CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 57855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21902 Geriatric Depression Scale (GDS) Long Form - Bothered indicator

Indicator whether the subject is bothered by the thoughts that can't get out of his or her head(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21903 Geriatric Depression Scale (GDS) Long Form - Restless fidgety indicator

Indicator whether the subject often gets restless and fidgety(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21904 Geriatric Depression Scale (GDS) Long Form - Future worry indicator

Indicator whether the subject is frequently worried about the future (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21905 Geriatric Depression Scale (GDS) Long Form - Downhearted blue indicator

Indicator whether the subject often feels downhearted and blue (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21906 Geriatric Depression Scale (GDS) Long Form - Past worry indicator

Indicator whether the subject is worried about the past a lot (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21907 Geriatric Depression Scale (GDS) Long Form - Exciting life indicator

Indicator whether the subject finds life very exciting(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21908 Geriatric Depression Scale (GDS) Long Form - Project new start difficulty indicator

Indicator whether the subject feels it is hard to get started on new projects(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21909 Geriatric Depression Scale (GDS) Long Form - Little thing upset indicator

Indicator whether the subject frequently gets upset over little things(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21911 Geriatric Depression Scale (GDS) Long Form - Crying indicator

Indicator whether the subject frequently feels like crying(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21912 Geriatric Depression Scale (GDS) Long Form - Concentration trouble indicator

Indicator whether the subject has trouble concentrating(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21913 Geriatric Depression Scale (GDS) Long Form - Awake enjoy indicator

Indicator whether the subject enjoys getting up in the morning(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21914 Geriatric Depression Scale (GDS) Long Form - Social gathering avoidance indicator

Indicator whether the subject prefers to avoid social gatherings(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21915 Geriatric Depression Scale (GDS) Long Form - Decision easy indicator

Indicator whether the subject feels it is easy to make decisions(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21916 Geriatric Depression Scale (GDS) Long Form - Clear mind indicator

Indicator whether the subject 'mind is as clear as it had used to be(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21918 Geriatric Depression Scale (GDS) Long Form - Total score

Scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21919 Geriatric Depression Scale (GDS) Long Form - Depression scale

Scale of depression based on scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.