CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2942-C58575	C58575	Activity daily living device type use indicator	Indicator whether the participant/subject currently uses the selected types of activity of daily living devices	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C58575	C58575	Activity daily living device type use indicator	Indicator whether the participant/subject currently uses the selected types of activity of daily living devices	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2069-C19144	C19144	Activity description	Description of activity	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2688-C19144	C19144	Activity description	Description of activity	Supplemental-Highly Recommended	Video Device Confirmation Form	False	Traumatic Brain Injury	Comprehensive
F2688-C19144	C19144	Activity description	Description of activity	Supplemental-Highly Recommended	Video Device Confirmation Form	False	Traumatic Brain Injury	Acute Hospitalized
F2688-C19144	C19144	Activity description	Description of activity	Supplemental-Highly Recommended	Video Device Confirmation Form	False	Traumatic Brain Injury	Epidemiology
F2688-C19144	C19144	Activity description	Description of activity	Supplemental-Highly Recommended	Video Device Confirmation Form	False	Traumatic Brain Injury	Concussion/Mild TBI
F2688-C19144	C19144	Activity description	Description of activity	Supplemental-Highly Recommended	Video Device Confirmation Form	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1723-C19145	C19145	Activity frequency	The frequency of the activity related to rehabilitation services	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19146	C19146	Activity frequency other text	The free text field related to "Activity frequency" specifying other text. The frequency of the activity	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19143	C19143	Activity other text	The free text field related to "Activity types" specifying other text. The type of activity	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F2201-C19143	C19143	Activity other text	The free text field related to "Activity types" specifying other text. The type of activity	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1875-C16057	C16057	Activity pulse grimace appearance respiration five minute child score	Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2619-C16057	C16057	Activity pulse grimace appearance respiration five minute child score	Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F1875-C16058	C16058	Activity pulse grimace appearance respiration ten minute child score	Assessment of a newborn which is recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2619-C16058	C16058	Activity pulse grimace appearance respiration ten minute child score	Assessment of a newborn which is recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F1723-C19142	C19142	Activity type	The types of activities related to rehabilitation services	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F2201-C19142	C19142	Activity type	The types of activities related to rehabilitation services	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2742-C57501	C57501	Actual recording start date	Date in which actual recording started	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1724-C19162	C19162	Acute care unit admission date	The date at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19163	C19163	Acute care unit admission time	The time at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F2387-C54396	C54396	Acute Concussion Evaluation (ACE) - ACE reporter text	Person/individual administering the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Comprehensive
F2387-C54396	C54396	Acute Concussion Evaluation (ACE) - ACE reporter text	Person/individual administering the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Acute
F2387-C54396	C54396	Acute Concussion Evaluation (ACE) - ACE reporter text	Person/individual administering the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Persistent/Chronic
F2387-C54396	C54396	Acute Concussion Evaluation (ACE) - ACE reporter text	Person/individual administering the Acute Concussion Evaluation (ACE)	Supplemental	Acute Concussion Evaluation (ACE)	False	Sport-Related Concussion	Subacute

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.