CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1292-C15438	C15438	Imaging change in normal appearing white matter value	Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15440	C15440	Imaging timepoint for change in normal appearing white matter value	Timepoint used to calculate change in normal-appearing white matter	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15442	C15442	Imaging central cerebral volume measurement	Central cerebral volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15444	C15444	Imaging change in central cerebral volume value	Change in central cerebral volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15445	C15445	Imaging cortical thickness measurement	Thickness of cerebral cortex measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15447	C15447	Imaging change in cortical thickness value	Change in cortical thickness	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15449	C15449	Imaging hippocampus volume measurement	Hippocampus volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15451	C15451	Imaging change in hippocampus volume value	Change in hippocampus volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15453	C15453	Imaging thalamus volume measurement	Thalamus volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15455	C15455	Imaging change in thalamus volume value	Change in thalamus volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15460	C15460	Imaging spinal cord lesion location type	Specifies the location of lesions with respect to cord cross-sectional area involving spinal gray matter	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15462	C15462	Imaging spinal cord volume value	Volume of the spinal cord	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15466	C15466	Imaging tissue integrity region type	The areas of the brain where tissue integrity is measured	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15469	C15469	Imaging magnetization transfer ratio (MTR) measurement type	Magnetization transfer ratio measure	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15470	C15470	Imaging magnetization transfer ratio (MTR) result value	The magnetization transfer ratio (MTR) result	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15645	C15645	Imaging new thalamus lesion count	Total number of new lesions located in the thalami	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C19004	C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15322	C15322	Imaging clinical visit date and time	Date and time of clinical visit coinciding with scan	Supplemental	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15336	C15336	Optical coherence tomography (OCT) time-domain performed indicator	The indicator for whether the time-domain optical coherence tomography (OCT) (Stratus - Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15344	C15344	Optical coherence tomography (OCT) Cirrus-Zeiss performed indicator	The indicator for whether the spectral-domain optical coherence tomography (OCT) (Cirrus - Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15349	C15349	Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator	The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15355	C15355	Optical coherence tomography (OCT) ganglion cell layer thickness performed indicator	The indicator for whether ganglion cell layer thickness (segmentation) optical coherence tomography (OCT) (Cirrus-Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15370	C15370	Imaging oculus dexter (OD) refraction value	The refraction of the right eye (OD)	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15644	C15644	Imaging QA/QC result	Results of image-based QA/QC	Supplemental	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.