CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 151 - 175 of 57723

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1845-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2197-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F0954-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1031-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1031-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1207-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1823-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1845-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2197-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F0328-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F1174-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1584-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Imaging	False	Traumatic Brain Injury	Acute Hospitalized
F1584-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Imaging	False	Traumatic Brain Injury	Concussion/Mild TBI
F1584-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Imaging	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0328-C02441	C02441	Intracerebral hemorrhage anatomic site	Anatomic site of the intracerebral hemorrhage	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02441	C02441	Intracerebral hemorrhage anatomic site	Anatomic site of the intracerebral hemorrhage	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02441	C02441	Intracerebral hemorrhage anatomic site	Anatomic site of the intracerebral hemorrhage	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F1584-C02441	C02441	Intracerebral hemorrhage anatomic site	Anatomic site of the intracerebral hemorrhage	Supplemental	Imaging	False	Traumatic Brain Injury	Acute Hospitalized
F1584-C02441	C02441	Intracerebral hemorrhage anatomic site	Anatomic site of the intracerebral hemorrhage	Supplemental	Imaging	False	Traumatic Brain Injury	Concussion/Mild TBI
F1584-C02441	C02441	Intracerebral hemorrhage anatomic site	Anatomic site of the intracerebral hemorrhage	Supplemental	Imaging	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0328-C02406	C02406	Cervicomedullary junction or brainstem injury type	Extent of the cervicomedullary junction/brainstem injury	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

Displaying 151 - 175 of 57723

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.