CDE Detailed Report
Subdomain Name: General Health History
CRF: Diabetes-Related Medical History
Displaying 101 - 115 of 115
CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
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C20272 | Insulin neutral protamine hagedorn current use status | InsulinNPHCurrUseStat | Status indicating whether the participant currently uses neutral protamine hagedorn (NPH) insulin | Status indicating whether the participantcurrently uses neutral protamine hagedorn (NPH) insulin | NPH | Not used | Not used | Alphanumeric | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 2.00 | 2024-02-29 15:41:49.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
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C20249 | Family history diabetes relative type | FamHistDiabetesReltvTy | Relationship to the participant of the family member with diabetes | Relationship to the participant of the family member with diabetes | If yes, select the relation of the family member and the approximate age of onset | Mother;Father;Grandparent;Sibling | Mother;Father;Grandparent;Sibling | Alphanumeric | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:41:30.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
3165810 | ||||||||
C20283 | 911 call diabetes past year indicator | 911CallDiabetesPastYearInd | The indicator of whether the participant has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months | The indicator of whether the participant has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months | In the last 12 months, has 911 been called because of participant's diabetes? | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
Outside of the United States, evaluate the question with respect to the direct-dial emergency number(s) available to the participant If YES, complete the questions on number of times 911 (or local equivalent) was called. |
Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 2.00 | 2024-02-29 15:42:05.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
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C20294 | Urgent care clinic use not diabetes related past year count | UrgtCarClncUsNotDiabRelPstYrCt | The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months | The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months | How many times did the participant go to the After Hours/Urgent Care Clinic for: Reasons unrelated to diabetes | Numeric Values | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:42:12.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Free-Form Entry |
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C20261 | Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator | HpoglySvrLoCSzrPstDibetDiagInd | The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes | The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes | Since diagnosis has the participant ever experienced severe hypoglycemia that resulted in passing out, losing consciousness, or seizure? | No;Yes | No;Yes | Alphanumeric |
If YES, answer questions on number of events and severe hypoglycemia in the past year |
Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:41:40.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
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C20305 | Hospital admission not diabetes related past year total day count | HsptlAdmtNotDiabRelPstYrTtlDCt | The total duration, in days, of all of the participant's admissions to hospital for reasons not related to diabetes in the past 12 months | The total duration, in days, of all of the participant's admissions to hospital for reasons not related to diabetes in the past 12 months | # of days for all non-diabetes related admissions | Numeric Values | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:42:19.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Free-Form Entry |
0 | 366 | day | ||||||||
C10539 | Diabetes first diagnosis age value | DiabetFrstDiagnosisAgeVal | Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus | Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus | How old was the participant at diagnosis? | Numeric Values |
For participants younger than 21 years, indicate both years and months. For those 21 and older, indicate years only. |
Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 3.10 | 2024-02-29 15:41:16.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Free-Form Entry |
year | |||||||||
C20273 | Insulin premix current use status | InsulinPremixCurrentUseStat | Status indicating whether the participant currently uses premix insulin | Status indicatingwhether the participant currently uses premix insulin | Premix | Not used | Not used | Alphanumeric | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 2.00 | 2024-02-29 15:41:50.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
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C20250 | Family history diabetes medical condition indicator | FamHistDiabMediclConditnInd | Indicator of whether a close family member (mother, father, sibling, or grandparent only) of the participant has had a history of diabetes | Indicator of whether a close family member (mother, father, sibling, or grandparent only) of the participant has had a history of diabetes | Does the participant have any family members (mother, father, sibling, or grandparent only) with history of diabetes? | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
If YES, select the relation of the family member and approximate age of onset |
Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:41:29.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
3165788 | |||||||
C20284 | 911 call diabetes past year count | 911CallDiabetesPastYearCt | The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months | The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months | How many times was 911 called? | Numeric Values |
Outside of the United States, evaluate the question with respect to the direct-dial emergency number(s) available to the participant |
Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:42:06.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Free-Form Entry |
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C20295 | Hospital admission past year indicator | HospitalAdmissionPastYearInd | The indicator of whether the participant was admitted to hospital in the past 12 months | The indicator of whether the participant was admitted to hospital in the past 12 months | In the last 12 months, has the participant had to be admitted to the hospital? | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
If YES, complete the questions on number of hospital admissions and days |
Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 2.00 | 2024-02-29 15:42:13.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
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C20262 | Hypoglycemia severe loss consciousness seizure past year indicator | HypglycmiaSevrLOCSeizrPstYrInd | The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the past 12 months | The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the past 12 months | In the past 12 months, has the participant experienced severe hypoglycemia that resulted in passing out, losing consciousness, or seizure? | No;Yes | No;Yes | Alphanumeric |
If YES, answer how many times. |
Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:41:41.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Single Pre-Defined Value Selected |
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C20306 | Medical office visit diabetes past year count | MedicalOffVisitDiabtsPstYearCt | The count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months | The count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months | How many times has the participant seen a health care provider like a physician or nurse practitioner for an office visit for diabetes? | Numeric Values | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:42:20.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Free-Form Entry |
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C16159 | Family history relative age at onset value | FmlyHistRltveAgeOnsetVal | Age the participant's relative experienced the onset of the disease or disorder | Age the participant's relative experienced the onset of the disease or disorder | Age of onset | Numeric Values | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 3.10 | 2024-02-29 15:41:31.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Free-Form Entry |
year | ||||||||||
C20274 | Insulin miss dose past two week count | InsulinMissDosePast2WeekCt | The count of insulin doses missed by the participant in the past two weeks | The count of insulin doses missed by the participant in the past two weeks | Number of missed injections or pump boluses in the past 2 weeks | Numeric Values | Whittaker RG, Schaefer AM, McFarland R, Taylor RW, Walker M, Turnbull DM. Prevalence and progression of diabetes in mitochondrial disease. Diabetologia. 2007 Oct;50(10):2085-9.<br /><br />Pediatric Diabetes Consortium. The pediatric diabetes consortium: improving care of children with type 1 diabetes through collaborative research. Diabetes Technol Ther. 2010 Sep;12(9):685-8.<br /><br />Tamaroff J, DeDio A, Wade K, Wells M, Park C, Leavens K, Rummey C, Kelly A, Lynch DR, McCormack SE. Friedreich's Ataxia related Diabetes: Epidemiology and management practices. Diabetes Res Clin Pract. 2022 Apr;186:109828. | Adult;Pediatric | Exploratory | 1.10 | 2024-02-29 15:41:51.0 | Diabetes-Related Medical History | General Health History | Participant History and Family History |
Free-Form Entry |
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