CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 57723
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Exploratory Headache Pain Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Injury Report Sport-Related Concussion Comprehensive
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Injury Report Sport-Related Concussion Acute
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Injury Report Sport-Related Concussion Persistent/Chronic
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Injury Report Sport-Related Concussion Subacute
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Rescue Treatments Headache Headache
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental-Highly Recommended Headache Calendar Headache Headache
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Pain Assessment Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C19146 Activity frequency other text

The free text field related to "Activity frequency" specifying other text. The frequency of the activity

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 126 - 150 of 57723

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.