CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1151-C19262	C19262	Occupation secondary other status text	The free-text field to capture other status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F1151-C19482	C19482	Paid work hour week count	The number of hours per week in paid work	Exploratory	Social Status	False	Stroke	Stroke
F1151-C52560	C52560	Occupation paid type	Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO)	Exploratory	Social Status	False	Stroke	Stroke
F1152-C19174	C19174	Other cardiac disorder type	Type of other cardiac disorder	Supplemental	Medical History	False	Stroke	Stroke
F1152-C22679	C22679	Medical history first depressive episode diagnosis age value	Value of a participant's/subject's age when first depressive episode was diagnosed	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52597	C52597	Medical history ischemic stroke range	The element related to the number of ischemic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52598	C52598	Medical history ischemic stroke recency rate	The element related to the recency of ischemic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52599	C52599	Medical history hemorrhagic stroke type	The element related to the type of hemorrhagic stroke the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52600	C52600	Medical history transient ischemic attack range	The element related to the number of transient ischemic attacks (TIAs) the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52601	C52601	Medical history transient ischemic attack recency rate	The element related to the recency of transient ischemic attacks (TIAs) the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52602	C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52603	C52603	Medical history migraine active last year indicator	The indicator related to the participant/subject having had an active migraine within the last year	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52604	C52604	Medical history carotid endarterectomy anatomic site	The element related to the location of a carotid endarterectomy the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52605	C52605	Medical history carotid artery stenting anatomic site	The element related to the location of carotid artery stenting the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52618	C52618	Medical history neck trauma recency rate	The element related to the recency of neck trauma	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52619	C52619	Medical history atrial fibrillation other cause indicator	The indicator related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52620	C52620	Medical history atrial fibrillation other cause text	The free-text field related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52621	C52621	Medical history artificial valve type	The element related to the type of artificial valve	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52622	C52622	Medical history cardiac catheterization recency rate	The element related to the recency of cardiac catheterization the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52623	C52623	Aortic thoracic aneurysm specify text	The free-text field related to the type of aortic or thoracic aneurysm	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52701	C52701	Bleeding disorder type text	Free-text field related to the type of bleeding disorder	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52702	C52702	Connective tissue disease other type text	The free-text field related to other type of connective tissue disease	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58926	C58926	Medical history hemorrhagic stroke range	The element related to the number of hemorrhagic strokes the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58927	C58927	Medical history hemorrhagic stroke recency rate	The element related to the recency of hemorrhagic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.