CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1117-C08223	C08223	Medication prior or concomitant discontinuation reason	Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14142	C14142	Medication prior or concomitant formulation text	Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14495	C14495	Medication anti-epileptic drug appropriate indicator	Indicator as to whether the anti-epileptic drug (AED) provided sufficient control for the participant's/subject's epilepsy syndrome	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14496	C14496	Medication anti-epileptic drug three months therapy without discontinuation indicator	Indicator as to whether the duration of therapy exceeded 3 months without discontinuation due to adverse events	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14497	C14497	Medication anti-epileptic drug dose adjustment attempt indicator	Indicator as to whether attempts were made to adjust the dose of the anti-epileptic drug (AED) prior to discontinuation	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14498	C14498	Medication anti-epileptic drug seizure despite adjustment indicator	Indicator as to whether, after adjusting dose of anti-epileptic drug (AED), the subject continued to experienced seizures	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18540	C18540	Medication dosing schedule administration time	Medication administration time schedule	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18541	C18541	Medication anti-epileptic drug name	Name of the prior or concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18542	C18542	Responses all known indicator	The yes/no indicator where all the answers on the form were known	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18543	C18543	Responses all positive indicator	The yes/no indicator where all the answers on the form were "Yes"	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18544	C18544	Medication anti-epileptic drug formulation indicator	The yes/no indicator for formulation of the prior/concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18545	C18545	Medication anti-epileptic drug log line number	The referenced line number of an entry on the anti-epileptic drug (AED) log	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18735	C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1727-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06102	C06102	Tobacco smoke history status	Qualitative categorization of the participant's/subject's smoking history	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06103	C06103	Tobacco smoke quit date	Date (and time, if applicable and known) the participant/subject quit smoking	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06106	C06106	Tobacco cigar smoke daily average value	If participant is a former or current smoker, documents the average number of cigars he/she smokes or did smoke on a daily basis	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06107	C06107	Tobacco pipe bowl smoke daily average value	If participant is a former or current smoker, documents the average number of pipe bowls he/she smokes or did smoke on a daily basis	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C19502	C19502	Tobacco cigarettes smoke daily average value	Tobacco cigarettes smoked daily average number	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07080	C07080	Alcohol Use Disorders Identification Test (AUDIT) - Drink contain alcohol frequency score	Score for the frequency with which the subject consumes alcoholic drinks, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07081	C07081	Alcohol Use Disorders Identification Test (AUDIT) - Alcohol drink typical day number score	Score for the number of drinks the subject consumes on a day he or she is drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.