CDE Detailed Report

Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Cognitive
CRF: Emotional Lability Questionnaire: Person with MND (ELQ-MND)

Displaying 1 - 36 of 36
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C11692 Emotional Lability Questionnaire (ELQ) - smile unusual episode inappropriate proportion score ELQSmilUnuslEpInappropPrprtnSc Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that occurred at an inappropriate time or place or when not usually expected, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that occurred at an inappropriate time or place or when not usually expected, as part of the Emotional Lability Questionnaire (ELQ) What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11671 Emotional Lability Questionnaire (ELQ) - laughter sudden episode amuse happy proportion score ELQLaughSdnEpAmusHppylPrprtnSc Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that occurred as a result of amusement or happiness, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that occurred as a result of amusement or happiness, as part of the Emotional Lability Questionnaire (ELQ) How many of these episodes occurred as a result of amusement or happiness? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11682 Emotional Lability Questionnaire (ELQ) - cry sudden episode control proportion score ELQCrySddnEpCtrlPrprtnScore Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that she or he was able to control, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that she or he was able to control, as part of the Emotional Lability Questionnaire (ELQ) Of these episodes, what proportion were you able to control? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11693 Emotional Lability Questionnaire (ELQ) - smile unusual episode average duration score ELQSmileUnuslEpAvgDurScore Score for the average duration of any unusual episodes of smiling experienced by the participant/subject in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Score for the average duration of any unusual episodes of smiling experienced by the participant/subject in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) On average, how long did the episodes last? 0;1;2;3 Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11672 Emotional Lability Questionnaire (ELQ) - laughter sudden episode greater expect mood amount score ELQLghSdnEpGrtrExpctMoodAmtScr Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks in which they were greater than expected given her or his amusement or happiness, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks in which they were greater than expected given her or his amusement or happiness, as part of the Emotional Lability Questionnaire (ELQ) In how many cases was the laughter greater than you would expect given how happy or amused you were feeling? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11683 Emotional Lability Questionnaire (ELQ) - cry sudden episode sad proportion score ELQCrySuddnEpSadProportnScore Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred as a result of sadness, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred as a result of sadness, as part of the Emotional Lability Questionnaire (ELQ) How many of these episodes occurred as a result of sadness? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11694 Emotional Lability Questionnaire (ELQ) - smile unusual episode control proportion score ELQSmileUnuslEpCtrlPrprtnScore Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that she or he was able to control, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that she or he was able to control, as part of the Emotional Lability Questionnaire (ELQ) Of these episodes, what proportion were you able to control? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11673 Emotional Lability Questionnaire (ELQ) - laughter sudden episode feel sad proportion score ELQLaughSddnEpFeelSadPrprtnScr Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks that occurred with feelings of sadness either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks that occurred with feelings of sadness either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) In how many of these episodes did the laughter occur with feelings of sadness (either immediately beforehand, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11684 Emotional Lability Questionnaire (ELQ) - cry sudden episode greater expect mood amount score ELQCrySdnEpGrtrExpctMoodAmtScr Score for the proportion of any sudden episodes of crying experienced by the participant in the past four weeks in which they were greater than expected given how upset she or he was feeling, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of crying experienced by the participant in the past four weeks in which they were greater than expected given how upset she or he was feeling, as part of the Emotional Lability Questionnaire (ELQ) In how many cases was the crying greater than you would expect given how upset you were feeling? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11695 Emotional Lability Questionnaire (ELQ) - smile unusual episode happy amused proportion score ELQSmileUnuslEpHappyAmusAmtScr Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that occurred as a result of happiness or amusement, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that occurred as a result of happiness or amusement, as part of the Emotional Lability Questionnaire (ELQ) How many of these episodes occurred as a result of amusement or happiness? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11674 Emotional Lability Questionnaire (ELQ) - laughter sudden episode other emotion proportion score ELQLaughSddnEpOthrEmoPrptnScr Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks that occurred with other emotions either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks that occurred with other emotions either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the laughter, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11685 Emotional Lability Questionnaire (ELQ) - cry sudden episode feel happy proportion score ELQCrySddnEpFeelHappyPrprtnScr Score for the proportion of the participant's sudden episodes of crying in the past four weeks that occurred with feelings of happiness or amusement either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of the participant's sudden episodes of crying in the past four weeks that occurred with feelings of happiness or amusement either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) In how many of these episodes did the crying occur with feelings of happiness or amusement (either immediately beforehand, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11696 Emotional Lability Questionnaire (ELQ) - smile unusual episode greater expect mood amount score ELQSmiUnuslEpGrtExpctMoodAmtSc Score for the proportion of unusual episodes of smiling experienced by the participant in the past four weeks in which they were greater than expected given how happy or amused she or he was feeling, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of unusual episodes of smiling experienced by the participant in the past four weeks in which they were greater than expected given how happy or amused she or he was feeling, as part of the Emotional Lability Questionnaire (ELQ) In how many cases was the smiling greater than you would expect given how happy or amused you were feeling? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11675 Emotional Lability Questionnaire (ELQ) - laughter sudden episode other emotion text ELQLaughSddnEpOthrEmotnTxt Text specification of other emotions felt by the participant either immediately before or simultaneously with sudden episodes of laughter in the past four weeks , as part of the Emotional Lability Questionnaire (ELQ) Text specification of other emotions felt by the participant either immediately before or simultaneously with sudden episodes of laughter in the past four weeks , as part of the Emotional Lability Questionnaire (ELQ) Specify Alphanumeric

