CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1163-C58829	C58829	Diagnosis principal discharge stroke TIA related ICD-10-CM code status	Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1163-C58831	C58831	Stroke initial residence or discharge destination other text	The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1164-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58816	C58816	Frontal lobe function status	Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58817	C58817	Parietal lobe function status	Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58818	C58818	Dysphagia status	Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58819	C58819	Dizziness indicator	Indicator of whether the participant/subject experienced dizziness	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1165-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Stroke	Stroke
F1167-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1167-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1167-C58755	C58755	Toxicology screen other text	The free-text field related to 'Toxicology Screen' specifying other text	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1167-C58757	C58757	Lab test unit type	Indicator of whether United States Customary Units (Standard) or International Standard of Units (SI) were used in the laboratory test results	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1169-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54749	C54749	Cerebrospinal fluid collection method type	The method related to cerebrospinal fluid (CSF) being collected	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54750	C54750	Cerebrospinal fluid collection method other text	The free-text field related to other for method related to cerebrospinal fluid (CSF) being collected	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54751	C54751	Cerebrospinal fluid collection anatomic site	The anatomic site related to collection of cerebrospinal fluid (CSF)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54752	C54752	Cerebrospinal fluid collection anatomic site other text	The free-text field related to other anatomic site related to collection of cerebrospinal fluid (CSF)	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54753	C54753	Specimen collection tube type	Type of tube used for specimen collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55003	C55003	Specimen centrifugation revolutions per minute value	The value related to revoluntions per minute in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55005	C55005	Specimen centrifugation duration	The duration related to centrifugation	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55349	C55349	Microdialysis cerebral Ictus monitoring interval	The period of time elapsed between ictus and monitoring for cerebral microdialysis	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C56123	C56123	Specimen centrifugation performed indicator	The indicator relating to whether centrifugation was performed on the specimen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.