CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 57076 - 57100 of 57153
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11923 Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score

Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11924 Modified Fatigue Impact Scale (MFIS) - difficult organize thought home work score

Scale for having had difficulty organizing thoughts when doing things at home or at work as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11925 Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11933 Modified Fatigue Impact Scale (MFIS) - total score

Total MFIS score (range: 0-84)

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C17824 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C17825 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale

Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C17826 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C00035 Gender type

Self-reported gender of the participant/subject

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C04809 Hospital discharge destination type

Type of destination on completion of stabilization/evaluation in hospital

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C05408 Hospital admission date and time

Date (and time, if applicable and known) the participant/subject was admitted to the hospital

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C06002 Inpatient treatment total day number

Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 57076 - 57100 of 57153

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.