CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Disease Name

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58103	Family health problem other condition history type	Type of other conditions health problems that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58104	Other condition allergy type text	Text of other conditions allergies type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58105	Blood disorders bleeding disorder type text	Text of bleedintg disorder type blood disorder that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58106	Cardiovascular cholesterol type text	Text of cardiovascular cholesterol type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58107	Cardiovascular heart disease type text	Text of cardiovascular heart disease type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58108	Cardiovascular myopathy disease type text	Text of cardiovascular myopathy disease type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58109	Cardiovascular arrhythmia disease type text	Text of cardiovascular arrhythmia disease type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58110	Endocrine metabolic diabetes type text	Text of endocrine/metabolic diabetes type of that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58111	Endocrine metabolic endocrine disorder type text	Text of endocrine/metabolic endocrine disorder type of that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58113	Gastrointestinal intestine problems type text	Text of type of gastrointestinal intestine problems that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58114	Neurological Alzheimer disease type text	Text of type of neurological Alzheimer disease that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58115	Neurological sleep disorder type text	Text of type of neurological sleep disorder that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58116	Neurological neuromuscular disorder type text	Text of type of neurological neuromuscular disorder that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58117	Psychological other psychosis type text	Text of psychological other psychosis type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58118	Other condition kidney problem type text	Text of other conditions kidney problems type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58119	Other condition cancer type text	Text of other conditions cancer type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58121	Other condition fatigue syndrome type text	Text of other conditions fatigue syndromes type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58122	Other condition other gynecological condition type text	Text of other conditions other gynecological condition type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58123	Other condition other birth defect type text	Text of other conditions birth defect type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58124	Other condition other important condition type text	Text of other conditions other important conditions type that the subject's/participant's family relative has ever been diagnosed with.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject.	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively.	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00035	Gender type	Self-reported gender of the participant/subject.	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C01522	Height measurement	Measurement of participant's/subject's height.	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.