CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 57723
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Comprehensive
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Epidemiology
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Vessel Imaging Angiography Stroke Stroke
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Acute Hospitalized
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Concussion/Mild TBI
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02441 Intracerebral hemorrhage anatomic site

Anatomic site of the intracerebral hemorrhage

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02441 Intracerebral hemorrhage anatomic site

Anatomic site of the intracerebral hemorrhage

Supplemental Imaging Traumatic Brain Injury Comprehensive
C02441 Intracerebral hemorrhage anatomic site

Anatomic site of the intracerebral hemorrhage

Supplemental Imaging Traumatic Brain Injury Epidemiology
C02441 Intracerebral hemorrhage anatomic site

Anatomic site of the intracerebral hemorrhage

Supplemental Imaging Traumatic Brain Injury Acute Hospitalized
C02441 Intracerebral hemorrhage anatomic site

Anatomic site of the intracerebral hemorrhage

Supplemental Imaging Traumatic Brain Injury Concussion/Mild TBI
C02441 Intracerebral hemorrhage anatomic site

Anatomic site of the intracerebral hemorrhage

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02406 Cervicomedullary junction or brainstem injury type

Extent of the cervicomedullary junction/brainstem injury

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 57723

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.