CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 83926
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20342 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Shop travel without assistance indicator

Indicates if the child is able to shop and travel without assistance. For younger children, indicates if the child behave age appropriately outside the home.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20343 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current work school function pre-injury capacity indicator

Indicates if the child can function at work or in school at their previous capacity.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20344 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Work school restriction indicator

Indicates restrictions that apply to child's ability to work and study, including ability to work only in a sheltered workshop or non-competitive job, in a school setting for severely impaired children or tutored at home, or currently unable to work or go to school.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20345 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Reduced work school capacity indicator

Indicates reduced work or school capacity for an injured child.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20346 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current participation social leisure activity pre-injury indicator

Indicates if the child is able to resume regular social and leisure activities.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20347 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity unable participate indicator

Indicator related to being unable to participate in social and leisure activities.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20348 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity much decrease participation indicator

Indicator related to being much less able to participate in social and leisure activities.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20349 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity little decrease participation indicator

The indicator related to a bit less participate in social and leisure activities.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20350 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Family friendship psychological problem indicator

Indicates if there are psychological problems that have resulted in ongoing disruption with respect to either family or friendships

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20351 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent disruption family friendship type

The extent of disruption or strain in family and friendship due to injury.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20352 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Return normal life other problem indicator

The indicator related to other problem in returning to normal life.

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07442 Satisfaction with Life Scale (SWLS) - Life close ideal score

Score of closeness between the subject's life and the ideal life, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Concussion/Mild TBI
C07443 Satisfaction with Life Scale (SWLS) - Life condition excellence score

Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Concussion/Mild TBI
C07444 Satisfaction with Life Scale (SWLS) - Life satisfaction score

Score of subject's satisfaction with life, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Concussion/Mild TBI
C07445 Satisfaction with Life Scale (SWLS) - Life achievement score

Score of subject's achievement in life, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Concussion/Mild TBI
C07446 Satisfaction with Life Scale (SWLS) - Life change score

Score of subject's wish to change anything, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Concussion/Mild TBI
C07447 Satisfaction with Life Scale (SWLS )- Total score

Total sum of the responses to the five items (5-35), as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Concussion/Mild TBI
C07442 Satisfaction with Life Scale (SWLS) - Life close ideal score

Score of closeness between the subject's life and the ideal life, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07443 Satisfaction with Life Scale (SWLS) - Life condition excellence score

Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07444 Satisfaction with Life Scale (SWLS) - Life satisfaction score

Score of subject's satisfaction with life, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07445 Satisfaction with Life Scale (SWLS) - Life achievement score

Score of subject's achievement in life, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07446 Satisfaction with Life Scale (SWLS) - Life change score

Score of subject's wish to change anything, as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07447 Satisfaction with Life Scale (SWLS )- Total score

Total sum of the responses to the five items (5-35), as part of the Satisfaction with Life Scale (SWLS).

 Basic Satisfaction with Life Scale False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C04807 Vital status

Status of participant/subject as alive or dead

 Basic Post Discharge Status False Traumatic Brain Injury Acute Hospitalized
C04813 Return work school status

Status of participant's/subject's return to work and/or school

 Basic Post Discharge Status False Traumatic Brain Injury Epidemiology
Displaying 376 - 400 of 83926

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.