CDE Detailed Report

Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: McGill Quality of Life Questionnaire (MQOL)

Displaying 1 - 27 of 27
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C11883 McGill Quality of Life Questionnaire (MQOL) - troublesome physical symptom problem score MQOLTrblsmPhysiclSymptmProbScr Score indicating how big a problem the specified troublesome symptom or problem has been for the participant over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score indicating how big a problem the specified troublesome symptom or problem has been for the participant over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, one troublesome symptom has been 0;1;2;3;4;5;6;7;8;9;10 no problem;;;;;;;;;;tremendous problem Numeric Values

Circle the number which best shows how big a problem each one has been for you OVER THE PAST TWO (2) DAYS.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11894 McGill Quality of Life Questionnaire (MQOL) - success achieve whole life goal score MQOLSuccessAchvWholLifeGoalScr Score reflecting how, over the past two days, the participant assessed her or his success in achieving her or his goals through her or his whole life, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how, over the past two days, the participant assessed her or his success in achieving her or his goals through her or his whole life, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, when I thought about my whole life, I felt that in achieving life goals I have 0;1;2;3;4;5;6;7;8;9;10 Made no progress whatsoever;;;;;;;;;;Progressed to complete fulfillment Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11905 McGill Quality of Life Questionnaire (MQOL) - existential well-being subscale score MQOLExistWellbeingSubscScore Score calculating the total for all values from questions on the Existential Well-being Subscale section of the McGill Quality of Life Questionnaire (MQOL) MQOL Existential Well-being Subscale score MQOL Existential Well-being Subscale score Numeric Values

Contact the author for scoring information: robin.cohen@mcgill.ca

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Free-Form Entry

C11884 McGill Quality of Life Questionnaire (MQOL) - second troublesome symptom text MQOLScndTrblsmeSympTxt The text of troublesome symptom that the participant has been experiencing over the past two days. This symptom is different from the first symptom The text of troublesome symptom that the participant has been experiencing over the past two days. This symptom is different from the first symptom Over the past two (2) days, another troublesome symptom has been Alphanumeric

For the questions in Part "B", please list the physical symptoms or problems which have been the biggest problem for you over the past two (2) days. (Some examples are pain, tiredness, weakness, nausea, vomiting, constipation, diarrhea, trouble sleeping, shortness of breath, lack of appetite, sweating, immobility. Feel free to refer to others if necessary).Circle the number which best shows how a big problem each one has been for you OVER THE PAST TWO (2) DAYS. If, over the past two (2) days, you had NO physical symptoms or problems, or only one or two, answer for each of the ones you have had and write "none" for the extra questions in Part B, then continue with Part C.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points 255

Free-Form Entry

C11895 McGill Quality of Life Questionnaire (MQOL) - life worth score MQOLLifeWorthScore Score reflecting how, over the past two days, the participant assessed the worth of her or his life to this point, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how, over the past two days, the participant assessed the worth of her or his life to this point, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, when I thought about my life, I felt that my life to this point has been 0;1;2;3;4;5;6;7;8;9;10 Completely worthless;;;;;;;;;;Very worthwhile Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11906 McGill Quality of Life Questionnaire (MQOL) - support subscale score MQOLSupportSubscaleScore Score calculating the total for all values from questions on the Support Subscale section of the McGill Quality of Life Questionnaire (MQOL) MQOL Support Subscale score MQOL Support Subscale score Numeric Values

Contact the author for scoring information: robin.cohen@mcgill.ca

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Free-Form Entry

C11885 McGill Quality of Life Questionnaire (MQOL) - second troublesome symptom score MQOLScndTrblsmeSympScore The score which best shows how big a problem the second symptom has been for the participant over the past two (2) days The score which best shows how big a problem the second symptom has been for the participant over the past two (2) days Over the past two (2) days, another troublesome symptom has been 0;1;2;3;4;5;6;7;8;9;10 no problem;;;;;;;;;;tremendous problem Numeric Values

For the questions in Part "B", please list the physical symptoms or problems which have been the biggest problem for you over the past two (2) days. (Some examples are pain, tiredness, weakness, nausea, vomiting, constipation, diarrhea, trouble sleeping, shortness of breath, lack of appetite, sweating, immobility. Feel free to refer to others if necessary).Circle the number which best shows how a big problem each one has been for you OVER THE PAST TWO (2) DAYS. If, over the past two (2) days, you had NO physical symptoms or problems, or only one or two, answer for each of the ones you have had and write "none" for the extra questions in Part B, then continue with Part C.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11896 McGill Quality of Life Questionnaire (MQOL) - life control score MQOLLifeControlScore Score reflecting how much control the participant felt she or he had over her or his life over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how much control the participant felt she or he had over her or his life over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, I have felt that I have 0;1;2;3;4;5;6;7;8;9;10 no control over my life;;;;;;;;;;complete control over my life Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C17823 McGill Quality of Life Questionnaire (MQOL) - troublesome physical symptom problem number MQOLTrblsmPhysiclSymptmProbNum Number identifying one of up to three of the biggest individual troublesome physical symptoms or problems, if any, that the participant has experienced over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Number identifying one of up to three of the biggest individual troublesome physical symptoms or problems, if any, that the participant has experienced over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) 0;1;2;3 0;1;2;3 Numeric Values

