CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 83926
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58821 Pregnancy or delivery risk factor illness other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery.

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C58820 Pregnancy or delivery risk factor status

The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery.

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C58819 Dizziness indicator

Indicator of whether the participant/subject experienced dizziness.

 Supplemental Physical/Neurological Exam False Stroke Stroke
C58818 Dysphagia status

Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function.

 Supplemental Physical/Neurological Exam False Stroke Stroke
C58817 Parietal lobe function status

Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)

 Exploratory Physical/Neurological Exam False Stroke Stroke
C58816 Frontal lobe function status

Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)

 Exploratory Physical/Neurological Exam False Stroke Stroke
C58815 Imaging perfusion computed tomography based identification penumbra method other text

The free-text field related to 'Imaging perfusion computed tomography based identification penumbra method type' specifying other text.

 Supplemental Perfusion and Penumbral Imaging False Stroke Stroke
C58814 Imaging magnetic resonance based identification penumbra method other text

The free-text field related to 'Imaging magnetic resonance based identification penumbra method type' specifying other text.

 Supplemental Perfusion and Penumbral Imaging False Stroke Stroke
C58813 Aneurysm formation de novo indicator

Indicator for the presence of de novo formation of aneurysm since last imaging

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C58812 Pre-hospital severity scale not documented status

Indicates if a severity scale was not documented.

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58811 Pre-hospital severity scale total score

The total score of the severity scale, if completed

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58810 Pre-hospital large vessel occlusion indicator

Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO).

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58809 Pre-hospital severity scale type other text

The free-text field related to "Pre-hospital severity scale type" specifying other text.

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58808 Pre-hospital severity scale type

The stroke severity scale used to determine stroke severity before hospital intake.

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58807 Pre-hospital stroke screen tool outcome status

The outcome status of the pre-hospital stroke screen used

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58806 Pre-hospital stroke screen tool other text

The free-text field related to 'Pre-hospital stroke screen tool' specifying other text. Source of the data provided on the case report form

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58805 Pre-hospital stroke screen tool type

The stroke screen tool used to determine stroke status by EMS personnel

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58804 Emergency Medical Services (EMS) service personnel highest level type

Highest level of emergency medical service (EMS) personnel that attended to the participant/subject provided

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58803 Stroke surgical operative preventive neurosurgical treatment other text

The free-text field related to 'Stroke surgical operative preventive treatment type' specifying neurosurgical/operative preventative treatment other text. Type of other neurosurgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA.

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C58802 Stroke surgical operative preventive cardiac treatment text

The free-text field related to 'Stroke surgical operative preventive treatment type' specifying cardiac surgical/operative preventative treatment text. Type of cardiac surgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA.

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C58801 Stroke surgical operative preventive treatment type

Type of surgical/operative preventative treatment the participant/ subject received or was evaluated and scheduled for as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA.

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C58800 Stroke surgical operative preventive treatment indicator

Indicates whether or not the participant/ subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA.

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C58799 Osmotic therapy type

Type of osmotic therapy received by the participant/subject.

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C58798 Increase intracranial pressure medical therapy type

Type of medical therapy received by the participant/subject for the treatment of increased intracranial pressure.

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C58797 Ventricular drain place other text

The free-text field related to 'Ventricular drain place type' specifying other text. Type of ventricular drainage placed.

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
Displaying 251 - 275 of 83926

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.