CDE Detailed Report
Subdomain Name: Physical Examinations
CRF: Mitochondrial and Gastrointestinal Diseases Assessment
Displaying 101 - 150 of 279
CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
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C20089 | Mitochondrial disease prior vomit detail text | MitDisDetPriVomitDetailTxt | The free-text field to specify additional details about participant's past vomiting symptoms | The free text field to specify additional details about participant's past vomiting symptoms | Please provide additional details about past vomiting symptoms | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:26.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20239 | Mitochondrial disease other comment text | MitDisOtherCommentTxt | The free-text field to provide additional information | The free-text field to provide additional information | Please provide any additional comments | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:50.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20191 | Mitochondrial disease current abdominal distension cause reason type | MtDisCrAbdmnlDstnCausRsnTyp | Type of reason for current abdominal distension | Type of reason for current abdominal distension | Is current abdominal distension caused by air or stool? | Air;Both;I don't know;Stool | Air;Both;I don't know;Stool | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:58:01.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20034 | Mitochondrial disease person relationship category | MitDisPersnRelatedCat | Type of relationship of participant to family member with mitochondrial disease | Type of relationship of participant to family member with mitochondrial disease | How are they related to the person with mitochondrial disease? | Mother;Father;Grandmother;Grandfather;Sister;Brother;Spouse;The person with mitochondrial disease;Guardian (not a relative);Other, specify | Mother;Father;Grandmother;Grandfather;Sister;Brother;Spouse;The person with mitochondrial disease;Guardian (not a relative);Other, specify | Alphanumeric |
Choose one. |
Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:55:41.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20133 | Mitochondrial disease prior burp stop text | MitDisPriorBurpStopSpTxt | The free-text field to specify what stopped the participant's past burping | The free-text field to specify what stopped the participant's past burping | What stopped the burping? | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:00.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20068 | Mitochondrial disease current vomit detail text | MitDisCurrVomitDetTxt | The free-text field to specify additional details about participant's current vomiting symptoms | The free text field to specify additional details about participant's current vomiting symptoms | Please provide additional details about current vomiting symptoms | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:11.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20218 | Mitochondrial disease medication gastrointestinal problem prior worsen text | MitDisMedGIProblmPrirWorsenTxt | The free-text field to specify about which medications made the participant's past GI problems worse | The free-text field to specify about which medications made the participant's past GI problems worse | Has the participant taken any medications in the past that have worsened their GI problems? | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:20.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20170 | Mitochondrial disease prior abdominal pain onset age category | MitDisPriAbdomnlPainOnstAgeCat | Category of the participant's age at the onset of prior abdominal pain | Category of the participant's age at the onset of prior abdominal pain | What was the participant's age when past abdominal pain began? | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:57:45.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20101 | Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn onset age category | MitDisPiGERDHtnMLCPEBnOsAgCat | Category of the participant's age at the onset of prior GERD, heartburn, mid-line chest, pain esophageal burning symptoms | Category of the participant's age at the onset of prior GERD, heartburn, mid-line chest, pain esophageal burning symptoms | For past GERD, heartburn, mid-line chest pain, esophageal burning episodes, what was the participant's age when the problems began? | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:56:38.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20112 | Mitochondrial disease current oral regurgitation frequency type | MitDisCurntOralRegurgFreqTyp | Type of frequency with which the participant currently has oral regurgitation | Type of frequency with which the participant currently has oral regurgitation | How often does oral regurgitation occur? | About once a year;At least once a week, but not daily;Daily;I don't know;Less than once a month, more than once a year;One to 4 times per month;Only once;Other, specify | About once a year;At least once a week, but not daily;Daily;I don't know;Less than once a month, more than once a year;One to 4 times per month;Only once;Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:56:46.