If, over the past two (2) days, you had NO physical symptoms or problems, or only one or two, answer for each of the ones you HAVE had

No references available Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11886 McGill Quality of Life Questionnaire (MQOL) - third troublesome symptom text MQOLThrdTrblsmeSympTxt The text of troublesome symptom that the participant has been experiencing over the past two days The text of troublesome symptom that the participant has been experiencing over the past two days Over the past two (2) days, a third troublesome symptom has been Alphanumeric

For the questions in Part "B", please list the physical symptoms or problems which have been the biggest problem for you over the past two (2) days. (Some examples are pain, tiredness, weakness, nausea, vomiting, constipation, diarrhea, trouble sleeping, shortness of breath, lack of appetite, sweating, immobility. Feel free to refer to others if necessary).Circle the number which best shows how a big problem each one has been for you OVER THE PAST TWO (2) DAYS. If, over the past two (2) days, you had NO physical symptoms or problems, or only one or two, answer for each of the ones you have had and write "none" for the extra questions in Part B, then continue with Part C.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points 255

Free-Form Entry

C11897 McGill Quality of Life Questionnaire (MQOL) - self esteem score MQOLSelfEsteemScore Score reflecting the extent to which the participant felt over the past two days that she or he is a good person, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting the extent to which the participant felt over the past two days that she or he is a good person, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, I felt good about myself as a person 0;1;2;3;4;5;6;7;8;9;10 Completely disagree;;;;;;;;;;Completely agree Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11887 McGill Quality of Life Questionnaire (MQOL) - third troublesome symptom score MQOLThrdTrblsmeSympScore The score which best shows how big a problem the third symptom has been for the participant over the past two (2) days The score which best shows how big a problem the third symptom has been for the participant over the past two (2) days Over the past two (2) days, a third troublesome symptom has been 0;1;2;3;4;5;6;7;8;9;10 no problem;;;;;;;;;;tremendous problem Numeric Values

For the questions in Part "B", please list the physical symptoms or problems which have been the biggest problem for you over the past two (2) days. (Some examples are pain, tiredness, weakness, nausea, vomiting, constipation, diarrhea, trouble sleeping, shortness of breath, lack of appetite, sweating, immobility. Feel free to refer to others if necessary).Circle the number which best shows how a big problem each one has been for you OVER THE PAST TWO (2) DAYS. If, over the past two (2) days, you had NO physical symptoms or problems, or only one or two, answer for each of the ones you have had and write "none" for the extra questions in Part B, then continue with Part C.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11898 McGill Quality of Life Questionnaire (MQOL) - two day perception score MQOLTwoDayPerceptionScore Score reflecting how the participant felt in general about the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how the participant felt in general about the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) To me, the past two (2) days were 0;1;2;3;4;5;6;7;8;9;10 A burden;;;;;;;;;;A gift Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11888 McGill Quality of Life Questionnaire (MQOL) - physical feel score MQOLPhysicalFeelScore Score for how the participant felt physically over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score for how the participant felt physically over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days I have felt 0;1;2;3;4;5;6;7;8;9;10 physically terrible;;;;;;;;;;physically well Numeric Values

Refer to instructions on form.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11899 McGill Quality of Life Questionnaire (MQOL) - world attitude score MQOLWorldAttitudeScore Score reflecting the participant's perception of the world over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting the participant's perception of the world over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, the world has been 0;1;2;3;4;5;6;7;8;9;10 an impersonal unfeeling place;;;;;;;;;;caring and responsive to my needs Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11889 McGill Quality of Life Questionnaire (MQOL) - depression score MQOLDepressionScore Score reflecting how depressed the participant felt over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how depressed the participant felt over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days I have been depressed 0;1;2;3;4;5;6;7;8;9;10 not at all;;;;;;;;;;Extremely Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11900 McGill Quality of Life Questionnaire (MQOL) - support perception score MQOLSupportPerceptionScore Score reflecting how much support the participant felt he or she received over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how much support the participant felt he or she received over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, I have felt supported 0;1;2;3;4;5;6;7;8;9;10 not at all;;;;;;;;;;completely Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11890 McGill Quality of Life Questionnaire (MQOL) - nervous worry score MQOLNervousWorryScore Score reflecting how nervous or worried the participant felt over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how nervous or worried the participant felt over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days I have been nervous or worried 0;1;2;3;4;5;6;7;8;9;10 not at all;;;;;;;;;;Extremely Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11901 McGill Quality of Life Questionnaire (MQOL) - life quality affector text MQOLLifeQualityAffectorText Text description of the things that the participant feels had the greatest effect on his or her quality of life, and whether their effects were good or bad, as part of the McGill Quality of Life Questionnaire (MQOL) Text description of the things that the participant feels had the greatest effect on his or her quality of life, and whether their effects were good or bad, as part of the McGill Quality of Life Questionnaire (MQOL) Please list or describe the things which had the greatest effect on your quality of life in the past two (2) days. Please tell us whether each thing you list made your quality of life better or worse during this time Alphanumeric

