CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Disease Name

Sub Domain Name

CRF Name

84099 results.

Operations

Selected 24 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12028	Written Verbal Fluency Test (WVFT) - copy word fast possible duration	Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible	Core	Written Verbal Fluency Test	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C12028	Written Verbal Fluency Test (WVFT) - copy word fast possible duration	Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible	Supplemental	Written Verbal Fluency Test	True	Huntington's Disease	Huntington's Disease
C12028	Written Verbal Fluency Test (WVFT) - copy word fast possible duration	Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12029	Written Verbal Fluency Test (WVFT) - index value	Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words	Core	Written Verbal Fluency Test	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C12029	Written Verbal Fluency Test (WVFT) - index value	Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words	Supplemental	Written Verbal Fluency Test	True	Huntington's Disease	Huntington's Disease
C12029	Written Verbal Fluency Test (WVFT) - index value	Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12026	Written Verbal Fluency Test (WVFT) - write four letter C word four minute count	Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes	Core	Written Verbal Fluency Test	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C12026	Written Verbal Fluency Test (WVFT) - write four letter C word four minute count	Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes	Supplemental	Written Verbal Fluency Test	True	Huntington's Disease	Huntington's Disease
C12026	Written Verbal Fluency Test (WVFT) - write four letter C word four minute count	Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12025	Written Verbal Fluency Test (WVFT) - write letter S word five minute count	Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes	Core	Written Verbal Fluency Test	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C12025	Written Verbal Fluency Test (WVFT) - write letter S word five minute count	Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes	Supplemental	Written Verbal Fluency Test	True	Huntington's Disease	Huntington's Disease
C12025	Written Verbal Fluency Test (WVFT) - write letter S word five minute count	Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18122	Xray date	Date X-ray was performed	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C18123	Xray study urinary tract global result type	The result type related to the X-ray study of the urinary tract found functional and anatomical conditions	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C18123	Xray study urinary tract global result type	The result type related to the X-ray study of the urinary tract found functional and anatomical conditions	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
C18121	Xray urinary tract code	Type of x-ray of the urinary tract study performed on the urinary tract	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Exploratory	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Stroke	Stroke
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Exploratory	Demographics	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Pre-Hospital/Emergency Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Headache	Headache

84099 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.