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20047 | Mitochondrial disease prior special diet type other text | MitDisPriorSpecialDietTypOTH | The free-text field related to 'Mitochondrial disease prior special diet type', specifying other text. Type of specialized diet the participant has been on in the past | The free-text field related to 'Mitochondrial disease prior special diet type', specifying other text. Type of specialized diet the participant has been on in the past | Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:55:54.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20196 | Mitochondrial disease prior bloat abdominal distension stop text | MitDisPriBltAbdmlDistnsnStpTxt | The free-text field to specify what stopped participant's past abdominal bloating/distension | The free-text field to specify what stopped participant's past abdominal bloating/distension | What stopped the abdominal bloating/distension? | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:04.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20148 | Mitochondrial disease food stuck esophagus indicator | MitDisFoodStuckEsophagusInd | Indicator of whether the participant gets food stuck in their esophagus | Indicator of whether the participant's gets food stuck in their esophagus | Does the participant feel food get stuck in their esophagus? | I don't know;No;Yes | I don't know;No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:16.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20079 | Mitochondrial disease prior vomit before problem type | MitDisPriorVomitBeforeProbTyp | Types of problems that frequently occur before vomiting during participant's prior episodes of vomiting | Types of problems that frequently occur before vomiting during participant's prior episodes of vomiting | Did any of the following occur frequently before the vomiting started? | Fasting more than 12 hours;Viral illness/Fever;Taking medicine;Right after feeding;Seizure;Headache/Migraine/Light sensitivity;Exercise;Stress | Fasting more than 12 hours;Viral illness/Fever;Taking medicine;Right after feeding;Seizure;Headache/Migraine/Light sensitivity;Exercise;Stress | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:18.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20229 | Mitochondrial disease time gastrointestinal symptom occur prior diagnosis text | MitDisTimGISymtmOccrPriDiagTxt | The free-text field to provide how long participant had GI symptoms before being diagnosed with mitochondrial disease | The free-text field to provide how long participant had GI symptoms before being diagnosed with mitochondrial disease | How long did the participant have GI symptoms before they were diagnosed with mitochondrial disease? | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:27.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20181 | Mitochondrial disease prior abdominal pain trigger detail text | MitDisPriAbdomnlPainTrigrDlTxt | The free-text field to specify additional details about participant's past abdominal pain triggers | The free-text field to specify what specifically makes the participant's prior abdominal pain better | Please provide additional details about past abdominal pain triggers | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:54.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20123 | Mitochondrial disease prior oral regurgitation detail text | MitDisPriOralRegurgDetlTxt | The free-text field to specify additional details about participant's past oral regurgitation symptoms | The free-text field to specify additional details about participant's past oral regurgitation symptoms | Please provide additional details about the participant's past oral regurgitation symptoms | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:53.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20058 | Mitochondrial disease current vomit episode trigger text | MitDisCurntVomitEpisTrigTxt | The free-text field to specify the participant's current vomiting episode triggers | The free text field to specify the participant's current vomiting episode triggers | What triggers vomiting episodes? | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:04.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20207 | Mitochondrial disease stool blood color category | MitDisStoolColorBloodCat | Category of color of blood in the participant's stool | Category of color of blood in the participant's stool | What color is the blood in the stool? | Bright red;Dark red (maroon);Black;I don't know | Bright red;Dark red (maroon);Black;I don't know | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:12.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20160 | Mitochondrial disease current abdominal pain frequency type other text | MitDisCrtAbdomnlPainFreqTypOTH | The free-text field related to 'Mitochondrial disease current abdominal pain frequency type', specifying other text. Type of frequency with which the participant currently has abdominal pain | The free-text field related to 'Mitochondrial disease current abdominal pain frequency type', specifying other text. Type of frequency with which the participant currently has abdominal pain | Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:38.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20090 | Mitochondrial disease vomit diagnosis cyclic indicator | MitDisVomitDiagnosCyclicInd | Indicator of whether the participant has a cyclic vomiting diagnosis | Indicator of whether the participant has a cyclic vomiting diagnosis | Has the participant ever been diagnosed with cyclic vomiting or abdominal migraine? | I don't know;No;Yes | I don't know;No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:27.