Please list or describe the things which has the greatest effect on your quality of life in the past two (2) days. Please tell us whether each thing you list made your quality of life better or worse during this time.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points 255

Free-Form Entry

C11891 McGill Quality of Life Questionnaire (MQOL) - amount time sad score MQOLAmountTimeSadScore Score reflecting how much of the time the participant felt sad over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how much of the time the participant felt sad over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, how much of the time did you feel sad? 0;1;2;3;4;5;6;7;8;9;10 Never;;;;;;;;;;Always Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11902 McGill Quality of Life Questionnaire (MQOL) - total score MQOLTotalScore Score calculating the total for all point values from questions on the McGill Quality of Life Questionnaire (MQOL) MQOL Total score MQOL Total score Numeric Values

Contact the author for scoring information: robin.cohen@mcgill.ca

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Free-Form Entry

C11881 McGill Quality of Life Questionnaire (MQOL) - two day total life quality score MQOLTwoDayTotalLifeQualityScr Score for the participant's total quality of life over the past two days in regards to the physical, emotional, social, spiritual, and financial aspects, as part of the McGill Quality of Life Questionnaire (MQOL) Score for the participant's total quality of life over the past two days in regards to the physical, emotional, social, spiritual, and financial aspects, as part of the McGill Quality of Life Questionnaire (MQOL) Considering all parts of my life - physical, emotional, social, spiritual, and financial - over the past two (2) days the quality of my life has been 0;1;2;3;4;5;6;7;8;9;10 Very bad;;;;;;;;;;Excellent Numeric Values

Refer to instructions on form.

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11892 McGill Quality of Life Questionnaire (MQOL) - feel about future score MQOLFeelAboutFutureScore Score reflecting how the participant felt over the past two days when thinking about the future, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how the participant felt over the past two days when thinking about the future, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, when I thought of the future, I was 0;1;2;3;4;5;6;7;8;9;10 not afraid;;;;;;;;;;terrifed Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11903 McGill Quality of Life Questionnaire (MQOL) - physical subscale score MQOLPhysicalSubscaleScore Score calculating the total for all values from questions on the Physical Subscale section of the McGill Quality of Life Questionnaire (MQOL) MQOL Physical Subscale score MQOL Physical Subscale score Numeric Values

Contact the author for scoring information: robin.cohen@mcgill.ca

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Free-Form Entry

C11882 McGill Quality of Life Questionnaire (MQOL) - troublesome physical symptom problem text MQOLTrblsmPhysiclSymptmProbTxt Text identification of a single troublesome physical symptom or problem that the participant has experienced over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Text identification of a single troublesome physical symptom or problem that the participant has experienced over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, one troublesome symptom has been Alphanumeric

Please list the physical symptoms or problems which have been the biggest problem for you over the past two (2) days. (Some examples are pain, tiredness, weakness, nausea, vomiting, constipation, diarrhea, trouble sleeping, shortness of breath, lack of appetite, sweating, immobility. Feel free to refer to others if necessary).

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points 255

Free-Form Entry

C11893 McGill Quality of Life Questionnaire (MQOL) - life meaning score MQOLLifeMeaningScore Score reflecting how the participant felt over the past two days about the meaning of her or his life, as part of the McGill Quality of Life Questionnaire (MQOL) Score reflecting how the participant felt over the past two days about the meaning of her or his life, as part of the McGill Quality of Life Questionnaire (MQOL) Over the past two (2) days, my life has been 0;1;2;3;4;5;6;7;8;9;10 utterly meaningless and without purpose;;;;;;;;;;very purposeful and meaningful Numeric Values

Please choose the number which best describes your feelings and thoughts OVER THE PAST TWO (2) DAYS

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C11904 McGill Quality of Life Questionnaire (MQOL) - psychological subscale score MQOLPsychologSubscaleScore Score calculating the total for all values from questions on the Psychological Subscale section of the McGill Quality of Life Questionnaire (MQOL) MQOL Psychological Subscale score MQOL Psychological Subscale score Numeric Values

Contact the author for scoring information: robin.cohen@mcgill.ca

Cohen SR, Mount BM, Strobel MG & Bui F, The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability, Palliative Medicine, (1995) 9:207-219. Adult Supplemental 3.00 2013-07-22 16:57:17.79 McGill Quality of Life Questionnaire (MQOL) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Free-Form Entry

CSV