CDE Detailed Report
Disease: Spinal Cord Injury
Subdomain Name: The International SCI Data Sets
CRF: International SCI Activities and Participation Basic Data Set
Displaying 1 - 16 of 16
Subdomain Name: The International SCI Data Sets
CRF: International SCI Activities and Participation Basic Data Set
Displaying 1 - 16 of 16
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C06000 | Site identifier number | SiteIDNum | Unique identification number given to the study site to distinguish the location where data is recorded | Unique identification number given to the study site to distinguish the location where data is recorde | Site | Alphanumeric | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C19486 | Leisure activity hour week count | LeisureActivityHourWeekCt | The number of hours per week of spare time activities | The number of hours per week of spare time activitie | Spare time activities | Numeric Values |
ACTIHRWK |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
0 | 168 | hours | ||||||||
| C06005 | Data collected date and time | DataCollDateTime | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performe | Date of data collection | Date or Date & Time |
DATACLDT |
Adult | Supplemental | 3.00 | 2013-07-24 21:00:23.88 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
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| C19487 | Relationship family contact count | RelationshipFamilyContactCt | The number of family members in contact with | The number of family members in contact wit | Family relationship | Numeric Values |
FAMRELCT |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
0 | 500 | |||||||||
| C19247 | Subject ID | SubIDNam | Subject identification ID | Subject identification ID | Subject | Alphanumeric | Adult | Supplemental | 1.00 | 2014-06-05 13:10:49.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C19488 | Relationship friend contact count | RelationshipFriendContactCt | The number of friends in contact with | The number of friends in contact wit | Friends relationships | Numeric Values |
FRIRELCT |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
0 | 500 | |||||||||
| C19478 | Spinal cord injury performance rate scale | SCIPerformanceRateScl | The performance or satisfaction rating after spinal cord injuiry | The performance or satisfaction rating after spinal cord injuir | Performance rating | Not applicable;Somewhat satisfied;Not satisfied;Unknown;Very satisfied | Not applicable;Somewhat satisfied;Not satisfied;Unknown;Very satisfied | Alphanumeric |
PERFRATE |
Adult | Supplemental | 1.00 | 2014-06-17 22:19:09.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19489 | Relationship spouse status | RelationshipSpouseStatus | The status of spousal relationship | The status of spousal relationshi | Spousal relationship | Married/living together;No relationship;Romantic relationship, not living together;Unknown | Married/living together;No relationship;Romantic relationship, not living together;Unknown | Alphanumeric |
SPOUSREL |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19479 | Spinal cord injury mobility moderate distance status | SCIMobilityModerDistanceStatus | The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury | The status related to mobility for moderate distances (10-100 meters) related to spinal cord injur | Mobility moderate distances | Moves independently in manual wheelchair;Needs electric wheelchair or partial assistance to operate manual wheelchair;Needs leg orthosis only;Requires supervision while walking (with or without devices);Requires total assistance;Unknown;Walks with a walking frame or crutches (swing);Walks with crutches or two canes (reciprocal walking);Walks with one cane;Walks without walking aids | Moves independently in manual wheelchair;Needs electric wheelchair or partial assistance to operate manual wheelchair;Needs leg orthosis only;Requires supervision while walking (with or without devices);Requires total assistance;Unknown;Walks with a walking frame or crutches (swing);Walks with crutches or two canes (reciprocal walking);Walks with one cane;Walks without walking aids | Alphanumeric |
MOBILMOD 10-100 meters |
Adult | Supplemental | 1.00 | 2014-06-17 22:24:51.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19490 | Spinal cord injury toileting assessment status | SCIToiletingAssessmentStatus | The status related to toileting and spinal cord injury | The status related to toileting and spinal cord injur | Toileting | Independent in all tasks, but needs adaptive equipment or special setting;Independent, does not need adaptive equipment or special setting;Requires partial assistance, cleans self independently;Requires partial assistance, does not clean self;Requires total assistance | Independent in all tasks, but needs adaptive equipment or special setting (eg bars);Independent, does not need adaptive equipment or special setting;Requires partial assistance, cleans self independently;Requires partial assistance, does not clean self;Requires total assistance | Alphanumeric |
TOILETIN |
Adult | Supplemental | 1.00 | 2014-06-17 23:08:17.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19480 | Spinal cord injury dressing lower body status | SCIDressingLowerBodyStatus | The status related to spinal cord injur and dressing lower body | The status related to spinal cord injur and dressing lower bod | Dressing lower body | Dresses (any clothes) independently - does not require adss;Independent with cwobzl - does not require adss - needs assistance or adss only for bzl;Independent with cwobzl - requires adaptive devices and/or specific settings (adss);Requires partial assistance with clothes without buttons, zippers and laces (cwobzl);Requires total assistance;Unknown | Dresses (any clothes) independently - does not require adss;Independent with cwobzl - does not require adss - needs assistance or adss only for bzl;Independent with cwobzl - requires adaptive devices and/or specific settings (adss);Requires partial assistance with clothes without buttons, zippers and laces (cwobzl);Requires total assistance;Unknown | Alphanumeric |
DRESLBDY |
Adult | Supplemental | 1.00 | 2014-06-17 22:32:44.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19481 | Spinal cord injury feeding ability status | SCIFeedingAbilityStatus | The status for feeding ability and spinal cord injury | The status for feeding ability and spinal cord injur | Feeding | Eats and drinks independently - does not require assistance or adaptive devices;Eats independently - needs adaptive devices or assistance only for cutting food and/or pouring and/or opening containers;Needs parenteral, gastrostomy or fully assisted oral feeding;Needs partial assistance with eating and/or drinking or for putting on/taking off adaptive device(s) needed for eating and/or drinking;Unknown | Eats and drinks independently - does not require assistance or adaptive devices;Eats independently - needs adaptive devices or assistance only for cutting food and/or pouring and/or opening containers;Needs parenteral, gastrostomy or fully assisted oral feeding;Needs partial assistance with eating and/or drinking or for putting on/taking off adaptive device(s) needed for eating and/or drinking;Unknown | Alphanumeric |
FEEDING |
Adult | Supplemental | 1.00 | 2014-06-17 22:38:23.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19482 | Paid work hour week count | PaidWorkHourWeekCt | The number of hours per week in paid work | The number of hours per week in paid wor | Paid work | Numeric Values |
PWRKHRWK |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
0 | 168 | Hours per week | ||||||||
| C19483 | Volunteer work hour week count | VolunteerWorkHourWeekCt | The number of hours per week in volunteer work | The number of hours per week in volunteer wor | Volunteer work | Numeric Values |
VWRKHRWK |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
0 | 168 | hours | ||||||||
| C19484 | Household work hour week count | HouseholdWorkHourWeekCt | The number of hours per week in household work | The number of hours per week in household wor | Household | Numeric Values |
HHOLHRWK |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
0 | 168 | hours | ||||||||
| C19485 | Education study hour week count | EducationStudyHourWeekCt | The number of hours per week in educational study | The number of hours per week in educational stud | Education | Numeric Values |
EDUCHRWK |
Adult | Supplemental | 1.00 | 2014-06-17 22:42:01.0 | International SCI Activities and Participation Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
0 | 168 | hours |
