CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 84099
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

Supplemental Vital Signs Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab Comprehensive
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab General
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59529 Surgery multi-lobar percent estimate insula resection remove type

Type of estimated percentage relative to insula tissue removed during surgical resection to remove tissue from multiple regions of the brain

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C59514 Surgery multi-lobar temporal lobe resection temporal percentage estimate remove range

Range of estimated percentage of temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Therapeutic Procedures Traumatic Brain Injury Comprehensive
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Therapeutic Procedures Traumatic Brain Injury Acute Hospitalized
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Therapeutic Procedures Traumatic Brain Injury Epidemiology
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Therapeutic Procedures Traumatic Brain Injury Concussion/Mild TBI
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Therapeutic Procedures Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
Displaying 1 - 25 of 84099

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.