CDE Detailed Report
Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Cognitive
CRF: Cambridge Behavioral Inventory - Revised
Displaying 1 - 47 of 47
Sub-Domain: Cognitive
CRF: Cambridge Behavioral Inventory - Revised
Displaying 1 - 47 of 47
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C11546 | Cambridge Behavioural Inventory Revised (CBI-R) - impulsive action frequency score | CBIRImpulsiveActionFreqScore | Score for frequency over past month of acting impulsively without thinking as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of acting impulsively without thinking as part of the Cambridge Behavioural Inventory Revised (CBI-R | Acts impulsively without thinking | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11557 | Cambridge Behavioural Inventory Revised (CBI-R) - decline table manners frequency score | CBIRDeclineTableMannerFreqScr | Score for frequency over past month of table manners declining, e.g., stuffing food into mouth as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of table manners declining, e.g., stuffing food into mouth as part of the Cambridge Behavioural Inventory Revised (CBI-R | Table manners are declining | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
e.g. stuffing food into mouth |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11525 | Cambridge Behavioural Inventory Revised (CBI-R) - asks same question frequency score | CBIRAsksSameQuestFreqScore | Score for frequency over past month of ask the same questions over and over again as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of ask the same questions over and over again as part of the Cambridge Behavioural Inventory Revised (CBI-R | Asks the same questions over and over again | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11568 | Cambridge Behavioural Inventory Revised (CBI-R) - reduced affection frequency score | CBIRReducedAffectionFreqScore | Score for frequency over past month of showing reduced affection as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of showing reduced affection as part of the Cambridge Behavioural Inventory Revised (CBI-R | Shows reduced affection | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11536 | Cambridge Behavioural Inventory Revised (CBI-R) - problem handle money pay bills frequency score | CBIRProbHndlMonPayBillsFreqScr | Score for frequency over past month of having problems handling money or paying bills as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having problems handling money or paying bills as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has problems handling money or paying bills | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11547 | Cambridge Behavioural Inventory Revised (CBI-R) - crying frequency score | CBIRCryingFreqScore | Score for frequency over past month of crying as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of crying as part of the Cambridge Behavioural Inventory Revised (CBI-R | Cries | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11558 | Cambridge Behavioural Inventory Revised (CBI-R) - night sleep disturb frequency score | CBIRNightSleepDisturbFreqScore | Score for frequency over past month of sleep being disturbed at night as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of sleep being disturbed at night as part of the Cambridge Behavioural Inventory Revised (CBI-R | Sleep is disturbed at night | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11526 | Cambridge Behavioural Inventory Revised (CBI-R) - loses misplaces things frequency score | CBIRLoseMisplaceThingFreqScore | Score for frequency over past month of losing or misplacing things as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of losing or misplacing things as part of the Cambridge Behavioural Inventory Revised (CBI-R | Loses or misplaces things | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11569 | Cambridge Behavioural Inventory Revised (CBI-R) - other comments text | CBIROtherCommentsText | Text description of any other comments as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Text description of any other comments as part of the Cambridge Behavioural Inventory Revised (CBI-R | Any other comments | Alphanumeric |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points | 255 |
Free-Form Entry |
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| C11537 | Cambridge Behavioural Inventory Revised (CBI-R) - difficulty groom self frequency score | CBIRDifficultyGroomSelfFreqScr | Score for frequency over past month of having difficulties grooming self as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having difficulties grooming self as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has difficulties grooming self | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
e.g. shaving or putting on make-up |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11548 | Cambridge Behavioural Inventory Revised (CBI-R) - sad depressed frequency score | CBIRSadDepressedFreqScore | Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R | Appears sad or depressed | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11559 | Cambridge Behavioural Inventory Revised (CBI-R) - more day sleep frequency score | CBIRMoreDaySleepFreqScore | Score for frequency over past month of sleeping more by day than before as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of sleeping more by day than before as part of the Cambridge Behavioural Inventory Revised (CBI-R | Sleeps more by day than before | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
