CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

57596 results.

Operations

Selected 21 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2901-C09942	C09942	World Health Organization Quality of Life (WHOQOL-BREF) - information available daily scale	Scale used to assess the availability of information needed in the participant's daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09943	C09943	World Health Organization Quality of Life (WHOQOL-BREF) - leisure activity opportunity scale	Scale used to assess leisure activity opportunity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09944	C09944	World Health Organization Quality of Life (WHOQOL-BREF) - get around scale	Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09945	C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09946	C09946	World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale	Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09947	C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09948	C09948	World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale	Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09949	C09949	World Health Organization Quality of Life (WHOQOL-BREF) - personal relationship scale	Scale used to assess personal relationship satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09950	C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09951	C09951	World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale	Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09952	C09952	World Health Organization Quality of Life (WHOQOL-BREF) - living place scale	Scale used to assess how satisfied the participant is with his living space, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09953	C09953	World Health Organization Quality of Life (WHOQOL-BREF) - health access scale	Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09954	C09954	World Health Organization Quality of Life (WHOQOL-BREF) - mode transportation scale	Scale used to assess transportation mode satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09955	C09955	World Health Organization Quality of Life (WHOQOL-BREF) - negative feeling scale	Scale used to assess how often the participant experiences negative feelings, such as blue mood, despair, anxiety, depression, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09956	C09956	World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator	Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09957	C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2477-C12025	C12025	Written Verbal Fluency Test (WVFT) - write letter S word five minute count	Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12026	C12026	Written Verbal Fluency Test (WVFT) - write four letter C word four minute count	Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12027	C12027	Written Verbal Fluency Test (WVFT) - copy previous word rapid text	Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12028	C12028	Written Verbal Fluency Test (WVFT) - copy word fast possible duration	Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12029	C12029	Written Verbal Fluency Test (WVFT) - index value	Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

57596 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.