CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 83926
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18740 Off study intervention prematurely other text

The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study

 Supplemental Study Discontinuation/Completion False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20335 Glasgow Outcome Scale Extended (GOS-E) - Respondent type

Person responding to the Glasgow Outcome Scale Extended (GOSE)

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20336 Glasgow Outcome Scale Extended (GOS - E) Supplemental Questions - Epileptic fit post injury indicator

Indicator if the participant has had epileptic fits since the injury as part of Glasgow Outcome Scale Extended (GOS-E) supplemental questions.

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20337 Glasgow Outcome Scale Extended (GOS - E) Supplemental Questions - Epileptic fit risk indicator

Indicator if the participant has been told he/she is at risk of developing epilepsy as part of Glasgow Outcome Scale Extended (GOS-E) supplemental questions.

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20335 Glasgow Outcome Scale Extended (GOS-E) - Respondent type

Person responding to the Glasgow Outcome Scale Extended (GOSE)

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Stroke Stroke
C20336 Glasgow Outcome Scale Extended (GOS - E) Supplemental Questions - Epileptic fit post injury indicator

Indicator if the participant has had epileptic fits since the injury as part of Glasgow Outcome Scale Extended (GOS-E) supplemental questions.

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Stroke Stroke
C20337 Glasgow Outcome Scale Extended (GOS - E) Supplemental Questions - Epileptic fit risk indicator

Indicator if the participant has been told he/she is at risk of developing epilepsy as part of Glasgow Outcome Scale Extended (GOS-E) supplemental questions.

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Stroke Stroke
C20335 Glasgow Outcome Scale Extended (GOS-E) - Respondent type

Person responding to the Glasgow Outcome Scale Extended (GOSE)

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Traumatic Brain Injury Comprehensive
C20336 Glasgow Outcome Scale Extended (GOS - E) Supplemental Questions - Epileptic fit post injury indicator

Indicator if the participant has had epileptic fits since the injury as part of Glasgow Outcome Scale Extended (GOS-E) supplemental questions.

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Traumatic Brain Injury Comprehensive
C20337 Glasgow Outcome Scale Extended (GOS - E) Supplemental Questions - Epileptic fit risk indicator

Indicator if the participant has been told he/she is at risk of developing epilepsy as part of Glasgow Outcome Scale Extended (GOS-E) supplemental questions.

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Traumatic Brain Injury Comprehensive
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD).

 Supplemental Substance Abuse Questions from the TBI Model Systems Database True Sport Related Concussion Comprehensive
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD).

 Supplemental Substance Abuse Questions from the TBI Model Systems Database True Sport Related Concussion Acute
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD).

 Supplemental Substance Abuse Questions from the TBI Model Systems Database True Traumatic Brain Injury Comprehensive
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD).

 Supplemental Substance Abuse Questions from the TBI Model Systems Database True Traumatic Brain Injury Acute Hospitalized
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD).

 Supplemental Substance Abuse Questions from the TBI Model Systems Database True Traumatic Brain Injury Epidemiology
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD).

 Supplemental Substance Abuse Questions from the TBI Model Systems Database True Traumatic Brain Injury Concussion/Mild TBI
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD).

 Supplemental Substance Abuse Questions from the TBI Model Systems Database True Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20333 The Galveston Orientation and Amnesia Test (GOAT) - Pre injury event detail score

Scored ability to provide specific details about the last event before injury, as part of the Galveston Orientation and Amnesia Test (GOAT).

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20334 The Galveston Orientation and Amnesia Test (GOAT) - Error sum value

Galveston Orientation and Amnesia Test (GOAT) sum of errors score

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20333 The Galveston Orientation and Amnesia Test (GOAT) - Pre injury event detail score

Scored ability to provide specific details about the last event before injury, as part of the Galveston Orientation and Amnesia Test (GOAT).

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Sport Related Concussion Comprehensive
C20334 The Galveston Orientation and Amnesia Test (GOAT) - Error sum value

Galveston Orientation and Amnesia Test (GOAT) sum of errors score

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Sport Related Concussion Comprehensive
C20333 The Galveston Orientation and Amnesia Test (GOAT) - Pre injury event detail score

Scored ability to provide specific details about the last event before injury, as part of the Galveston Orientation and Amnesia Test (GOAT).

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Sport Related Concussion Acute
C20334 The Galveston Orientation and Amnesia Test (GOAT) - Error sum value

Galveston Orientation and Amnesia Test (GOAT) sum of errors score

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Sport Related Concussion Acute
C20333 The Galveston Orientation and Amnesia Test (GOAT) - Pre injury event detail score

Scored ability to provide specific details about the last event before injury, as part of the Galveston Orientation and Amnesia Test (GOAT).

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Traumatic Brain Injury Comprehensive
C20334 The Galveston Orientation and Amnesia Test (GOAT) - Error sum value

Galveston Orientation and Amnesia Test (GOAT) sum of errors score

 Supplemental Galveston Orientation and Amnesia Test (GOAT) True Traumatic Brain Injury Comprehensive
Displaying 176 - 200 of 83926

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.