cat naps, etc. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11527 | Cambridge Behavioural Inventory Revised (CBI-R) - forgets names familiar people frequency score | CBIRFrgtNameFamilPeopFreqScore | Score for frequency over past month of forgetting names of familiar people as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of forgetting names of familiar people as part of the Cambridge Behavioural Inventory Revised (CBI-R | Forgets the names of familiar people | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11570 | Cambridge Behavioural Inventory Revised (CBI-R) - total score value | CBIRTotalScoreVal | Total score from the sum of all questions as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Total score from the sum of all questions as part of the Cambridge Behavioural Inventory Revised (CBI-R | Total score | Numeric Values |
The sum of answers to questions 1-45. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Free-Form Entry |
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| C11538 | Cambridge Behavioural Inventory Revised (CBI-R) - difficulty dress self frequency score | CBIRDifficultyDressSelfFreqScr | Score for frequency over past month of having difficulties dressing self as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having difficulties dressing self as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has difficulties dressing self | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11549 | Cambridge Behavioural Inventory Revised (CBI-R) - restless agitated frequency score | CBIRRestlessAgitatedFreqScore | Score for frequency over past month of being very restless or agitated as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of being very restless or agitated as part of the Cambridge Behavioural Inventory Revised (CBI-R | Is very restless or agitated | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11560 | Cambridge Behavioural Inventory Revised (CBI-R) - rigid fixed idea opinion frequency score | CBIRRigidFixedIdeaOpinFreqScr | Score for frequency over past month of being rigid and fixed in her/his ideas and opinions as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of being rigid and fixed in her/his ideas and opinions as part of the Cambridge Behavioural Inventory Revised (CBI-R | Is rigid and fixed in her/his ideas and opinions | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11528 | Cambridge Behavioural Inventory Revised (CBI-R) - forgets object names frequency score | CBIRFrgtObjectNameFreqScore | Score for frequency over past month of forgetting names of objects and things as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of forgetting names of objects and things as part of the Cambridge Behavioural Inventory Revised (CBI-R | Forgets the names of objects and things | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11539 | Cambridge Behavioural Inventory Revised (CBI-R) - problem feed self unassisted frequency score | CBIRProbFeedSelfUnassitFreqScr | Score for frequency over past month of having problems feeding self without assistance as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having problems feeding self without assistance as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has problems feeding self without assistance | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11550 | Cambridge Behavioural Inventory Revised (CBI-R) - irritable frequency score | CBIRIrritableFreqScore | Score for frequency over past month of being very irritable as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of being very irritable as part of the Cambridge Behavioural Inventory Revised (CBI-R | Is very irritable | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11561 | Cambridge Behavioural Inventory Revised (CBI-R) - develop fixed routine frequency score | CBIRDevelopFixedRoutineFrqScr | Score for frequency over past month of developing routines from which s/he cannot easily be discouraged as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of developing routines from which s/he cannot easily be discouraged as part of the Cambridge Behavioural Inventory Revised (CBI-R | Develops routines from which s/he can not easily be discouraged | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
e.g., wanting to eat or go for walks at fixed times |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11529 | Cambridge Behavioural Inventory Revised (CBI-R) - poor read TV concentration frequency score | CBIRPoorReadTVCncntratnFreqScr | Score for frequency over past month of showing poor concentration while reading or watching television as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of showing poor concentration while reading or watching television as part of the Cambridge Behavioural Inventory Revised (CBI-R | Shows poor concentration when reading or watching television | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11540 | Cambridge Behavioural Inventory Revised (CBI-R) - problem bathe self frequency score | CBIRProbBatheSelfFreqScore | Score for frequency over past month of having problems bathing or showering self as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having problems bathing or showering self as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has problems bathing or showering self | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11551 | Cambridge Behavioural Inventory Revised (CBI-R) - see things not there frequency score | CBIRSeeThngsNotThereFreqScore | Score for frequency over past month of seeing things that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of seeing things that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R | Sees things that are not really there | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
