CDE Detailed Report
Subdomain Name: The International SCI Data Sets
CRF: International SCI Pain Extended Data Set
Displaying 1 - 45 of 45
CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
C22820 | Injury level cold other text | InjLvlColdOTH | Free-text field to indicate what other type of response the participant experiences from cold at the level of injury | Free-text field to indicate what other type of response the participant experiences from cold at the level of injury | Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C06071 | Pain interfere mood scale | PainIntrferMoodScl | Scale that evaluates to what extent pain has interfered with the participants mood | Scale that evaluates to what extent pain has interfered with the participants moo | Average pain unpleasantness in the last week | 1;10;2;3;4;5;6;7;8;9 | 1;10;2;3;4;5;6;7;8;9 | Numeric Values |
Note: This is inclusive of all pain experienced. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22831 | Pain past treatment oral topical medication type | PainPastTxOralTopMedTyp | The type of past oral and topical medication the participant received for pain | The type of past oral and topical medication the participant received for pain | Oral and topical medication | Acetaminophen;Antidepressants;Antiepileptics;Antispasticity drugs;Benzodiazepines;Cannabinoids;NSAIDS/aspirin;Opioids;Other, specify:;Topical anasthetics;Topical capsaicin;Tramadol | Acetaminophen;Antidepressants;Antiepileptics;Antispasticity drugs;Benzodiazepines;Cannabinoids;NSAIDS/aspirin;Opioids;Other, specify:;Topical anasthetics;Topical capsaicin;Tramadol | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
||||||||
C22810 | Injury below level dynamic light touch response type | InjBelLvlDynLtTouchResponsTyp | The type of response related to dynamic light touch below the level of injury | The type of response related to dynamic light touch below the level of injury | Below level of injury | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22842 | Pain current treatment side effect adverse event text | PainCurrTxSideEffAdvEventTxt | Free-text field to specify side effects or adverse events the participant is currently receiving | Free-text field to specify side effects or adverse events the participant is currently receiving | Side effects/adverse events | Alphanumeric |
For examples of treatments please see section A (Past Treatments) |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22821 | Injury level cold allodynia intensity scale | InjLvlColdAllodynIntScl | The scale related to intensity if allodynia for cold at the level of injury | The scale related to intensity if allodynia for cold at the level of injury | If allodynia, rate the intensity | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C18027 | Comment text | CmmntTxt | Provide any additional information that pertains to the question | Provide any additional information that pertains to the question | Alphanumeric |
Left or right side can be noted here. The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-16 14:01:43.01 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
||||||||||
C22832 | Pain past treatment oral topical medication other text | PainPastTxOralTopMedOTH | Free-text field to indicate the type of oral and topical medication the participant received for pain | Free-text field to indicate the type of oral and topical medication the participant received for pain | Other, specify | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22811 | Injury below level dynamic light touch other text | InjBelLvlDynLtTouchOTH | Free-text field to indicate what other type of response the participant experiences from dynamic light touch below the level of injury | Free-text field to indicate what other type of response the participant experiences from dynamic light touch below the level of injury | Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22822 | Injury below level cold response type | InjBelLvlColdResponsTyp | The type of response related to cold below the level of injury | The type of response related to cold below the level of injury | Below level of injury | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22801 | Pain last week day count | PainLastWkDayCt | The number of days the participant has experienced pain in the last week | The number of days the participant has experienced pain in the last week | Number of days with pain in the last 7 days including today | 1;2;3;4;5;6;7;None;Unknown | 1;2;3;4;5;6;7;None;Unknown | Alphanumeric |
Note: This is inclusive of all pain experienced. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22833 | Pain past treatment procedural intervention type | PainPastTxProcEDuralIntervTyp | The type of past procedural interentions the participant received for pain | The type of past procedural interentions the participant received for pain | Procedural interventions | Acupuncture;Epidural block;Intrathecal pumps;Intravenous ketamine;Intravenous lidocaine;Joint injections;Other,specify;Percutaneous Peripheral Nerve Stimulation;Peripheral nerve/motor block;Spinal cord stimulator;tDCS or rTMS;Trigger point injection/dry needling | Acupuncture;Epidural block;Intrathecal pumps;Intravenous ketamine;Intravenous lidocaine;Joint injections;Other, specify;Percutaneous Peripheral Nerve Stimulation;Peripheral nerve/motor block;Spinal cord stimulator;tDCS or rTMS;Trigger point injection/dry needling | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
