CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Disease Name

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12027	Written Verbal Fluency Test (WVFT) - copy previous word rapid text	Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test	Supplemental	Written Verbal Fluency Test	True	Huntington's Disease	Huntington's Disease
C12027	Written Verbal Fluency Test (WVFT) - copy previous word rapid text	Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.