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points 255

Free-Form Entry

C11686 Emotional Lability Questionnaire (ELQ) - cry sudden episode other emotion proportion score ELQCrySddnEpOthrEmotnPrptnScr Score for the proportion of any sudden episodes of crying experienced by the participant in the past four weeks that occurred with other emotions either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of crying experienced by the participant in the past four weeks that occurred with other emotions either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the laughter, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11697 Emotional Lability Questionnaire (ELQ) - smile unusual episode feel happy proportion score ELQSmilUnuslEpFeelSadPrprtnScr Score for the proportion of the participant's unusual episodes of smiling in the past four weeks that occurred with feelings of sadness either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of the participant's unusual episodes of smiling in the past four weeks that occurred with feelings of sadness either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) In how many of these episodes did the smiling occur with feelings of sadness (either immediately beforehand, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11676 Emotional Lability Questionnaire (ELQ) - laughter sudden episode embarrass proportion score ELQLaughSddnEpEmbarasPrprtnScr Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks that caused her or him any social distress or embarrassment, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant in the past four weeks that caused her or him any social distress or embarrassment, as part of the Emotional Lability Questionnaire (ELQ) What proportion of these episodes caused you any social distress or embarrassment? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11687 Emotional Lability Questionnaire (ELQ) - cry sudden episode other emotion text ELQCrySddnEpOthrEmotnTxt Text specification of other emotions felt by the participant either immediately before or simultaneously with sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Text specification of other emotions felt by the participant either immediately before or simultaneously with sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Specify Alphanumeric

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points 255

Free-Form Entry

C11666 Emotional Lability Questionnaire (ELQ) - laughter sudden episode frequency score ELQLaughtrSuddnEpisdFreqScore Score for the frequency at which the participant/subject experienced sudden episodes of laughter in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Score for the frequency at which the participant/subject experienced sudden episodes of laughter in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Have you experienced sudden episodes of laughter in the past four weeks? How often? 0;1;2;3 Never;Occasionally;Quite often;Frequently Numeric Values

