CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 57001 - 57025 of 57153

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2513-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02302	C02302	Adverse event other action take type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02302	C02302	Adverse event other action take type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1126-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F2952-C02302	C02302	Adverse event other action take type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F0009-C60389	C60389	Adverse event study intervention action take type other text	The free-text field related to 'Adverse event study intervention action take type', specifying other text. Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C60389	C60389	Adverse event study intervention action take type other text	The free-text field related to 'Adverse event study intervention action take type', specifying other text. Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1126-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F0009-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1126-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F2939-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F0009-C60388	C60388	Adverse event severity intensity CDISC grade	Grade of severity or intensity of the adverse event according to the Clinical Data Interchange Standards Consortium (CDISC) terminologies	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C60388	C60388	Adverse event severity intensity CDISC grade	Grade of severity or intensity of the adverse event according to the Clinical Data Interchange Standards Consortium (CDISC) terminologies	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C60387	C60387	Adverse event ongoing indicator	Indicator of whether the adverse event experienced by the participant is ongoing	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60387	C60387	Adverse event ongoing indicator	Indicator of whether the adverse event experienced by the participant is ongoing	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1126-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy

Displaying 57001 - 57025 of 57153

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.