey Health Care System, East Orange, NJ
• Nathan Holladay, MD, PhD
  Salt Lake City, UT
• Betsy Keller, PhD
  Ithaca College, Ithaca, NY
• Rachael Korinek
  Patient Advocate
• Christopher Snell, PhD
  Workwell Foundation, Stockton, CA
• Staci Stevens, MA
  Workwell Foundation, Stockton, CA
• Mark VanNess, PhD
  University of the Pacific, Stockton, CA

Biomarkers

• Elisa Oltra, PhD
  Universidad Catolica de Valencia San Vicente Martir, Valencia, Spain
  Chair
• Jonas Bergquist, MD, PhD
  EMERG (Uppsala University), Uppsala, Sweden
• Simon Carding, PhD
  EMERG (Institute of Food Research/University of East Anglia), Norwich, UK
• Lily Chu, MD, MSHS
  Stanford University, Burlingame, CA
• Ronald Davis, PhD
  Stanford University, Stanford, CA
• Maureen Hanson, PhD
  Cornell University, Ithaca, NY
• Lubov Nathanson, PhD
  Nova Southeastern University, Ft. Lauderdale, FL
• David Patrick, MD
  The University of British Columbia, Vancouver, BC, Canada

NIH/NINDS/CDC

• Elizabeth Unger, MD, PhD
  The Centers for Disease Control and Prevention (CDC), Atlanta, GA
• Vicky Whittemore, PhD
  National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland
• M. Carolina Mendoza-Puccini, MD
  NINDS CDE Program Officer, National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland
• Claudia Moy, PhD
  National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland
• Andrew Breeden, PhD
  National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland

NINDS CDE Team

• Katelyn Gay, BS
  The Emmes Company, LLC, Rockville, Maryland
• Sherita Ala'i, MS (Until 2018)
  The Emmes Company, LLC, Rockville, Maryland
• Joy Esterlitz, MS (Until 2020)
  The Emmes Company, LLC, Rockville, Maryland
• Kristen Joseph, MA (Until 2019)
  The Emmes Company, LLC, Rockville, Maryland
• Muniza Sheikh, MS, MBA
  The Emmes Company, LLC, Rockville, Maryland
• Ian Spector, MPS
  The Emmes Company, LLC, Rockville, Maryland
• Sarah Tanveer, BS
  The Emmes Company, LLC, Rockville, Maryland