If you scored 0 on ELQ-MND Q1, then skip to ELQ-MND Q12. If you scored 1, 2, or 3 on ELQ-MND Q1, then continue from ELQ-MND Q2.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11698 Emotional Lability Questionnaire (ELQ) - smile unusual episode other emotion proportion score ELQSmilUnuslEpOthrEmotnPrptnSc Score for the proportion of any unusual episodes of smiling experienced by the participant in the past four weeks that occurred with other emotions either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any unusual episodes of smiling experienced by the participant in the past four weeks that occurred with other emotions either immediately before or simultaneously, as part of the Emotional Lability Questionnaire (ELQ) What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the smiling, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11677 Emotional Lability Questionnaire (ELQ) - laughter change onset MND indicator ELQLaughterChangeOnsetMNDInd Indicator whether the participant's pattern of laughter in the past four weeks represents a change from prior to the onset of MND, as part of the Emotional Lability Questionnaire (ELQ) Indicator whether the participant's pattern of laughter in the past four weeks represents a change from prior to the onset of MND, as part of the Emotional Lability Questionnaire (ELQ) Does this pattern of laughing represent a change from that prior to the onset of MND? 0;1 No;Yes Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11688 Emotional Lability Questionnaire (ELQ) - cry sudden episode embarrass proportion score ELQCrySddnEpEmbarasPrprtnScore Score for the proportion of any sudden episodes of crying experienced by the participant in the past four weeks that caused her or him any social distress or embarrassment, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of crying experienced by the participant in the past four weeks that caused her or him any social distress or embarrassment, as part of the Emotional Lability Questionnaire (ELQ) What proportion of these episodes caused you any social distress or embarrassment? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11667 Emotional Lability Questionnaire (ELQ) - laughter sudden episode no cause proportion score ELQLaughtrSddnEpNoCausPrprtnSc Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that occurred without any cause in her or his physical surroundings, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that occurred without any cause in her or his physical surroundings, as part of the Emotional Lability Questionnaire (ELQ) Of these episodes, what proportion of them occurred without any cause in your physical surroundings? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11699 Emotional Lability Questionnaire (ELQ) - smile unsual episode other emotion text ELQSmilUnuslEpOthrEmotnPrptnTx Text specification of other emotions felt by the participant either immediately before or simultaneously with unusual episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Text specification of other emotions felt by the participant either immediately before or simultaneously with unusual episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Specify Alphanumeric

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points 255

Free-Form Entry

C11678 Emotional Lability Questionnaire (ELQ) - cry sudden episode frequency score ELQCrySuddnEpisdFreqScore Score for the frequency at which the participant/subject experienced sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Score for the frequency at which the participant/subject experienced sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Have you experienced any sudden episodes of crying in the past four weeks? How often? 0;1;2;3 Never;Occasionally;Quite often;Frequently Numeric Values

If you have skipped from ELQ-MND Q1, start here. If you scored 0 on ELQ-MND Q12, then skip to ELQ-MND Q23. If you scored 1, 2, or 3 on ELQ-MND Q12, then continue from ELQ-MND Q13.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11689 Emotional Lability Questionnaire (ELQ) - cry change onset MND indicator ELQCryChangeOnsetMNDInd Indicator whether the participant's pattern of crying in the past four weeks represents a change from prior to the onset of MND, as part of the Emotional Lability Questionnaire (ELQ) Indicator whether the participant's pattern of crying in the past four weeks represents a change from prior to the onset of MND, as part of the Emotional Lability Questionnaire (ELQ) Does this pattern of crying represent a change from that prior to the onset of MND? 0;1 No;Yes Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11668 Emotional Lability Questionnaire (ELQ) - laughter sudden episode inappropriate proportion score ELQLaughSddnEpInappropPrprtnSc Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that occurred at an inappropriate time or place or when not usually expected, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that occurred at an inappropriate time or place or when not usually expected, as part of the Emotional Lability Questionnaire (ELQ) What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11700 Emotional Lability Questionnaire (ELQ) - smile unusual episode embarrass proportion score ELQSmilUnuslEpEmbarasPrprtnScr Score for the proportion of any unusual episodes of smiling experienced by the participant in the past four weeks that caused her or him any social distress or embarrassment, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any unusual episodes of smiling experienced by the participant in the past four weeks that caused her or him any social distress or embarrassment, as part of the Emotional Lability Questionnaire (ELQ) What proportion of these episodes caused you any social distress or embarrassment? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11679 Emotional Lability Questionnaire (ELQ) - cry sudden episode no cause proportion score ELQCrySddnEpNoCausPrprtnScore Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred without any cause in her or his physical surroundings, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred without any cause in her or his physical surroundings, as part of the Emotional Lability Questionnaire (ELQ) Of these episodes, what proportion of them occurred without any cause in your physical surroundings? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11690 Emotional Lability Questionnaire (ELQ) - smile unusual episode frequency score ELQSmileUnuslEpisdFreqScore Score for the frequency at which the participant/subject experienced unusual episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Score for the frequency at which the participant/subject experienced unusual episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Have you experienced unusual episodes of smiling in the past four weeks? How often? 0;1;2;3 Never;Occasionally;Quite often;Frequently Numeric Values

