CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 84099
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09931 World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale

Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C09931 World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale

Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Spinal Cord Injury Spinal Cord Injury
C09931 World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale

Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C09931 World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale

Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Cerebral Palsy Cerebral Palsy
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Mitochondrial Disease Mitochondrial Disease
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Spinal Cord Injury Spinal Cord Injury
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Cerebral Palsy Cerebral Palsy
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Mitochondrial Disease Mitochondrial Disease
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Spinal Cord Injury Spinal Cord Injury
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Cerebral Palsy Cerebral Palsy
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Mitochondrial Disease Mitochondrial Disease
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Spinal Cord Injury Spinal Cord Injury
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C09956 World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator

Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Cerebral Palsy Cerebral Palsy
C09956 World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator

Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Mitochondrial Disease Mitochondrial Disease
C09956 World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator

Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
Displaying 126 - 150 of 84099

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.