CDE Detailed Report
Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Functional Outcomes
CRF: Madrid Quantitative Neuromuscular Assessment (MAQUINA)
Displaying 1 - 5 of 5
Sub-Domain: Functional Outcomes
CRF: Madrid Quantitative Neuromuscular Assessment (MAQUINA)
Displaying 1 - 5 of 5
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C11877 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) - marbles time value | MAQUINAMarbTimeVal | Time it took the participant to pass 5 marbles from one bowl to another using the right hand followed by the reverse move using the left hand as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Time it took the participant to pass 5 marbles from one bowl to another using the right hand followed by the reverse move using the left hand as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Marbles | Numeric Values |
Time to move 5 marbles from one bowl to another with the right hand followed by the reverse move with the left hand. Failure of one arm scores 30 sec |
Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S | Adult | Exploratory | 3.00 | 2013-07-22 16:57:17.79 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Functional Outcomes | Outcomes and End Points |
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| C11878 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) - arm pedaling time value | MAQUINAArmPedalTimeVal | Time it took the participant to complete 20 rounds at a table pedalier using his/her arms as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Time it took the participant to complete 20 rounds at a table pedalier using his/her arms as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Arm Pedaling | Numeric Values |
Time to pedal 20 rounds at a table pedalier. Failure scores 30 seconds. |
Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S | Adult | Exploratory | 3.00 | 2013-07-22 16:57:17.79 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Functional Outcomes | Outcomes and End Points |
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| C11879 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) - leg pedaling time value | MAQUINALegPedalTimeVal | Time it took the participant to complete 20 rounds at a floor pedalier using his/her legs as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Time it took the participant to complete 20 rounds at a floor pedalier using his/her legs as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Leg Pedaling | Numeric Values |
Time to pedal 20 rounds at a floor pedalier. Failure scores 30 seconds |
Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S | Adult | Exploratory | 3.00 | 2013-07-22 16:57:17.79 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Functional Outcomes | Outcomes and End Points |
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| C11880 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) - stand up walk 3 meters time value | MAQUINAStandUpWalk3mTimeVal | Time it took the participant to stand up and walk 3 meters as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Time it took the participant to stand up and walk 3 meters as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Up and 3m Walk | Numeric Values |
Time to stand up from chair and walk 3 meters. Failure to stand up scores 30 seconds, failure to walk scores 30 seconds |
Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S | Adult | Exploratory | 3.00 | 2013-07-22 16:57:17.79 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Functional Outcomes | Outcomes and End Points |
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| C11876 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) - PaTaKa time value | MAQUINAPatakaTimeVal | Time it took the participant to repeat PaTaKa 20 times as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Time it took the participant to repeat PaTaKa 20 times as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) | PaTaKa | Numeric Values |
Time to 20 repeats. Failure scores 30 seconds |
Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S | Adult | Exploratory | 3.00 | 2013-07-22 16:57:17.79 | Madrid Quantitative Neuromuscular Assessment (MAQUINA) | Functional Outcomes | Outcomes and End Points |
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