If you have skipped from ELQ-MND Q12, start here. If you scored 0 on ELQ-MND Q23, then omit the rest of the questions. If you scored 1, 2, or 3 on ELQ-MND Q23, then continue from ELQ-MND Q24.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11669 Emotional Lability Questionnaire (ELQ) - laughter sudden episode average duration score ELQLaughtrSuddnEpAvgDurScore Score for the average duration of any sudden episodes of laughter experienced by the participant/subject in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Score for the average duration of any sudden episodes of laughter experienced by the participant/subject in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) On average, how long did the episodes last? 0;1;2;3 Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11701 Emotional Lability Questionnaire (ELQ) - smile change onset motor neuron disease indicator ELQSmileChangeOnsetMNDInd Indicator whether the participant's pattern of smiling in the past four weeks represents a change from prior to the onset of motor neuron disease (MND), as part of the Emotional Lability Questionnaire (ELQ) Indicator whether the participant's pattern of smiling in the past four weeks represents a change from prior to the onset of MND, as part of the Emotional Lability Questionnaire (ELQ) Does this pattern of smiling represent a change from that prior to the onset of MND? 0;1 No;Yes Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11680 Emotional Lability Questionnaire (ELQ) - cry sudden episode inappropriate proportion score ELQCrySddnEpInappropPrprtnScr Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred at an inappropriate time or place or when not usually expected, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred at an inappropriate time or place or when not usually expected, as part of the Emotional Lability Questionnaire (ELQ) What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11691 Emotional Lability Questionnaire (ELQ) - smile unusual episode no cause proportion score ELQSmileUnuslEpNoCausPrprtnScr Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that occurred without any cause in her or his physical surroundings, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any unusual episodes of smiling experienced by the participant/subject in the past four weeks that occurred without any cause in her or his physical surroundings, as part of the Emotional Lability Questionnaire (ELQ) Of these episodes, what proportion of them occurred without any cause in your physical surroundings? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11670 Emotional Lability Questionnaire (ELQ) - laughter sudden episode control proportion score ELQLaughSddnEpCtrlPrprtnScore Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that she or he was able to control, as part of the Emotional Lability Questionnaire (ELQ) Score for the proportion of any sudden episodes of laughter experienced by the participant/subject in the past four weeks that she or he was able to control, as part of the Emotional Lability Questionnaire (ELQ) Of these episodes, what proportion were you able to control? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11681 Emotional Lability Questionnaire (ELQ) - crying sudden episode average duration score ELQCrySuddnEpAvgDurScore Score for the average duration of any sudden episodes of crying experienced by the participant/subject in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) Score for the average duration of any sudden episodes of crying experienced by the participant/subject in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ) On average, how long did the episodes last? 0;1;2;3 Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) Numeric Values

Please read each question carefully and then circle the number next to the answer that best describes your emotional reactions in the last four weeks.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Person with MND (ELQ-MND) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

CSV