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Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40)
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Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40)
Supplemental: Amyotrophic Lateral Sclerosis (ALS)
Short Description of Instrument
The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ) is a patient self- report health status PRO and is specifically used to measure the subjective well-being of patients with ALS and the wider condition of motor neurone disease (MND).
There are 40 items/questions in the long form amyotrophic lateral sclerosis PRO, the ALSAQ-40, with 5 discrete scales: physical mobility (10 items); activities of daily living and independence (10 items); eating and drinking (3 items); communication (7 items); and emotional reactions (10 items).
Patients are asked to think about the difficulties they may have experienced during the last two weeks (e.g., I have found it difficult to feed myself). Patients are asked to indicate the frequency of each event by selecting one of 5 options (5 point Likert scale): never/rarely/sometimes/often/always or cannot do at all.
Jenkinson C, Fitzpatrick R, Brennan C, Bromberg M, Swash M. Development and validation of a short measure of health status for individuals with amyotrophic lateral sclerosis/motor neurone disease: the ALSAQ-40. J Neurol. 1999;246 Suppl 3:III16-21.


Document last updated July 2019