CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 626 - 650 of 57596
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52699 Sickle cell anemia blood transfusion treatment indicator

The indicator related to whether blood transfusions are used for treatment for sickle cell anemia

 Supplemental Medical History False Stroke Stroke
C52700 Hypercoagulable disorder type text

The free-text field related to the type of hypercoagulable disorder

 Supplemental Medical History False Stroke Stroke
C14145 Family history stroke youngest age value

If there is a family history of stroke, specify the youngest age an immediate family member (parent, sibling, child) suffered a stroke

 Supplemental Family History False Stroke Stroke
C14147 Family history coronary artery disease (CAD) youngest age value

If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack

 Supplemental Family History False Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C14200 Emergency Medical Services (EMS) call received date and time

Date and time first call was received by the Emergency Medical Services (EMS) dispatcher OR date and time of EMS vehicle dispatch as recorded on the EMS trip sheet or other similar documentation

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14201 Emergency Medical Services (EMS) dispatch date and time

This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14202 Emergency Medical Services (EMS) dispatch priority type

For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14203 Emergency Medical Services (EMS) dispatch type code

For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14205 Emergency Medical Services (EMS) scene arrival date and time

This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14206 Emergency Medical Services (EMS) scene departure date and time

Date and time the EMS vehicle departs with the patient from the scene to take the patient to the hospital

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14207 Pre-hospital stroke identification screen indicator

Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14208 Pre-hospital neurological impairment scale indicator

Whether a pre-hospital neurologic impairment scale screen was documented by EMS personnel. Pre-hospital neurologic impairment scales are defined as published validated scales or those required by state EMS agencies (e.g., GCS for suspected hemorrhagic stroke or any stroke with impaired consciousness, Los Angeles Motor Scale, etc.)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14209 Los Angeles Motor Scale (LAMS) - facial smile or grimace result

Assess the facial smile/ grimace using the Los Angeles Motor Scale (LAMS)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14210 Los Angeles Motor Scale (LAMS) - grip result

Assess the grip using the Los Angeles Motor Scale (LAMS)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14211 Los Angeles Motor Scale (LAMS) - arm strength result

Assess the arm strength using the Los Angeles Motor Scale (LAMS). Check all that apply

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14622 Los Angeles Motor Scale (LAMS) - facial smile or grimace abnormal type

Type of abnormal facial smile or grimace observed during administration of the Los Angeles Motor Scale (LAMS)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14623 Los Angeles Motor Scale (LAMS) - grip abnormal type

Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14624 Los Angeles Motor Scale (LAMS) - arm strength abnormal type

Type of abnormal arm strength observed during administration of the Los Angeles Motor Scale (LAMS)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C18907 Emergency Medical Services (EMS) dispatch type other text

The free-text field related to 'Emergency Medical Services (EMS) dispatch type code' specifying other text. For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14190 Stroke symptoms discover location type

Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered

 Supplemental Hospital Arrival/Admission False Stroke Stroke
C14191 Last known to be well date and time

The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)

 Supplemental-Highly Recommended Hospital Arrival/Admission False Stroke Stroke
C14192 Symptom awaken discover indicator

Indicate if symptoms were discovered shortly upon awakening from sleep

 Supplemental Hospital Arrival/Admission False Stroke Stroke
C14194 Hospital not admitted but transferred to another acute care hospital indicator

Whether a patient presented to the Emergency Department of the study hospital and was transferred to an outside hospital. Was patient evaluated in the ED for acute Stroke or TIA and subsequently transferred to another acute care hospital rather than being admitted to your hospital?

 Supplemental Hospital Arrival/Admission False Stroke Stroke
C14195 Hospital point of origin for admission or visit type

Documents whether the patient originated from the community or was transferred from one hospital to the study hospital

 Supplemental Hospital Arrival/Admission False Stroke Stroke
Displaying 626 - 650 of 57596

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.