CDE Detailed Report
Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Functional Outcomes
CRF: ALS Functional Rating Scale - Revised (ALSFRS-R)
Displaying 1 - 19 of 19
Sub-Domain: Functional Outcomes
CRF: ALS Functional Rating Scale - Revised (ALSFRS-R)
Displaying 1 - 19 of 19
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C11975 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - speech score | ALSFRSRSpeechScore | Speech score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Speech score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Speech | 4;3;2;1;0 | Normal Speech processes;Detectable speech with disturbances;Intelligible with repeating;Speech combined with nonvocal communication;Loss of useful speech | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11986 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - dyspnea score | ALSFRSRDyspneaScore | Dyspnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Dyspnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | R-1- Dyspnea | 4;3;2;1;0 | None;Occurs when walking;Occurs with one or more of the following: eating, bathing, dressing;Occurs at rest, difficulty breathing when either sitting or lying;Significant difficulty, considering using mechanical respiratory support | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11976 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - salivation score | ALSFRSRSalivatScore | Salivation score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Salivation score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Salivation | 4;3;2;1;0 | Normal;Slight but definite excess of saliva in mouth, may have nighttime drooling;Moderately excessive saliva, may have minimal drooling;Marked excess of saliva with some drooling;Marked drooling, requires constant tissue or handkerchief | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11987 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - orthopnea score | ALSFRSROrthpneaScore | Orthopnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Orthopnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | R-2 Orthopnea | 4;3;2;1;0 | None;Some difficulty sleeping at night due to shortness of breath, does not routinely use more than two pillows;Needs extra pillow in order to sleep (more than two);Can only sleep sitting up;Unable to sleep | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11977 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - swallowing score | ALSFRSRSwallowScore | Swallowing score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Swallowing score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Swallowing | 4;3;2;1;0 | Normal eating habits;Early eating problems - occasional choking;Dietary consistency changes;Needs supplemental tube feeding;NPO (exclusively parenteral or enteral feeding) | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11988 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - respiratory insufficiency score | ALSFRSRRespInsuffcyScore | Respiratory insufficiency score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Respiratory insufficiency score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | R-3 Respiratory Insufficiency | 4;3;2;1;0 | None;Intermittent use of NIPPV;Continuous use of NIPPV during the night;Continuous use of NIPPV during the night and day;Invasive mechanical ventilation by intubation or tracheostomy | Numeric Values |
Choose only one. In some studies, the term NIPPV is used instead of BiPap for question R-3; BiPap is the term from the validated scale. |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11978 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - handwriting score | ALSFRSRHandwritScore | Handwriting score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Handwriting score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Handwriting | 4;3;2;1;0 | Normal;Slow or sloppy, all words are legible;Not all words are legible;Able to grip pen but unable to write;Unable to grip pen | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11989 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - total score | ALSFRSRTotScore | Total score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Total score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Total Score for ALSFRS-R | Numeric Values |
Record total score by adding all the sub-scores |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Free-Form Entry |
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| C11979 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - gastrostomy status | ALSFRSRGastronomyStatus | Whether the participant/subject has a gastrostomy tube on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Whether the participant/subject has a gastrostomy tube on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Does subject have gastrostomy? | No;Yes | No;Yes | Alphanumeric |
If No is answered for this question, proceed to Q 5A. If Yes is answered for this question, proceed to Q 5B. |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C12024 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - performed date | ALSFRSRPerfDate | Date Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) was performed | Date Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) was performed | Date Performed | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Free-Form Entry |
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| C11980 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - cutting food and handling utensils without gastronomy score | ALSFRSRCutFodHndUtnWoutGastScr | Cutting food and handling utensils score for patients without gastrostomy on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Cutting food and handling utensils score for patients without gastrostomy on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Cutting Food and Handling Utensils (patients without gastrostomy) | 4;3;2;1;0 | Normal;Somewhat slow and clumsy, but no help needed;Can cut most foods, although clumsy and slow, some help needed;Food must be cut by someone, but can still feed slowly;Needs to be fed | Numeric Values |
Only answer this question if you answered 'No' for 'With gastrostomy' (Q 5) |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17772 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - administration method type | ALSFRSRAdminMethdTyp | Method used to administer the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Method used to administer the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Indicate administration method | Self-administered;Administered by professional in-person;Administered by professional via phone | Self-administered;Administered by professional in-person;Administered by professional via phone | Alphanumeric | ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11981 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - cutting food and handling utensils with gastronomy score | ALSFRSRCutFodHndUtnWithGastScr | Cutting food and handling utensils score for patients with gastrostomy on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Cutting food and handling utensils score for patients with gastrostomy on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Cutting Food and Handling Utensils (alternate scale for patients with gastrostomy) | 4;3;2;1;0 | Normal;Clumsy but able to perform all manipulations independently;Some help needed with closures and fasteners;Provides minimal assistance to caregivers;Unable to perform any aspect of task | Numeric Values |
Only answer this question if you answered 'Yes' for 'With gastrostomy' (Q 5) |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17773 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - performed indicator | ALSFRSRPerfInd | Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) performed versus not performed | Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) performed versus not performed | Was the ALSFRS-R done? | No;Yes | No;Yes | Alphanumeric | ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11982 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - dressing hygiene score | ALSFRSRDressHygnScore | Dressing and hygiene score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Dressing and hygiene score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Dressing and Hygiene | 4;3;2;1;0 | Normal function;Independent and complete self-care with effort or decreased efficiency;Intermittent assistance or substitute methods;Needs attendant for self-care;Total dependence | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11983 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - turning in bed adjusting bed clothes score | ALSFRSRTurnBedAdjstBedClothScr | Turning in bed and adjusting bed clothes score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Turning in bed and adjusting bed clothes score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Turning in bed and adjusting bed clothes | 4;3;2;1;0 | Normal;Somewhat slow and clumsy, but no help needed;Can turn alone or adjust sheets, but with great difficulty;Can initiate, but not turn or adjust sheets alone;Helpless | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11984 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - walking score | ALSFRSRWalkingScore | Walking score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Walking score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Walking | 4;3;2;1;0 | Normal;Early ambulation difficulties;Walks with assistance;Nonambulatory functional movement only;No purposeful leg movement | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11974 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - respondent type | ALSFRSRRespndtTyp | The person completing the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | The person completing the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Responded by | Participant/subject;Participant/Subject via caregiver | Participant/subject;Participant/Subject via caregiver | Alphanumeric |
NO ADDITIONAL INSTRUCTIONS |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11985 | Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - climbing stairs score | ALSFRSRClimbStrsScore | Climbing stairs score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Climbing stairs score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) | Climbing Stairs | 4;3;2;1;0 | Normal;Slow;Mild unsteadiness or fatigue;Needs assistance;Cannot do | Numeric Values |
Choose only one |
ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with Amyotrophic Lateral Sclerosis. Arch Neurol. 1996; 53: 141-147. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169(1-2):13-21. | Adult | Core | 3.00 | 2013-07-22 16:57:17.79 | ALS Functional Rating Scale - Revised (ALSFRS-R) | Functional Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
