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Parkinson's Disease Quality of Life Questionnaire (PDQL)
Please visit this website for more information about the instrument: Parkinson's Disease Quality of Life Questionnaire
Supplemental: Parkinson's Disease (PD)
Short Description of Instrument
The Parkinson's Disease Quality of Life Questionnaire (PDQL) is a disease-specific instrument to assess quality of life in patients with Parkinson's Disease. The PDQL is comprised of 37 items making up 4 subscales: parkinsonian symptoms (14 items); systemic symptoms (7 items); emotional functioning (9 items) and social functioning (7 items).
Comments/Special Instructions
This questionnaire has been infrequently used.
Scoring and Psychometric Properties
Scoring: Patients indicate on a 5 point Likert scale (1-all of the time; 2-most of the time; 3-some of the time; 4-a little of the time; 5-never) how often they had trouble with each respective item in the last 3 months. Higher scores indicate better HRQL.
Psychometric Properties: The questionnaire has acceptable psychometric properties and has been reported to be sensitive to change.
Strengths: Similar psychometric properties to the PDQ-39.
Weaknesses: Little validation and use outside of the developing group.
Key References:
de Boer AG, Wijker W, Speelman JD, de Haes JC. Quality of life in patients with Parkinson's disease: development of a questionnaire. J Neurol Neurosurg Psychiatry. 1996 Jul;61(1):70-4.
Hobson P, Holden A, Meara J. Measuring the impact of Parkinson's disease with the Parkinson's Disease Quality of Life questionnaire. Age Ageing. 1999 Jul;28(4):341-6.
Additional References:
Martinez-Martin P, Serrano-Duenas M, Forjaz MJ, Serrano MS. Two questionnaires for Parkinson's disease: are the PDQ-39 and PDQL equivalent? Qual Life Res. 2007 Sep;16(7):1221-30.
Reuther M, Spottke EA, Klotsche J, Riedel O, Peter H, Berger K, Athen O, Kohne-Volland R, Dodel RC. Assessing health-related quality of life in patients with Parkinson's disease in a prospective longitudinal study. Parkinsonism Relat Disord. 2007 Mar;13(2):108-14.
Serrano-Duenas M, Martinez-Martin P, Vaca-Baquero V. Validation and cross-cultural adjustment of PDQL-questionnaire, Spanish version (Ecuador) (PDQL-EV). Parkinsonism Relat Disord. 2004 Oct;10(7):433-7.
Document last updated August 2022