CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

84099 results.
Operations
Selected 24 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09949 World Health Organization Quality of Life (WHOQOL-BREF) - personal relationship scale

Scale used to assess personal relationship satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09950 World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale

Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09952 World Health Organization Quality of Life (WHOQOL-BREF) - living place scale

Scale used to assess how satisfied the participant is with his living space, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09954 World Health Organization Quality of Life (WHOQOL-BREF) - mode transportation scale

Scale used to assess transportation mode satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09955 World Health Organization Quality of Life (WHOQOL-BREF) - negative feeling scale

Scale used to assess how often the participant experiences negative feelings, such as blue mood, despair, anxiety, depression, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09956 World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator

Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C09957 World Health Organization Quality of Life (WHOQOL-BREF) - time needed value

Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C12025 Written Verbal Fluency Test (WVFT) - write letter S word five minute count

Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12026 Written Verbal Fluency Test (WVFT) - write four letter C word four minute count

Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12027 Written Verbal Fluency Test (WVFT) - copy previous word rapid text

Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12028 Written Verbal Fluency Test (WVFT) - copy word fast possible duration

Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12029 Written Verbal Fluency Test (WVFT) - index value

Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12025 Written Verbal Fluency Test (WVFT) - write letter S word five minute count

Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes

Supplemental Written Verbal Fluency Test Huntington's Disease Huntington's Disease
C12026 Written Verbal Fluency Test (WVFT) - write four letter C word four minute count

Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes

Supplemental Written Verbal Fluency Test Huntington's Disease Huntington's Disease
C12027 Written Verbal Fluency Test (WVFT) - copy previous word rapid text

Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test

Supplemental Written Verbal Fluency Test Huntington's Disease Huntington's Disease
C12028 Written Verbal Fluency Test (WVFT) - copy word fast possible duration

Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible

Supplemental Written Verbal Fluency Test Huntington's Disease Huntington's Disease
C12029 Written Verbal Fluency Test (WVFT) - index value

Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words

Supplemental Written Verbal Fluency Test Huntington's Disease Huntington's Disease
C12025 Written Verbal Fluency Test (WVFT) - write letter S word five minute count

Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12026 Written Verbal Fluency Test (WVFT) - write four letter C word four minute count

Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12027 Written Verbal Fluency Test (WVFT) - copy previous word rapid text

Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12028 Written Verbal Fluency Test (WVFT) - copy word fast possible duration

Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12029 Written Verbal Fluency Test (WVFT) - index value

Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
84099 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.