Lifestyle Assessment Questionnaire for CP (LAQ-CP of LAQ-G)
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Exploratory: Cerebral Palsy (CP)
|Short Description of Instrument||
The Lifestyle Assessment Questionnaire for CP (LAQ-CP) is a condition-specific tool used in children ages 3 – 10 years of age, designed to measure the impact of disabilities on the lives of children with cerebral palsy and their families. A 46-item questionnaire organized into six dimensions: physical independence, mobility, clinical burden, schooling, economic burden, and social integration (Mackie et al., 1998)
Does have population information as was developed and used for the UK CP registry. Population sample may be geographically biased.
The LAQ(CP) score is expressed out of 100 and is described, for ease, as a percentage score. A maximally disadvantaged child scores 100%. General descriptions of children can be mapped onto overall scores. Thus, a child with a LAQ(CP) score of 30 % would be completing most, but not all, self-help activities alone, posing little or no economic burden on the family and attending mainstream school with minimal extra assistance; a child with a 50% score would be assisted in many self-help activities, would limit the economic status of the family and would be receiving educational support; a child with a 70% score would be undertaking only very few self-help activities, would be experiencing marked economic effects through the family and would be in a specialized educational setting.
The tool was developed to provide a profile of the child with CP.
Mackie PC, Jessen EC, Jarvis SN. The lifestyle assessment questionnaire: an instrument to measure the impact of disability on the lives of children with cerebral palsy and their families. Child Care Health Dev. 1998;24(6):473-486.
Mackie PC, Jessen EC, Jarvis SN. The Lifestyle Assessment Questionnaire (LAQ-CP) Manual. Newcastle upon Tyne: North England Collaborative Cerebral Palsy Survey, 1998.
Dobhal M, Juneja M, Jain R, Sairam S, Thiagarajan D. Health-related quality of life in children with cerebral palsy and their families. Indian Pediatr. 2014;51(5):385-387.
Jessen EC, Colver AF, Mackie PC, Jarvis SN. Development and validation of a tool to measure the impact of childhood disabilities on the lives of children and their families. Child Care Health Dev. 2003;29(1):21-34.
Document last updated March 2018