CDE Detailed Report
Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Cognitive
CRF: Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C)
Displaying 1 - 36 of 36
Sub-Domain: Cognitive
CRF: Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C)
Displaying 1 - 36 of 36
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C11716 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode inappropriate time place unexpected score | ELQRCCryEpiInapprTmPlUnexScore | Score representing the proportion of episodes of crying that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of crying that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11727 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode without cause physical surrounding score | ELQRCCryEpiWOCausPhysSurrScore | Score representing the proportion of episodes of smiling that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of smiling that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Of these episodes, what proportion of them occurred without any cause in his/her physical surroundings? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11706 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode under control score | ELQRCLaughEpiUnderCtrlScore | Score representing the proportion of episodes of laughter the particpant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of laughter the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Of these episodes, what proportion was he/she able to control? | 0;1;2;3 | Almost all of them;The majority;The minority;None | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11717 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode duration score | ELQRCCryEpiDurScore | Score representing the duration of episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the duration of episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | On average, how long did the episodes last? | 0;1;2;3 | Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11728 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode inappropriate time place unexpected score | ELQRCSmiEpiInapprTmPlUnexScore | Score representing the proportion of episodes of smiling that occurred unexpectedly or at an inappropriate time or place, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of smiling that occurred unexpectedly or at an inappropriate time or place, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11707 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode amuse happy happiness score | ELQRCLaughEpiAmuseHappyScore | Score representing the number of episodes of laughter that occurred as a result of amusement or happiness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the number of episodes of laughter that occurred as a result of amusement or happiness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | How many of these episodes occurred as a result of amusement or happiness? | 0;1;2;3 | Almost all of them;The majority;The minority;None | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11718 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode under control | ELQRCCryEpiUnderCtrlSco | Score representing the proportion of episodes of the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Of these episodes, what proportion was he/she able to control? | 0;1;2;3 | Almost all of them;The majority;The minority;None | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11729 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode duration score | ELQRCSmiEpiDurScore | Score representing the duration of episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the duration of episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | On average, how long did the episodes last? | 0;1;2;3 | Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11708 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh expect score | ELQRCLaughExpectScore | Score representing the number of cases the laughter was greater than expected given how happy or amused the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the number of cases the laughter was greater than expected given how happy or amused the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | In how many cases was the laughter greater than you would expect given how happy or amused he/she was feeling? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11719 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode sad score | ELQRCCryEpiSadScore | Score representing the number of episodes of crying that occurred as a result of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the number of episodes of crying that occurred as a result of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | How many of these episodes occurred as a result of sadness? | 0;1;2;3 | Almost all of them;The majority;The minority;None | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11730 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smiling episodes under control score | ELQRCSmiEpiUnderCtrlScore | Score representing the proportion of episodes of smiling the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of smiling the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Of these episodes, what proportion was he/she able to control? | 0;1;2;3 | Almost all of them;The majority;The minority;None | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11709 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode sadness score | ELQRCLaughEpiSadnessScore | Score representing the number of episodes of laughter that occurred with feelings of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the number of episodes of laughter that occurred with feelings of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | In how many of these episodes did the laughter occur with feelings of sadness (either immediately beforehand, or simultaneously)? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11720 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry expect score | ELQRCCryExpectScore | Score representing how many cases the crying was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing how many cases the crying was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | In how many cases was the crying greater than you would expect given how upset he/she was feeling? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11731 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode happy amuse score | ELQRCSmiEpiHapAmuseScore | Score representing how many of the smiling episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing how many of the smiling episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | How many of these episodes occurred as a result of amusement or happiness? | 0;1;2;3 | Almost all of them;The majority;The minority;None | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11710 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode other emotions score | ELQRCLaughEpiOtherEmotionsScr | Score representing the proportion of episodes of laughter that occurred simultaneously or immediately before other emotions, such as nervousness, anger, or fear, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of laughter that occurred simultaneously or immediately before other emotions, such as nervousness, anger, or fear, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the laughter, or simultaneously)? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11721 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode happy amuse score | ELQRCCryEpiHapAmuseScore | Score representing how many of the crying episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing how many of the crying episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | In how many of these episodes did the crying occur with feelings of happiness or amusement (either immediately beforehand, or simultaneously)? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11732 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile expectation score | ELQRCSmiExpectationScore | Score representing the proportion of cases in which the smiling was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of cases in which the smiling was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | In how many cases was the smiling greater than you would expect given how happy or amused he/she was feeling? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11711 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode other emotions Text | ELQRCLaughEpiOtherEmoTxt | Text about the emotions that occurred simultaneously or immediately before the episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Text about the emotions that occurred simultaneously or immediately before the episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Specify | Alphanumeric |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points | 255 |
Free-Form Entry |
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| C11722 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode other emotion score | ELQRCCryEpiOtherEmotScore | Score representing the proportion of crying episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of crying episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the ELQRC | What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the laughter, or simultaneously)? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11733 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode sad score | ELQRCSmiEpiSadScore | Score representing the number of episodes of smiling that occurred with sadness, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the number of episodes of smiling that occurred with sadness, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | In how many of these episodes did the smiling occur with feelings of sadness (either immediately beforehand, or simultaneously)? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11712 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode social distress embarrassment score | ELQRCLaughEpiSocDisEmbScore | Score representing the proportion of episodes of laughter that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of laughter that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | What proportion of these episodes caused him/her any social distress or embarrassment? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11723 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode other emotion text | ELQRCCryEpiOtherEmoTxt | Text description of the emotions that occurred simultaneously with or immediately before the episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Text description of the emotions that occurred simultaneously with or immediately before the episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Specify | Alphanumeric |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points | 255 |
Free-Form Entry |
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| C11702 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - sudden laugh episode score | ELQRCSuddenLaughEpisdScore | Score for how often the participant experienced sudden episodes of laughter in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score for how often the participant experienced sudden episodes of laughter in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Has he/she experienced sudden episodes of laughter in the past four weeks? How often? | 0;1;2;3 | Never;Occasionally;Quite often;Frequently | Numeric Values |
If you scored 0 on ELQ-R&C Q1, then skip to ELQ-R&C Q12. If you scored 1, 2, or 3 on ELQ-R&C Q1, then continue from ELQ-R&C Q2. |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11734 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode other emotion score | ELQRCSmiEpiOtherEmoScore | Score representing the proportion of smiling episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of smiling episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the ELQRC | What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the smiling, or simultaneously)? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11713 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode motor neuron disease onset change indicator | ELQRCLaughEpiMNDOnsetChangeInd | Indicator of whether there was a change in pattern of laughing before the onset of MND (motor neuron disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Indicator of whether there was a change in pattern of laughing before the onset of MND (motor neuron disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Does this pattern of laughing represent a change from that prior to the onset of MND? | 0;1 | No;Yes | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11724 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode social distress embarrass score | ELQRCCryEpiSocDisEmbScore | Score representing the proportion of episodes of crying that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of crying that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | What proportion of these episodes caused him/her any social distress or embarrassment? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11703 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode without cause physical surroundings proportion score | ELQRCLaugEpiWOCausePhysSurrScr | Score representing the proportion of episodes of laughter that occurred without any cause in the participant's physical surrounding, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of laughter that occurred without any cause in the participant's physical surrounding, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Of these episodes, what proportion of them occurred without any cause in his/her physical surroundings? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11735 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode other emotion text | ELQRCSmiEpiOtherEmoTxt | Text description of the emotions that occurred simultaneously with or immediately before the episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Text description of the emotions that occurred simultaneously with or immediately before the episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Specify | Alphanumeric |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points | 255 |
Free-Form Entry |
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| C11714 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - sudden cry episode score | ELQRCSuddenCryEpisdScore | Score for whether the participant experienced any sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score for whether the participant experienced any sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Has he/she experienced any sudden episodes of crying in the past four weeks? How often? | 0;1;2;3 | Never;Occasionally;Quite often;Frequently | Numeric Values |
If you have skipped from ELQ-R&C Q1, start here. If you scored 0 on ELQ-R&C Q12, then skip to ELQ-R&C Q23. If you scored 1, 2, or 3 on ELQ-R&C Q1, then continue from ELQ-R&C Q13. |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11725 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - crying episode motor neuron disease onset change indicator | ELQRCCryEpiMNDOnsetChangeInd | Indicator whether there was a change in the pattern of crying before the onset of MND (Motor Neurons Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Indicator whether there was a change in the pattern of crying before the onset of MND (Motor Neurons Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Does this pattern of crying represent a change from that prior to the onset of MND? | 0;1 | No;Yes | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11704 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode inappropriate time place unexpected score | ELQRCLaughEpInapprTimPlUnexScr | Score representing the proportion of episodes of laughter that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of laughter that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11736 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode social distress embarrass score | ELQRCSmiEpiSocDistrssEmbScore | Score representing the proportion of episodes of smiling that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of smiling that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | What proportion of these episodes caused him/her any social distress or embarrassment? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11715 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode without cause physical surrounding score | ELQRCCryEpiWOCaPhysSurrScore | Score representing the proportion of episodes of crying that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the proportion of episodes of crying that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Of these episodes, what proportion of them occurred without any cause in his/her physical surroundings? | 0;1;2;3 | None;A minority;The majority;Almost all of them | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11726 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode score | ELQRCSmiEpiScore | Score for whether the participant experienced any episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score for whether the participant experienced any episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Has he/she experienced unusual episodes of smiling in the past four weeks? How often? | 0;1;2;3 | Never;Occasionally;Quite often;Frequently | Numeric Values |
If you have skipped from ELQ-R&C Q12, start here. If you scored 0 on ELQ-R&C Q12, then omit the rest of the questions. If you scored 1, 2, or 3 on ELQ-R&C Q23, then continue from ELQ-R&C Q24. |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11705 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode duration score | ELQRCLaughEpiDurScore | Score representing the duration of episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Score representing the duration of episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | On average, how long did the episodes last? | 0;1;2;3 | Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11737 | Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode motor neuron disease onset change indicator | ELQRCSmiEpiMNDOnsetChangeInd | Indicator of whether there was a change in pattern of smiling before the onset of MND (Motor Neuron Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Indicator of whether there was a change in pattern of smiling before the onset of MND (Motor Neuron Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) | Does this pattern of smiling represent a change from that prior to the onset of MND? | 0;1 | No;Yes | Numeric Values |
See instructions on form |
I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
