CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 651 - 675 of 57596
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14196 Hospital location patient first received care type

Area of the hospital the patient first evaluated

 Supplemental Hospital Arrival/Admission False Stroke Stroke
C14197 Hospital care upon admission type

Where the patient was cared for and by whom (Where was the patient cared for and by what service?)

 Supplemental Hospital Arrival/Admission False Stroke Stroke
C14198 Hospital presumptive admission diagnosis type

The presumptive diagnosis tries to identify presumptive diagnosis at the time of hospital admission

 Supplemental Hospital Arrival/Admission False Stroke Stroke
C14199 Stroke complication of medical/ surgical procedure or therapy likelihood type

Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)

 Exploratory Hospital Arrival/Admission False Stroke Stroke
C14625 Hospital arrival date and time

Date (and time, if applicable and known) the participant/subject arrived at the hospital

 Supplemental-Highly Recommended Hospital Arrival/Admission False Stroke Stroke
C13831 Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score

Indicates Graeb IVH Scale - Right lateral ventricle score

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13832 Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score

Indicates Graeb IVH Scale - Left lateral ventricle score

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13833 Graeb intraventricular hemorrhage (IVH) scale - third ventricle score

Indicates Graeb IVH Scale - Third ventricle score

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13834 Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score

Indicates Graeb IVH Scale - Fourth ventricle score

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13835 Graeb intraventricular hemorrhage (IVH) scale - total score

Indicates Graeb IVH Scale - total Score

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C14220 Clinical stroke tissue-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C14221 Clinical stroke time-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C14222 Clinical stroke tissue-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using tissue status to distinguish between ischemic stroke and TIA

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C14224 Acute ischemic cerebrovascular syndrome (AICS) - stroke sub type

Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification system

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14225 Trial of ORG 10172 in Acute Stroke Treatment (TOAST) - ischemic stroke sub type

Ischemic Stroke Subtype based on the Trial of ORG 10172 in Acute Stroke Treatment (TOAST) Classification System

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14226 Stroke causative classification standard sub type

Ischemic Stroke Subtype based on The Causative Classification System's - standard causative subtypes

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14228 Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) - standard sub type

Ischemic Stroke Subtype based on the Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) Classification System

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14230 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade

The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14231 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - small vessel grade

The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of small vessel disease (S)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14232 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade

The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14233 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - other grade

The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of other cause (O)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14234 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - diagnostic evidence level type

Levels of diagnostic evidence for the ASCO Grades

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14235 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - sub type

Stroke Subtype as defined by the A-S-C-O pattern (e.g., A1-S3-C1-O3)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14236 Oxfordshire Community Stroke Project (OCSP) - subtype category

Oxfordshire Community Stroke Project (OCSP) Subtype Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
Displaying 651 - 675 of 57596

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.