CDE Detailed Report

Disease: Spinal Cord Injury
Sub-Domain: The International SCI Data Sets
CRF: International SCI Activities and Participation Basic Data Set

Displaying 1 - 16 of 16
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C19489 Relationship spouse status RelationshipSpouseStatus The status of spousal relationship. The status of spousal relationship. Spousal relationship Married/living together;No relationship;Romantic relationship, not living together;Unknown Married/living together;No relationship;Romantic relationship, not living together;Unknown Alphanumeric

SPOUSREL

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19479 Spinal cord injury mobility moderate distance status SCIMobilityModerDistanceStatus The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury. The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury. Mobility moderate distances Moves independently in manual wheelchair;Needs electric wheelchair or partial assistance to operate manual wheelchair;Needs leg orthosis only;Requires supervision while walking (with or without devices);Requires total assistance;Unknown;Walks with a walking frame or crutches (swing);Walks with crutches or two canes (reciprocal walking);Walks with one cane;Walks without walking aids Moves independently in manual wheelchair;Needs electric wheelchair or partial assistance to operate manual wheelchair;Needs leg orthosis only;Requires supervision while walking (with or without devices);Requires total assistance;Unknown;Walks with a walking frame or crutches (swing);Walks with crutches or two canes (reciprocal walking);Walks with one cane;Walks without walking aids Alphanumeric

MOBILMOD 10-100 meters

Adult Supplemental 1.00 2014-06-17 22:24:51.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19490 Spinal cord injury toileting assessment status SCIToiletingAssessmentStatus The status related to toileting and spinal cord injury. The status related to toileting and spinal cord injury. Toileting Independent in all tasks, but needs adaptive equipment or special setting;Independent, does not need adaptive equipment or special setting;Requires partial assistance, cleans self independently;Requires partial assistance, does not clean self;Requires total assistance Independent in all tasks, but needs adaptive equipment or special setting (eg bars);Independent, does not need adaptive equipment or special setting;Requires partial assistance, cleans self independently;Requires partial assistance, does not clean self;Requires total assistance Alphanumeric

TOILETIN

Adult Supplemental 1.00 2014-06-17 23:08:17.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19480 Spinal cord injury dressing lower body status SCIDressingLowerBodyStatus The status related to spinal cord injur and dressing lower body. The status related to spinal cord injur and dressing lower body. Dressing lower body Dresses (any clothes) independently - does not require adss;Independent with cwobzl - does not require adss - needs assistance or adss only for bzl;Independent with cwobzl - requires adaptive devices and/or specific settings (adss);Requires partial assistance with clothes without buttons, zippers and laces (cwobzl);Requires total assistance;Unknown Dresses (any clothes) independently - does not require adss;Independent with cwobzl - does not require adss - needs assistance or adss only for bzl;Independent with cwobzl - requires adaptive devices and/or specific settings (adss);Requires partial assistance with clothes without buttons, zippers and laces (cwobzl);Requires total assistance;Unknown Alphanumeric

DRESLBDY

Adult Supplemental 1.00 2014-06-17 22:32:44.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19481 Spinal cord injury feeding ability status SCIFeedingAbilityStatus The status for feeding ability and spinal cord injury. The status for feeding ability and spinal cord injury. Feeding Eats and drinks independently - does not require assistance or adaptive devices;Eats independently - needs adaptive devices or assistance only for cutting food and/or pouring and/or opening containers;Needs parenteral, gastrostomy or fully assisted oral feeding;Needs partial assistance with eating and/or drinking or for putting on/taking off adaptive device(s) needed for eating and/or drinking;Unknown Eats and drinks independently - does not require assistance or adaptive devices;Eats independently - needs adaptive devices or assistance only for cutting food and/or pouring and/or opening containers;Needs parenteral, gastrostomy or fully assisted oral feeding;Needs partial assistance with eating and/or drinking or for putting on/taking off adaptive device(s) needed for eating and/or drinking;Unknown Alphanumeric

FEEDING

Adult Supplemental 1.00 2014-06-17 22:38:23.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19482 Paid work hour week count PaidWorkHourWeekCt The number of hours per week in paid work. The number of hours per week in paid work. Paid work Numeric Values

PWRKHRWK

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 168 Hours per week
C19483 Volunteer work hour week count VolunteerWorkHourWeekCt The number of hours per week in volunteer work. The number of hours per week in volunteer work. Volunteer work Numeric Values

VWRKHRWK

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 168 hours
C19484 Household work hour week count HouseholdWorkHourWeekCt The number of hours per week in household work. The number of hours per week in household work. Household Numeric Values

HHOLHRWK

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 168 hours
C19485 Education study hour week count EducationStudyHourWeekCt The number of hours per week in educational study. The number of hours per week in educational study. Education Numeric Values

EDUCHRWK

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 168 hours
C06000 Site identifier number SiteIDNum Unique identification number given to the study site to distinguish the location where data is recorded. Unique identification number given to the study site to distinguish the location where data is recorded. Site Alphanumeric Adult Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets 255

Free-Form Entry

C19486 Leisure activity hour week count LeisureActivityHourWeekCt The number of hours per week of spare time activities. The number of hours per week of spare time activities. Spare time activities Numeric Values

ACTIHRWK

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 168 hours
C06005 Data collected date and time DataCollDateTime Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed. Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed. Date of data collection Date or Date & Time

DATACLDT

Adult Supplemental 3.00 2013-07-24 21:00:23.88 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

C19487 Relationship family contact count RelationshipFamilyContactCt The number of family members in contact with. The number of family members in contact with. Family relationship Numeric Values

FAMRELCT

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 500
C19247 Subject ID SubIDNam Subject identification ID Subject identification ID Subject Alphanumeric Adult Supplemental 1.00 2014-06-05 13:10:49.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets 255

Free-Form Entry

C19488 Relationship friend contact count RelationshipFriendContactCt The number of friends in contact with. The number of friends in contact with. Friends relationships Numeric Values

FRIRELCT

Adult Supplemental 1.00 2014-06-17 22:42:01.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 500
C19478 Spinal cord injury performance rate scale SCIPerformanceRateScl The performance or satisfaction rating after spinal cord injuiry. The performance or satisfaction rating after spinal cord injuiry. Performance rating Not applicable;Somewhat satisfied;Not satisfied;Unknown;Very satisfied Not applicable;Somewhat satisfied;Not satisfied;Unknown;Very satisfied Alphanumeric

PERFRATE

Adult Supplemental 1.00 2014-06-17 22:19:09.0 International SCI Activities and Participation Basic Data Set The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

CSV