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20328 | Mitochondrial disease bowel movements current medication type | MitDisBowelMvmntCurrMedsTyp | Type of medications that the participant is currently taking for help with bowel movements | Type of medications that the participant is currently taking for help with bowel movements | What treatment does the participant use to help with bowel movements? | Glycolax, PEG, Polyethylene Glycol;Mineral oil;Kondrumel;Milk of Magnesia;Senokot or other Senna;Colace;Dulcolax suppository;Prune juice, apple juice, Karo syrup;Fleets enema;Saline enema;Milk and molasses enema;Imodium;Lomotil;Pepto-Bismol;Linaclotide, Plecanatide, Lubiprostone, Tenapanor;Other, specify;Prucalopride | Glycolax, PEG, Polyethylene Glycol;Mineral oil;Kondrumel;Milk of Magnesia;Senokot or other Senna;Colace;Dulcolax suppository;Prune juice, apple juice, Karo syrup;Fleets enema;Saline enema;Milk and molasses enema;Imodium;Lomotil;Pepto-Bismol;Linaclotide, Plecanatide, Lubiprostone, Tenapanor;Other, specify;Prucalopride | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-03-18 15:21:17.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20192 | Mitochondrial disease swallow air indicator | MitDisSwallowAirInd | Indicator of whether the participant is an air swallower | Indicator of whether the participant is an air swallower | Is the participant an air swallower? | I don't know;No;Yes | I don't know;No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:01.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20035 | Height maternal measurement | HgtMaternalMeasr | Measurement of participant's mother's height | Measurement of participant's Mother's height | Mother's height in cm | Numeric Values | No references available | Adult;Pediatric | Supplemental | 2.00 | 2024-03-18 15:25:56.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Free-Form Entry |
400 | centimeter | |||||||||
C20134 | Mitochondrial disease prior burp symptom consistent indicator | MitDisPriBurpSymptmConsistInd | Indicator of whether past symptoms of burping were consistent day to day | Indicator of whether past symptoms of burping were consistent day to day | Was the burping pretty consistent from day to day? | No;Yes | No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:00.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20069 | Mitochondrial disease prior vomit onset age category | MitDisPriVomitOnsetAgeCat | Category of the participant's age at the onset of prior vomiting | Category of the participant's age at the onset of prior vomiting | How old was the participant when they first started having issues with vomiting? | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:56:11.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20219 | Mitochondrial disease alternative medicine treat GI problem indicator | MitDisAlternMedsTrtGIProblmInd | Indicator of whether the participant has tried to treat GI problems with alternative medicine | Indicator of whether the participant has tried to treat GI problems with alternative medicine | Has the participant tried any "alternative medicine approaches" to help with any of the problems we discussed? | No;Yes | No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:20.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20171 | Mitochondrial disease prior abdominal pain stop age category | MitDisPriAbdomnlPainStopAgeCat | Category of the participant's age at the end of prior abdominal pain | Category of the participant's age at the end of prior abdominal pain | What was the participant's age when the abdominal pain stopped? | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:57:46.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20102 | Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop age category | MitDisPrGERDHtnMLCPEBnStAgCat | Category of the participant's age at the end of prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms | Category of the participant's age at the end of prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms | How old was the participant when symptoms stopped? | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:56:38.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20113 | Mitochondrial disease current oral regurgitation frequency type other text | MitDisCurntOralRegurgFrqTypOTH | The free-text field related to 'Mitochondrial disease current oral regurgitation frequency type', specifying other text. Type of frequency with which participant currently has oral regurgitation | The free-text field related to 'Mitochondrial disease current oral regurgitation frequency type', specifying other text. Type of frequency with which participant currently has oral regurgitation | Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:46.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20048 | Mitochondrial disease vomit current prior status | MitDisVomitCurrPriorStat | Status of whether the participant's vomiting is current or prior | Status of whether the participant's vomiting is current or prior | Does the participant have vomiting currently or in the past? | Past;Present;Never | Past;Present;Never | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:55:56.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20197 | Mitochondrial disease prior bloat abdominal distension worse time type | MitDisPriBltAbdmnlDstnWsTmTyp | Type, as time of day, at which prior abdominal bloating/distension was worse for the participant | Type, as time of day, at which prior abdominal bloating/distension was worse for the participant | Was the past bloating or abdominal distension worse at any particular time of day? | Afternoon;All times of the day;Evening;I don't know;Morning;Overnight | Afternoon (12pm - 5pm);All times of the day;Evening (5pm - Bed);I don't know;Morning (wake up until 12pm);Overnight (wakes from sleep) | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:58:05.