CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1856-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F2346-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive
F2346-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Sport-Related Concussion	Acute
F2346-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Sport-Related Concussion	Persistent/Chronic
F2346-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Sport-Related Concussion	Subacute
F2748-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental-Highly Recommended	Diffusion Tensor Imaging (DTI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2753-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F3091-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60167	C60167	Imaging brain atrophy anatomic site	Anatomic site of brain atrophy found in imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3051-C59367	C59367	Surgery procedure calcaneal osteotomy left ankle sliding anatomic site	Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F3051-C59396	C59396	Surgery procedure calcaneal osteotomy right ankle sliding anatomic site	Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F0328-C02412	C02412	Cisternal compression anatomic site	Anatomic site of cisternal compression	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02412	C02412	Cisternal compression anatomic site	Anatomic site of cisternal compression	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02412	C02412	Cisternal compression anatomic site	Anatomic site of cisternal compression	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F1584-C02412	C02412	Cisternal compression anatomic site	Anatomic site of cisternal compression	Supplemental	Imaging	False	Traumatic Brain Injury	Acute Hospitalized
F1584-C02412	C02412	Cisternal compression anatomic site	Anatomic site of cisternal compression	Supplemental	Imaging	False	Traumatic Brain Injury	Concussion/Mild TBI
F1584-C02412	C02412	Cisternal compression anatomic site	Anatomic site of cisternal compression	Supplemental	Imaging	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0328-C02415	C02415	Contusion anatomic site	Anatomic site of contusion	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02415	C02415	Contusion anatomic site	Anatomic site of contusion	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02415	C02415	Contusion anatomic site	Anatomic site of contusion	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F1584-C02415	C02415	Contusion anatomic site	Anatomic site of contusion	Supplemental	Imaging	False	Traumatic Brain Injury	Acute Hospitalized
F1584-C02415	C02415	Contusion anatomic site	Anatomic site of contusion	Supplemental	Imaging	False	Traumatic Brain Injury	Concussion/Mild TBI
F1584-C02415	C02415	Contusion anatomic site	Anatomic site of contusion	Supplemental	Imaging	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1736-C19236	C19236	Sympathetic skin response epithelial anatomic site	Anatomic site of epithelial tissue as related to sympathetic skin response	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F3051-C59403	C59403	Surgery procedure first metatarsal osteotomy arthrodesis left ankle type	Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.