||||||||
C22812 | Injury below level dynamic light touch allodynia intensity scale | InjBelLvlDynLtTchAlloIntScl | The scale related to intensity of allodynia for dynamic light touch below the level of injury | The scale related to intensity of allodynia for dynamic light touch below the level of injury | If allodynia, rate the intensity | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22823 | Injury below level cold other text | InjBelLvlColdOTH | Free-text field to indicate what other type of response the participant experiences from cold below the level of injury | Free-text field to indicate what other type of response the participant experiences from cold below the level of injury | Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22802 | Pain worst intensity past week scale | PainWrstIntensityPastWkScl | Scale for the worst pain intensity in the past week | Scale for the worst pain intensity in the past week | Worst pain intensity in the last week | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Alphanumeric |
Note: This is inclusive of all pain experienced. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22834 | Pain past treatment procedural intervention other text | PainPastTxProceduralIntervOTH | Free-text field to indicate the type of procedural interventions the participant received for pain | Free-text field to indicate the type of procedural interventions the participant received for pain | Other, specify | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22813 | Injury level pinprick response type | InjLvlPinprickResponsTyp | The type of response related to pinprick at the level of injury | The type of response related to pinprick at the level of injury | At level of injury | Absent;Hyperalgesia;Hypoalgesia;Normal;Other | Absent;Hyperalgesia;Hypoalgesia;Normal;Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22824 | Injury below level cold allodynia intensity scale | InjBelLvlColdAllodynIntScl | The scale related to intensity if allodynia for cold below the level of injury | The scale related to intensity if allodynia for cold below the level of injury | If allodynia, rate the intensity | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22803 | Pain manageable last week day count | PainMngbleLastWkDayCt | Number of days the participant had manageable pain in the last week | Number of days the participant had manageable pain in the last week | Number of days with manageable/tolerable pain in the last 7 days including today | 1;2;3;4;5;6;7;None;Unknown | 1;2;3;4;5;6;7;None;Unknown | Alphanumeric |
Note: This is inclusive of all pain experienced. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22835 | Pain past treatment surgical intervention type | PainPastTxSurgIntervTyp | The type of past surgical interventions the participant received for pain | The type of past surgical interventions the participant received for pain | Surgical interventions | Deep brain stimulation;Dorsal root entry zone lesion;Other,specify;Spinal surgery | Deep brain stimulation;Dorsal root entry zone lesion;Other, specify;Spinal surgery | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
||||||||
C22814 | Injury level pinprick other text | InjLvlPinprickOTH | Free-text field to indicate what other type of response the participant experiences from pinprick at the level of injury | Free-text field to indicate what other type of response the participant experiences from pinprick at the level of injury | Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22825 | Pain past treatment physiotherapy type | PainPastTxPhysiothTyp | The type of past physiotherapy treatment the participant received for pain | The type of past physiotherapy treatment the participant received for pain | Physiotherapy | Aerobic exercise;Joint mobilization/manipulation;Other, specify;Passive exercise;Position adjustment;Resistance exercise | Aerobic exercise;Joint mobilization/manipulation;Other specify;Passive exercise;Position adjustment;Resistance exercise | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
||||||||
C22804 | Pain present eleven point intensity scale | PainPrsnt11IntensityScl | Scale for the participant's current pain intensity based on an a scale of 0-10 | Scale for the participant's current pain intensity based on an a scale of 0-10 | Pain intensity in the present moment | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Numeric Values |
0 = no pain; 10 = the most intense pain imaginable |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 4.00 | 2023-05-18 16:39:30.0 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22836 | Pain past treatment surgical intervention other text | PainPastTxSurgIntervOTH | Free-text field to indicate the type of surgical interventions the participant received for pain | Free-text field to indicate the type of procedural Free-text field to indicate the type of surgical interventions the participant received for pain | Other, specify | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22815 | Injury level pinprick hyperalgesia intensity scale | InjLvlPinprickHyperalIntScl | The scale related to intensity if hyperalgesia for pinprick at the level of injury | The scale related to intensity if hyperalgesia for pinprick at the level of injury | If hyperalgesia, rate the intensity | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22826 | Pain past treatment physiotherapy other text | PainPastTxPhysiothOTH | Free-text field to indicate the type of other pastphysiotherapy treatment the participant received for pain | Free-text field to indicate the type of other pastphysiotherapy treatment the participant received for pain | Other, specify | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22805 | Pain average duration | PainAverageDur | How long the participant's pain usually lasts | How long the participant's pain usually lasts | How long does your pain usually last | <1 minute;> 1 hr but < 24 hrs;> 1 min but < 1 hr;Constant or continuous;Unknown | <1 minute;> 1 hr but < 24 hrs;> 1 min but < 1 hr;Constant or continuous;Unknown | Alphanumeric |
Please note that if there is more than one pain, this section should be consistent with the International Spinal Cord Injury Pain Basic Data Set and apply to Worst, 2nd Worst and 3rd Worst pains. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22837 | Pain past treatment other text | PainPastTxOTH | Free-text field to specify other types of treatment participant received for pain | Free-text field to specify other types of treatment participant received for pain | Other treatments, specify | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22816 | Injury below pinprick response type | InBeljLvlPinprickResponsTyp | The type of response related to pinprick below the level of injury | The type of response related to pinprick below the level of injury | Below level of injury | Absent;Hyperalgesia;Hypoalgesia;Normal;Other | Absent;Hyperalgesia;Hypoalgesia;Normal;Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22827 | Pain past treatment passive stimulation therapy type | PainPastTxPassStimTherTyp | The type of past passive and stimulation therapy treatment the participant received for pain | The type of past passive and stimulation therapy treatment the participant received for pain | Passive and stimulation therapy | Acupressure;Heat therapy;Laser;Massage;Other, specify:;TES, TNS, TENS;Ultrasound | Acupressure;Heat therapy;Laser;Massage;Other, specify:;TES, TNS, TENS;Ultrasound | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016 Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
||||||||
C22806 | Pain most intense day time period type | PainMostIntenseDayTmPerTyp | Time of day the participant's pain is most intense | Time of day the participant's pain is most intense | When during the day is the pain most intense | Morning;Afternoon;Evening;Night;Unpredictable | Between 6.01 am and 12.00 am (06.01 and 12.00);Between 12.01 am and 6.00 pm (12.01 and 18.00);Between 6.01 pm and 12.00 pm (18.01 and 24.00);Between 0.01 am and 6.00 am (00.01 and 06.00);Pain is not consistently more intense at any one time of day | Alphanumeric |
Please note that if there is more than one pain, this section should be consistent with the International Spinal Cord Injury Pain Basic Data Set and apply to Worst, 2nd Worst and 3rd Worst pains. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22838 | Pain current treatment text | PainCurrTxTxt | Free-text field to specify treatments the participant is currently receiving | Free-text field to specify treatments the participant is currently receiving | Treatment | Alphanumeric |
For examples of treatments please see section A (Past Treatments) |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 500 |
Free-Form Entry |
|||||||||
C22817 | Injury below level pinprick other text | InjBelLvlPinprickOTH | Free-text field to indicate what other type of response the participant experiences from pinprick below the level of injury | Free-text field to indicate what other type of response the participant experiences from pinprick below the level of injury | Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22828 | Pain past treatment passive stimulaiton therapy other text | PainPastTxPassStimTherOTH | Free-text field to indicate the type of other past passive and stimulation therapy treatment the participant received for pain | Free-text field to indicate the type of other past passive and stimulation therapy treatment the participant received for pain | Other, specify | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22807 | Injury level dynamic light touch response type | InjLvlDynLtTouchResponsTyp | The type of response related to dynamic light touch at the level of injury | The type of response related to dynamic light touch at the level of injury | At level of injury | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22839 | Pain current treatment dose text | PainCurrTxDoseTxt | Free-text field to specify dose of treatments the participant is currently receiving | Free-text field to specify dose of treatments the participant is currently receiving | Dose | Alphanumeric |
For examples of treatments please see section A (Past Treatments) |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 20 |
Free-Form Entry |
|||||||||