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20149 | Mitochondrial disease food stuck esophagus anatomic site | MitDisFoodStuckEsphgsAntmicSit | Anatomic site of food getting stuck in the participant's esophagus | Anatomic site of food getting stuck in the participant esophagus | Where does the participant feel things get stuck? | Back of the throat;Lower chest;Neck;Upper chest | Back of the throat;Lower chest;Neck;Upper chest | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:16.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20080 | Mitochondrial disease prior vomit green yellow indicator | MitDisPriorVomitGrnYelInd | Indicator of whether the participant's past vomit was green or yellow | Indicator of whether the participant's past vomit was green or yellow | Did the participant ever have bright green or yellow vomiting? | I don't know;No;Yes | I don't know;No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:19.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20230 | Mitochondrial disease gastrointestinal physician visit count | MitDisGIPhysVisitCount | Count of GI doctors seen by the participant | Count of GI doctors seen by the participant | How many GI doctors has the participant seen? | Numeric Values | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:28.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Free-Form Entry |
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C20182 | Mitochondrial disease prior abdominal pain disrupt activity indicator | MitDisPriAbdmlPainDsrptActvInd | Indicator of whether the participant's prior abdominal pain disrupted activity | Indicator of whether the participant's prior abdominal pain disrupted activity | Did past abdominal pain disrupt activity? | I don't know;No;Yes | I don't know;No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:55.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20124 | Mitochondrial disease burp current prior status | MitDisBurpCurrPriorStatus | Status of whether the participant's episodes of burping are current or prior | Status of whether the participant's episodes of burping are current or prior | Does the participant have burping, or have they had burping in the past? | Past;Present | Past;Present | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:54.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20059 | Mitochondrial disease current vomit before problem type | MitDisCurntVomitBeforeProbTyp | Types of problems that frequently occur before the participant's current episodes of vomiting | Types of problems that frequently occur before the participant's current episodes of vomiting | Do any of the following occur frequently before vomiting starts? | Fasting more than 12 hours;Viral illness/Fever;Taking medicine;Seizure;Headache/Migraine/Light sensitivity;Exercise;Stress;Right after or within 30 minutes of feeding | Fasting more than 12 hours;Viral illness/Fever;Taking medicine;Seizure;Headache/Migraine/Light sensitivity;Exercise;Stress;Right after or within 30 minutes of feeding | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:56:05.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20208 | Mitochondrial disease stool blood amount type | MitDisStoolBloodAmountTyp | Type of amount of blood in the stool | Type of amount of blood in the stool | What is the largest amount of blood that has been in the stool? | Small clumps of clots;Small streaks;Big clots of blood | Small clumps of clots;Small streaks (i.e., not three dimensional);Big clots of blood (larger than a dime) | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:58:12.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20161 | Mitochondrial disease current abdominal pain duration type | MitDisCurntAbdomnlPainDurTyp | Type of duration of the participant's current abdominal pain | Type of duration of the participant's current abdominal pain | How long does the abdominal pain last when it occurs? | 31 minutes to many hours;All day;Day and night;I don't know;Less than a minute;None of the above;One minute to 30 minutes;Variable;Until the participant eats;Until the participant falls asleep;Until the participant has a bowel movement;Until the participant passes gas;Until the participant urinates;Until the participant vomits | 31 minutes to many hours;All day;Day and night;I don't know;Less than a minute;None of the above;One minute to 30 minutes;Variable;Until the participant eats;Until the participant falls asleep;Until the participant has a bowel movement;Until the participant passes gas;Until the participant urinates;Until the participant vomits | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:57:38.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20091 | Mitochondrial disease migraine history indicator | MitDisMigraineHistInd | Indicator of whether the participant has a history of migraines | Indicator of whether the participant has a history of migraines | Does the participant have a history of migraines? | No;Yes | No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:28.