CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 101 - 125 of 57723

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59607	C59607	Headache traumatic brain injury previous count	Count of previous traumatic brain injuries not including the current event experienced by the participant/subject that led to the current post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2673-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3059-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3064-C13977	C13977	Imaging abnormality cortical anatomic site	The location(s) of the abnormality in the brain cortex	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59606	C59606	Imaging inflammatory infection type other text	The free-text field related to 'Imaging inflammatory infection type' specifying other text	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59605	C59605	Imaging vascular disorder type other text	The free-text field related to 'Imaging vascular disorder type' specifying other text	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59604	C59604	Imaging malformation cortical development type other text	The free-text field related to 'Imaging malformation cortical development type' specifying other text	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59603	C59603	Imaging hippocampal sclerosis type other text	The free-text field related to 'Imaging hippocampal sclerosis type' specifying other text	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59602	C59602	Imaging hippocampal sclerosis type	Type of specific hippocampal sclerosis abnormality of diagnostic conclusion drawn from scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59601	C59601	Imaging specific abnormality contrast agent use indicator	Indicator as to whether imaging contrast enhancement was used for the specific abnormality imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59600	C59600	Imaging specific abnormality laterality type	Laterality type relative to the anatomic site of the identified specific abnormality	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59599	C59599	Imaging abnormality feature type identification code	Code related to identification of feature abnormalities	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59598	C59598	Imaging abnormality subcortical contrast agent used indicator	Indicator as to whether an imaging contrast agent was used for the subcortical imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59597	C59597	Imaging abnormality subcortical identification code	Code related to identification of subcortical abnormalities	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59596	C59596	Imaging abnormality subcortical side type	Side of the abnormality below the brain cortex	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59595	C59595	Imaging abnormality cortical contrast agent use indicator	Indicator as to whether an imaging contrast agent was used for the cortical imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59594	C59594	Imaging abnormality cortical identification code	Code related to identification of cortical abnormalities	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59593	C59593	Imaging abnormality description type other text	The free-text field related to 'Imaging abnormality description type', specifying other text.	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59592	C59592	Imaging abnormality description type	Type of description of imaging abnormalities	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C59591	C59591	Imaging normality status	Status of the result of the imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C14043	C14043	Imaging atrophy tissue loss type	Type of atrophy or tissue loss for which the assessment is being completed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C14042	C14042	Imaging inflammatory infection type	Type of inflammatory and infection for which the assessment is being completed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F2148-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation

Displaying 101 - 125 of 57723

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.