CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2387-C54363	C54363	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery concussion history indicator	Indicator of whether concussion history is a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54364	C54364	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery concussion history previous value	Value of the number of previous concussions as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54365	C54365	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery concussion history duration type	Type of duration of longest symptom regarding concussion history as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54366	C54366	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery multiple concussion force reinjury indicator	Indicator of whether multiple concussions occur with less force caused reinjury is a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54367	C54367	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery headache history indicator	Indicator of whether headache history is a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54368	C54368	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery headache history prior treatment status	Status of whether prior treatment for headaches is a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54369	C54369	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery migraine headache type	Type of migraine headache as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54370	C54370	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery migraine headache family text	Text describing which family member(s) had/have migraine headache as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54371	C54371	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery developmental history type	Type of developmental history as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54372	C54372	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery other developmental disorder other text	Text describing other developmental disorder as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54375	C54375	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery psychiatric history type	Type psychiatric history disorder as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54377	C54377	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery other psychiatric disorder other text	Text for other psychiatric disorder as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54378	C54378	Acute Concussion Evaluation (ACE) - Risk factors protracted recovery comorbid medical disorders medication usage text	Text for other comorbid medical disorders or medication usage as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54380	C54380	Acute Concussion Evaluation (ACE) - Red flags acute emergency management type	Type of red flags for acute emergency management as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54390	C54390	Acute Concussion Evaluation (ACE) - Diagnosis (ICD) concussion type	Type of ICD diagnosis of concussion as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54391	C54391	Acute Concussion Evaluation (ACE) - Follow-up action plan type	Type of follow-up plan of action for subject/participant as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54392	C54392	Acute Concussion Evaluation (ACE) - Follow-up action plan physician clinician office monitoring date	Date of physician/clinician office monitoring follow-up plan of action for subject/participant as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54393	C54393	Acute Concussion Evaluation (ACE) - Follow-up action plan referral type	Type follow-up plan of action referral for subject/participant as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54394	C54394	Acute Concussion Evaluation (ACE) - Follow-up action plan referral physician type	Type follow-up plan of action referral physician for subject/participant as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54395	C54395	Acute Concussion Evaluation (ACE) - Follow-up action plan referral physician type other text	Test of other type follow-up plan of action referral physician for subject/participant as related to the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54396	C54396	Acute Concussion Evaluation (ACE) - ACE reporter text	Person/individual administering the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Acute
F2387-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Acute
F2387-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Acute
F2387-C17409	C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Acute

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.