CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 176 - 200 of 83926
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection.

Supplemental Imaging Traumatic Brain Injury Concussion/Mild TBI
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection.

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C17785 Functional MRI data processing software Additional detail text

Additional details regarding the fMRI data processing software used

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17982 Thymectomy procedure comment text

Additional text commenting the thymectomy procedure

Supplemental Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C58463 Medication adjusted frequency

Adjusted frequency of medication taken per administration prior to adjustments

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C08164 ADRDA Khachaturian neuropathological criteria result

ADRDA/Khachaturian neuropathological criteria used to determine whether or not the participant/subject has Alzheimer's disease

Supplemental Neuropathology Parkinson's Disease Parkinson's Disease
C19888 Age biopsy year value

Age (in years) of participant/subject at biopsy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C16642 Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy stop age or year value

Age (or year) participant/subject stopped taking hormone replacement therapy as part of the risk factor questionnaire female health history.

Supplemental Risk Factor Questionnaire (RFQ) - Female Health History Huntington's Disease Huntington's Disease
C16146 Family history relative age at death value

Age at death of the participant/subject's relative, if applicable

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16146 Family history relative age at death value

Age at death of the participant/subject's relative, if applicable

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C16150 Adopted age value

Age at time of adoption if participant/subject was adopted

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14120 Psychological/neuropsychological previous testing age value

Age at which previous psychological/neuropsychological testing was performed on the participant/subject.

Supplemental Neuropsychological Testing Background Information Epilepsy Epilepsy
C18201 Family history DMD BMD diagnosis age value

Age at which relative was diagnosed with DMD or BMD

Supplemental Family History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

Supplemental Family History Research Diagnostic Criteria (FH-RDC) Traumatic Brain Injury Comprehensive
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

Supplemental Family History Research Diagnostic Criteria (FH-RDC) Traumatic Brain Injury Acute Hospitalized
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

Supplemental Family History Research Diagnostic Criteria (FH-RDC) Traumatic Brain Injury Epidemiology
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

Supplemental Family History Research Diagnostic Criteria (FH-RDC) Traumatic Brain Injury Concussion/Mild TBI
Displaying 176 - 200 of 83926

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.