C22818 | Injury below pinprick hyperalgesia intensity scale | InjBelLvlPprickHyperalIntScl | The scale related to intensity if hyperalgesia for pinprick below the level of injury | The scale related to intensity if hyperalgesia for pinprick below the level of injury | If hyperalgesia, rate the intensity | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22829 | Pain past treatment relaxation psychotherapy type | PainPastTxRelxPsychothTyp | The type of past relaxation and psychotherapy treatment the participant received for pain | The type of past relaxation and psychotherapy treatment the participant received for pain | Relaxation and psychotherapy | Biofeedback/Relaxation Training;Cognitive/Behavioral therapy;Hypnosis;Meditation;Mindfulness meditation;Other psychotherapy;Other,specify;Relaxation | Biofeedback/Relaxation Training;Cognitive/Behavioral therapy;Hypnosis;Meditation;Mindfulness meditation;Other psychotherapy;Other, specify;Relaxation | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
||||||||
C22808 | Injury level dynamic light touch other text | InjLvlDynLtTouchOTH | Free-text field to indicate what other type of response the participant experiences from dynamic light touch at the level of injury | Free-text field to indicate what other type of response the participant experiences from dynamic light touch at the level of injury | Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22840 | Pain current treatment frequency text | PainCurrTxFreqTxt | Free-text field to specify frequency of treatments the participant is currently receiving | Free-text field to specify frequency of treatments the participant is currently receiving | How Often | Alphanumeric |
For examples of treatments please see section A (Past Treatments) |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 50 |
Free-Form Entry |
|||||||||
C22819 | Injury level cold response type | InjLvlColdResponsTyp | The type of response related to cold at the level of injury | The type of response related to cold at the level of injury | At level of injury | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Absent;Allodynia;Hyperesthesia;Hypoesthesia;Normal;Other | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C06005 | Data collected date and time | DataCollDateTime | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performe | Date of data collection | Date or Date & Time | WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Siddall PJ. The International Spinal Cord Injury Pain Basic Data Set (version 2.0). Spinal Cord. 2014 Apr;52(4):282-6. doi: 10.1038/sc.2014.4. | Adult | Supplemental | 3.00 | 2013-07-24 21:00:23.88 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
|||||||||||
C22830 | Pain past treatment relaxation psychotherapy other text | PainPastTxRexPsychothOTH | Free-text field to indicate the type of other past relaxation and psychotherapy treatment the participant received for pain | Free-text field to indicate the type of other past relaxation and psychotherapy treatment the participant received for pain | Other, specify | Alphanumeric |
This section can either be filled out for overall pain or for each separate pain component (Overall, Worst, 2nd Worst, 3rd Worst). Please indicate previous treatments (over the last 12 months) and whether the treatment was helpful with Y (yes, helpful), N (Not helpful) or U (Uncertain/Unknown). Leave blank if treatment was not performed. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
|||||||||
C22809 | Injury level dynamic light touch allodynia intensity scale | InjLvlDynLtTouchAlloIntScl | The scale related to intensity if allodynia for dynamic light touch at the level of injury | The scale related to intensity if allodynia for dynamic light touch at the level of injury | If allodynia, rate the intensity | 0;1;10;2;3;4;5;6;7;8;9 | 0;1;10;2;3;4;5;6;7;8;9 | Alphanumeric |
The sensory bedside assessment includes abnormal responses to light touch, pinprick and cold sensation compared with a non-affected control area above the level of injury. The sensory measures were intentionally selected to be appropriate for bedside examination and to detect and quantify sensory abnormalities: mechanical allodynia (pain in response to an innocuous mechanical stimulus), mechanical hyperalgesia (exaggerated response to a painful mechanical stimulus) and thermal allodynia (pain in response to an innocuous thermal stimulus) commonly associated with neuropathic pain types. |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
||||||||
C22841 | Pain current treatment Patient Global Impression Change text | PainCurrTxPGICTxt | Free-text field to specify the Patient Global Impression of Change (PGIC) of treatments the participant is currently receiving | Free-text field to specify the Patient Global Impression of Change (PGIC) of treatments the participant is currently receiving | PGIC | (1) - Very much improved;(2) - Much improved;(3) - Minimally improved;(4) - No change;(5) - Minimally worse;(6) - Much worse;(7) - Very much worse | (1) - Very much improved;(2) - Much improved;(3) - Minimally improved;(4) - No change;(5) - Minimally worse;(6) - Much worse;(7) - Very much worse | Alphanumeric |
Indicate the effect of the treatment on your global well-being using one of the following descriptors: |
WiderstrÖm-Noga E, Biering-SØrensen F, Bryce TN, Cardenas DD, Finnerup NB, Jensen MP, Richards JS, Richardson EJ, Siddall PJ. The International Spinal Cord <br />Injury Pain Extended Data Set (Version 1.0). Spinal Cord. 2016<br />Nov;54(11):1036-1046. doi: 10.1038/sc.2016.51. PubMed PMID: 27067653. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Pain Extended Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |