CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1152-C58928	C58928	Medical history carotid endarterectomy recent date	Date of most recent carotid endarterectomy performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58929	C58929	Medical history carotid artery stenting recent date	Date of most recent carotid artery stenting performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58930	C58930	Hypertension treatment type	Type of treatment the participant/subject is receiving or has received for hypertension	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58931	C58931	Menopause treatment type	Type of treatment the participant/subject is receiving or has received for menopause	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58932	C58932	Menopause treatment type other text	The free-text field related to 'Menopause treatment type', specifying other text	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58933	C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58934	C58934	Chickenpox past twelve month indicator	The indicator related to whether the participant/subject has had chickenpox in the past 12 months	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58935	C58935	Facial segmental hemangioma PHACE syndrome indicator	The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome	Exploratory	Medical History	False	Stroke	Stroke
F1152-C59009	C59009	Pregnancy current status	Status of the participant/subject's pregnancy currently	Supplemental	Medical History	False	Stroke	Stroke
F1152-C59010	C59010	Postpartum period current status	Status of the participant/subject in the postpartum period currently	Supplemental	Medical History	False	Stroke	Stroke
F1153-C58947	C58947	Family history stroke youngest age unknown status	Status indicating the youngest age an immediate family member (parent, sibling, child) suffered a stroke is unknown, if there is a family history of stroke	Supplemental	Family History	False	Stroke	Stroke
F1153-C58948	C58948	Family history coronary artery disease (CAD) youngest age unknown status	Status indicating the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack, if there is a family history of coronary artery disease (CAD)	Supplemental	Family History	False	Stroke	Stroke
F1154-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58938	C58938	Drug or substance illicit or recreational use other text	The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58940	C58940	Tobacco cigarette use stopped age value	Age in years when participant/subject stopped using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58941	C58941	Tobacco cigarette use stopped age not applicable status	Status indicating that age stopped cigarette use does not apply to the subject/participant, as they are still using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58942	C58942	E-cigarette electronic vapor product use ever indicator	The indicator related to whether the participant/subject has ever used an e-cigarette or other electronic vaping product, even just one time, in their entire life	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58943	C58943	E-cigarette electronic vapor product use status	Status of participant/subject's use of e-cigarettes or other electronic vaping products	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58944	C58944	Alcohol 30 day use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C58945	C58945	Regular moderate intense aerobic exercise physical activity indicator	Indicator related to whether or not the participant/subject participates in regular aerobic exercise (moderate intensity physical activity). Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58946	C58946	Regular moderate intense aerobic exercise physical activity days week number	Number of days per typical week that the participant/subject engages in at least moderate-intensity aerobic exercise physical activities. Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously	Supplemental	Behavioral History	False	Stroke	Stroke
F1155-C58820	C58820	Pregnancy or delivery risk factor status	The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C58821	C58821	Pregnancy or delivery risk factor illness other text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C58823	C58823	Pregnancy or delivery risk factor fetal abnormal recognize in utero text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.