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20329 | Mitochondrial disease prior special diet indicator | MitDisPriorSpecialDietInd | Indicator of whether the participant has been on a restricted/specialized diet in the past | Indicator of whether the participant has been on a restricted/specialized diet in the past | Has the participant ever been on a restricted/specialized diet in the past? | No;Yes | No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:55:52.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20193 | Mitochondrial disease current bloat abdominal distension detail text | MitDisBloatAbdmnlDistensnDtlTxt | The free-text field to specify additional details about the participant's abdominal bloating/distension | The free-text field to specify additional details about the participant's abdominal bloating/distension | Please provide additional details about abdominal bloating and distension | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:58:02.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20036 | Height paternal measurement | HgtPaternalMeasr | Measurement of participant's father's height | Measurement of participant's Father's height | Father's height in cm | Numeric Values | No references available | Adult;Pediatric | Supplemental | 2.00 | 2024-03-18 15:26:25.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Free-Form Entry |
400 | centimeter | |||||||||
C20135 | Mitochondrial disease prior burp reflux abdominal distention accompany type | MitDisPriBrpReflxAbDistnAcpTyp | Type of reflux or abdominal distention that accompanied prior burping episodes for the participant | Type of reflux or abdominal distention that accompanied prior burping episodes for the participant | Did the burping occur with reflux or abdominal distention? | Abdominal distension;Both;Reflux | Abdominal distension;Both;Reflux | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:01.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20070 | Mitochondrial disease prior vomit stop age category | MitDisPriVomitStopAgeCat | Category of the participant's age at the end of prior vomiting | Category of the participant's age at the end of prior vomiting | How old was the participant when the vomiting stopped? | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Greater than 18 y;I don't know;Less than 2 mo old (not on day of birth);On the day of birth;13 mo through 18.9 mo;14 y through 18.9 y;19 mo through 3.9 y;2 mo through 5.9 mo;4 y through 6.9 y;6 mo through 12.9 mo;7 y through 13.9 y | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:56:12.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |
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C20220 | Mitochondrial disease alternative medicine type | MitDisAlternMedsType | Type of alternative medicine tried by the participant | Type of alternative medicine tried by the participant | What types of alternative medicine has the participant tried? | Meditation;Items bought over the internet;Over the counter medicine;Ginger;Marijuana;Supplemental vitamins (not prescribed);Antioxidants;Aromatherapy;Colon cleansing;Chiropractic care;Homeopathic medicine;Herbal supplements or medicines;Exercise;Massage;Prayer;Faith healer;Crystal;Acupuncture;Yoga;Energy therapies;Native American medicine;Other traditional forms of medicine;Other, specify;Traditional Chinese medicine | Meditation;Items bought over the internet;Over the counter medicine;Ginger;Marijuana;Supplemental vitamins (not prescribed);Antioxidants;Aromatherapy;Colon cleansing;Chiropractic care;Homeopathic medicine;Herbal supplements or medicines;Exercise;Massage;Prayer;Faith healer;Crystal;Acupuncture;Yoga;Energy therapies;Native American medicine;Other traditional forms of medicine;Other, specify;Traditional Chinese medicine | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:58:21.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Multiple Pre-Defined Values Selected |
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C20172 | Mitochondrial disease prior abdominal pain stop text | MitDisPriorAbdomnlPainStopTxt | The free-text field to specify what stopped participant's past abdominal pain | The free-text field to specify what stopped participant's past abdominal pain | What stopped the abdominal pain? | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:57:47.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20103 | Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop text | MitDisPrirGERDHtnMLCPEBnStTxt | The free-text field to specify what stopped participant's past GERD heartburn mid-line chest pain esophageal burning | The free-text field to specify what stopped participant's past GERD heartburn mid-line chest pain esophageal burning | What stopped the GERD, heartburn, mid-line chest pain, and esophageal burning? | Alphanumeric | Adult;Pediatric | Supplemental | 2.00 | 2024-02-29 15:56:39.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations | 4000 |
Free-Form Entry |
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C20114 | Mitochondrial disease current oral regurgitation occurrence time type | MitDisCurntOralRegurgOccrTmTyp | Type of timing of the participant's episodes of oral regurgitation with respect to meals | Type of timing of the participant episodes of oral regurgitation with respect to meals | Is the oral regurgitation before, during, or after meals? | After;Before;During;Variable | After;Before;During;Variable | Alphanumeric | Adult;Pediatric | Supplemental | 1.10 | 2024-02-29 15:56:47.0 | Mitochondrial and Gastrointestinal Diseases Assessment | Physical Examinations | Assessments and Examinations |
Single Pre-Defined Value Selected |