CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54378 Acute Concussion Evaluation (ACE) - Risk factors protracted recovery comorbid medical disorders medication usage text

Text for other comorbid medical disorders or medication usage as a risk factor that may protract the subject/participant recovery process since injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54380 Acute Concussion Evaluation (ACE) - Red flags acute emergency management type

Type of red flags for acute emergency management as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54390 Acute Concussion Evaluation (ACE) - Diagnosis (ICD) concussion type

Type of ICD diagnosis of concussion as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54391 Acute Concussion Evaluation (ACE) - Follow-up action plan type

Type of follow-up plan of action for subject/participant as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54392 Acute Concussion Evaluation (ACE) - Follow-up action plan physician clinician office monitoring date

Date of physician/clinician office monitoring follow-up plan of action for subject/participant as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54393 Acute Concussion Evaluation (ACE) - Follow-up action plan referral type

Type follow-up plan of action referral for subject/participant as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54394 Acute Concussion Evaluation (ACE) - Follow-up action plan referral physician type

Type follow-up plan of action referral physician for subject/participant as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54395 Acute Concussion Evaluation (ACE) - Follow-up action plan referral physician type other text

Test of other type follow-up plan of action referral physician for subject/participant as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C54396 Acute Concussion Evaluation (ACE) - ACE reporter text

Person/individual administering the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Subacute
C04807 Vital status

Status of participant/subject as alive or dead

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C06002 Inpatient treatment total day number

Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19127 Facility name

Name of facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19128 Facility arrival date

Date when patient arrived at facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19129 Facility arrival time

Time at which patient arrived at facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19130 Facility discharge date

Date when patient was discharged from facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19131 Facility discharge time

The time at which the patient was discharged from the facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19132 Ventilator assistance utilization indicator

Indicator for the utilization of ventilator assistance on discharge

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19159 Care provision level

The level of care provided to participant by health care facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19160 Discharge facility type

The type of facility to which the participant was discharged

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19162 Acute care unit admission date

The date at which participant was admitted to acute care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19163 Acute care unit admission time

The time at which participant was admitted to acute care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19166 Special care unit admittance indicator

Indicator for the admittance of participant to special care unit, including any Intensive Care or Step-Down Unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19167 Special care unit type

Type of special care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19168 Special care unit admission date

Date at which participant was admitted to special care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.