CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 57855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60282 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type other text

The free-text field related to 'Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type', specifying other text. Type of frequency with which the participant currently has GERD, heartburn, mid-line chest pain, esophageal burning

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60281 Mitochondrial disease abdominal migraine diagnosis indicator

Indicator of whether the participant has an abdominal migraine diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60280 Mitochondrial disease prior vomit fail stop text

The free-text field related to the participant's previous efforts that failed to stop vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60279 Mitochondrial disease vomit characteristic type

Type of characteristics the participant experiences when vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60278 Mitochondrial disease prior special diet affect symptom text

The free-text field to specify whether the prior specialized diet affected participant's symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60277 Mitochondrial disease stop diet reason text

The free-text field to specify why the participant stopped their dietary restriction

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60276 Mitochondrial disease prior special diet type

Type of specialized diet the participant has been on in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60275 Mitochondrial disease infant formula recommendation type other text

The free-text field related to 'Mitochondrial disease infant formula recommendation type', specifying other text. Type of recommendation the participant received regarding the infant formula

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60274 Mitochondrial disease infant formula recommendation type

Type of recommendation the participant received regarding the infant formula

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60273 Mitochondrial disease infant formula choose reason text

The free-text field to specify the reason an infant formula was chosen

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60272 Informant questionnaire text

The free-text field specifying the informant for the questionnaire

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60271 Mitochondrial disease DNA deletion text

The free-text field to specify the mitochondrial disease mitochondrial DNA deletion

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60270 Genetic test mitochondrial DNA experimental validation type

Type of experimental validation used for the basis of the evaluation of mitochondrial DNA (mtDNA) genetic testing clinical category

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60269 Genetic test mitochondrial DNA clinical evaluation type

Type of basis used for the evaluation of the clinical category of mitochondrial DNA (mtDNA) genetic test

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60268 Genetic test experimental validation type other text

Free-text field related to the 'Genetic test experimental validation type other text', specifying the experimental validation

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60267 Genetic test prevision software name

Name of the prevision software used in genetic testing

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60266 Genetic test methodology text

The free-text field to specify the test methodology for genetic testing

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60265 DNA type

Type of DNA

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60264 Genetic test mitochondrial DNA variant mutation quantitative analysis heteroplasmy level type other text

The free-text field related to 'Genetic test mitochondrial DNA variant or mutation quantitative analysis heteroplasmy level type', specifying other text. Type of heteroplasmy level for quantitative analyses

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60263 Genetic test mitochondrial DNA variant mutation quantitative analysis evaluation method type other text

The free-text field related to 'Genetic test mitochondrial DNA variant or mutation quantitative analysis evaluation method type', specifying other text. Type of evaluation method for quantitative analyses

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60262 Genetic study data sample category type other text

The free-text field related to 'Genetic study data sample category type', specifying other text. Type of tissue studied

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60261 Family history relative global unique identifier number

Number representing the Global Unique ID (GUID) of the participant's family member

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60260 Family history relative tissue specimen name

Name of tissue specimen collected from the participant's family member

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60259 Organ donation repository name

Name of repository to which the participant registered for organ donation

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60258 Organ donation register indicator

Indicator of whether the participant has registered for organ donation

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 57855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.