visual hallucinations |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11562 | Cambridge Behavioural Inventory Revised (CBI-R) - clock watch preoccupy time frequency score | CBIRClckWtchPreoccTimeFreqScr | Score for frequency over past month of clock watching or appearing pre-occupied with time as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of clock watching or appearing pre-occupied with time as part of the Cambridge Behavioural Inventory Revised (CBI-R | Clock watches or appears pre-occupied with time | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11530 | Cambridge Behavioural Inventory Revised (CBI-R) - forget day frequency score | CBIRForgetDayFreqScore | Score for frequency over past month of forgetting what day it is as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of forgetting what day it is as part of the Cambridge Behavioural Inventory Revised (CBI-R | Forgets what day it is | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11541 | Cambridge Behavioural Inventory Revised (CBI-R) - inappropriate humor laughter frequency score | CBIRInappropHumorLaughFrqScore | Score for frequency over past month of finding humor or laughing at things others do not find funny as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of finding humor or laughing at things others do not find funny as part of the Cambridge Behavioural Inventory Revised (CBI-R | Finds humor or laughs at things others do not find funny | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11552 | Cambridge Behavioural Inventory Revised (CBI-R) - hear voices not there frequency score | CBIRHearVoicesNotThereFreqScr | Score for frequency over past month of hearing voices that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of hearing voices that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R | Hears voices that are not really there | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
auditory hallucinations |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11563 | Cambridge Behavioural Inventory Revised (CBI-R) - repeat expression phrase frequency score | CBIRRepeatdExprsnPhraseFreqScr | Score for frequency over past month of repeatedly using the same expression or catch phrase as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of repeatedly using the same expression or catch phrase as part of the Cambridge Behavioural Inventory Revised (CBI-R | Repeatedly uses the same expression or catch phrase | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11531 | Cambridge Behavioural Inventory Revised (CBI-R) - confused unusual surroundings frequency score | CBIRCnfsdUnuslSrrndngsFreqScr | Score for frequency over past month of becoming confused or muddled in unusual surroundings as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of becoming confused or muddled in unusual surroundings as part of the Cambridge Behavioural Inventory Revised (CBI-R | Becomes confused or muddled in unusual surroundings | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11542 | Cambridge Behavioural Inventory Revised (CBI-R) - temper outburst frequency score | CBIRTemperOutburstFreqScore | Score for frequency over past month of having temper outbursts as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having temper outbursts as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has temper outbursts | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11553 | Cambridge Behavioural Inventory Revised (CBI-R) - odd bizarre untrue ideas frequency score | CBIROddBizarUntrueIdeasFreqScr | Score for frequency over past month of having odd or bizarre ideas that cannot be true as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having odd or bizarre ideas that cannot be true as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has odd or bizarre ideas that cannot be true | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11564 | Cambridge Behavioural Inventory Revised (CBI-R) - less enthusiasm interests frequency score | CBIRLessEnthusUsualIntrstFrqSc | Score for frequency over past month of showing less enthusiasm for his or her usual interests as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of showing less enthusiasm for his or her usual interests as part of the Cambridge Behavioural Inventory Revised (CBI-R | Shows less enthusiasm for his or her usual interests | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11532 | Cambridge Behavioural Inventory Revised (CBI-R) - difficulty using electrical appliance frequency score | CBIRDffcltUsngElecAppliFreqScr | Score for frequency over past month of difficulty using electrical appliances as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of difficulty using electrical appliances as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has difficulties using electrical appliances | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
e.g. TV, radio, cooker, washing machine |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11543 | Cambridge Behavioural Inventory Revised (CBI-R) - uncooperative asked do something frequency score | CBIRUncoopAskdDoSomeFreqScore | Score for frequency over past month of being uncooperative when asked to do something as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of being uncooperative when asked to do something as part of the Cambridge Behavioural Inventory Revised (CBI-R | Is uncooperative when asked to do something | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11554 | Cambridge Behavioural Inventory Revised (CBI-R) - increased sweet preference frequency score | CBIRIncrsdSweetPrefFreqScore | Score for frequency over past month of preferring sweet foods more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of preferring sweet foods more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R | Prefers sweet foods more than before | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11565 | Cambridge Behavioural Inventory Revised (CBI-R) - low interest new thing frequency score | CBIRLowInterstNewThingFreqScr | Score for frequency over past month of showing little interest in doing new things as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of showing little interest in doing new things as part of the Cambridge Behavioural Inventory Revised (CBI-R | Shows little interest in doing new things | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11533 | Cambridge Behavioural Inventory Revised (CBI-R) - difficulty writing frequency score | CBIRDifficultyWritingFreqScore | Score for frequency over past month of having difficulties writing as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having difficulties writing as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has difficulties writing | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
letters, Christmas cards, lists, etc. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11544 | Cambridge Behavioural Inventory Revised (CBI-R) - socially embarrass behavior frequency score | CBIRSocalEmbarassBehavFreqScr | Score for frequency over past month of showing socially embarrassing behavior as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of showing socially embarrassing behavior as part of the Cambridge Behavioural Inventory Revised (CBI-R | Shows socially embarrassing behavior | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11555 | Cambridge Behavioural Inventory Revised (CBI-R) - repeatedly eat same food frequency score | CBIRRptdEatSameFoodFreqScore | Score for frequency over past month of wanting to eat the same foods repeatedly as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of wanting to eat the same foods repeatedly as part of the Cambridge Behavioural Inventory Revised (CBI-R | Wants to eat the same foods repeatedly | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11566 | Cambridge Behavioural Inventory Revised (CBI-R) - fail contact friend family frequency score | CBIRFailContactFrndFmlyFreqScr | Score for frequency over past month of failing to maintain motivation to keep in contact with friends or family as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of failing to maintain motivation to keep in contact with friends or family as part of the Cambridge Behavioural Inventory Revised (CBI-R | Fails to maintain motivation to keep in contact with friends or family | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11534 | Cambridge Behavioural Inventory Revised (CBI-R) - difficulty using telephone frequency score | CBIRDifficultyUsingTeleFreqScr | Score for frequency over past month of having difficulties using the telephone as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having difficulties using the telephone as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has difficulties using the telephone | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11545 | Cambridge Behavioural Inventory Revised (CBI-R) - tactless suggestive remark frequency score | CBIRTactlesSugestRemrkFreqScr | Score for frequency over past month of making tactless or suggestive remarks as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of making tactless or suggestive remarks as part of the Cambridge Behavioural Inventory Revised (CBI-R | Makes tactless or suggestive remarks | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11556 | Cambridge Behavioural Inventory Revised (CBI-R) - increased appetite frequency score | CBIRIncreasedAppetiteFreqScore | Score for frequency over past month of her/him having greater appetite and eating more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of her/him having greater appetite and eating more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R | Her/his appetite is greater, s/he eats more than before | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11524 | Cambridge Behavioural Inventory Revised (CBI-R) - poor daily memory frequency score | CBIRPoorDlyMemryFreqScore | Score for frequency over past month of poor day-to-day memory as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of poor day-to-day memory as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has poor day-to-day memory | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
e.g. about conversations, trips, etc. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11567 | Cambridge Behavioural Inventory Revised (CBI-R) - indifferent concerns family frequency score | CBIRIndiffConcernsFamlyFreqScr | Score for frequency over past month of appearing indifferent to the worries and concerns of family members as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of appearing indifferent to the worries and concerns of family members as part of the Cambridge Behavioural Inventory Revised (CBI-R | Appears indifferent to the worries and concerns of family members | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
Refer to instructions on form. |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11535 | Cambridge Behavioural Inventory Revised (CBI-R) - difficulty making hot drink frequency score | CBIRDifficltyMakHotDrnkFreqScr | Score for frequency over past month of having difficulties making a hot drink as part of the Cambridge Behavioural Inventory Revised (CBI-R) | Score for frequency over past month of having difficulties making a hot drink as part of the Cambridge Behavioural Inventory Revised (CBI-R | Has difficulties making a hot drink | 0;1;2;3;4 | 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly | Numeric Values |
e.g. tea/coffee |
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Cambridge Behavioral Inventory - Revised | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
