CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C13809	C13809	Van Swieetten scale posterior white matter result	Describes Van Swieetten Scale - Posterior white matter	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13810	C13810	Imaging computed tomography leukoariaiosis volumetric measurement	Indicates Leukoaraiosis (CT) -Volumetric measure (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13811	C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13812	C13812	Intracerebral hemorrhage volume measurement	Indicates intracerebral hemorrhage (ICH) volume (ABC/2)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13813	C13813	Intracerebral hemorrhage planimetric volume measurement	Indicates ICH volume (planimetric) (CC)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13814	C13814	Intraparenchymal hematoma MRI sequence type	Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13815	C13815	Hematoma lobar region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13816	C13816	Hematoma lobar region epicenter anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in the lobar epicenter region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13817	C13817	Hematoma deep region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a deep region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13819	C13819	Perihematomal edema volume measurement	Indicates perihematomal edema volume (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13821	C13821	Spot sign positive indicator	The positive indicator for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13822	C13822	Spot sign count	The number of "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion. The computed tomogram angiography (CTA) 'spot sign' describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13823	C13823	Spot sign maximum axial dimension measurement	The maximum axial dimention related to "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13824	C13824	Spot sign maximum attenuation score	The maximum attenuation score for "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13825	C13825	Spot sign total score	The total score for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13826	C13826	Hematoma chronic indicator	Indicates presence of Chronic hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13827	C13827	Hematoma chronic count	Indicates number of chronic hematomas if present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13828	C13828	Microbleed present indicator	Indicates presence of microbleeds	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13829	C13829	Microbleed anatomic site	Describes microbleed location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13830	C13830	Microbleed by location count	Indicates count of Microbleeds in each location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13831	C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13832	C13832	Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score	Indicates Graeb IVH Scale - Left lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13833	C13833	Graeb intraventricular hemorrhage (IVH) scale - third ventricle score	Indicates Graeb IVH Scale - Third ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13834	C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.