CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 426 - 450 of 57855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02305 Adverse event severity scale grade

The grading scale of the severity or intensity of the adverse event

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C02306 Adverse event start date and time

Date (and time, if applicable and known) on which the adverse event was first evident

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C02307 Adverse event verbatim term text

Text that describes the adverse event word for word as described by the participant/subject

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C02309 Serious adverse event indicator

The indicator of whether the adverse event is serious.

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C22702 Institutional review board notification indicator

Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C22703 Serious adverse event form completion indicator

Indicator of whether the Serious Adverse Event (SAE) form was completed following an adverse event

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C14413 Medication plasma concentration medication name

Generic or brand name of the medication for which the plasma concentration is measured

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14414 Medication plasma concentration last dose value

Amount of last dose taken before the blood draw for the plasma concentration measurement

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14415 Medication plasma concentration last dose unit of measure

Dosage unit of measure for the last dose taken before the blood draw for the plasma concentration measurement

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14416 Medication plasma concentration blood draw date and time

Date (and time if applicable and known) when the blood specimen was collected for the drug plasma concentration measurement

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14417 Medication plasma concentration last dose date and time

Date (and time if applicable and known) when the last dose was administered before the blood draw for the plasma concentration measurement

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14418 Medication plasma concentration result

Measurement of the concentration of the drug in the blood plasma

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14419 Medication plasma concentration result unit of measure

Unit of measure used for the drug plasma concentration

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14420 Medication plasma concentration last dose unit of measure UCUM code

The Unified Code for Units of Measure (UCUM) code that represents the dosage unit of measure for the last dose taken before the blood draw for the plasma concentration measurement

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14421 Medication plasma concentration no adherence clinically significant indicator

Whether the clinician expects or is able to confirm clinically significant non adherence to the prescribed drug dosing regimen based on the drug plasma concentration results

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C14628 Medication plasma concentration result unit of measure UCUM code

The Unified Code for Units of Measure (UCUM) code that represents the unit of measure for the drug plasma concentration measurement

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C18545 Medication anti-epileptic drug log line number

The referenced line number of an entry on the anti-epileptic drug (AED) log

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C18547 Medication anti-epileptic drug plasma concentration log comment text

The free-text field to specify comments regarding the anti-epileptic drug (AED) plasma concentration log

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C18548 Medication anti-epileptic drug plasma concentration log line number

The reference line number of an entry on the anti-epileptic drug (AED) plasma concentration log

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

 Supplemental AED Resistance Log False Epilepsy Epilepsy
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

 Supplemental AED Resistance Log False Epilepsy Epilepsy
Displaying 426 - 450 of 57855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.