CDE Detailed Report

Disease: Cerebral Palsy
Sub-Domain: Family and Environment
CRF: Child and Adolescent Scale of Environment (CASE)

Displaying 1 - 31 of 31
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C50424 Child and Adolescent Scale of Environment (CASE) - Relative name CASERelName Name of participant/subject's relative, or the person filling out the scale, as part of the Child and Adolescent Scale of Environment (CASE). Name of participant/subject's relative, or the person filling out the scale, as part of the Child and Adolescent Scale of Environment (CASE). Your Name Alphanumeric 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:14:59.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points 100

Free-Form Entry

C50435 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of assistance people home community indicator CASEInadLackAsstHomeComInd The indicator relating to there being an inadequate amount or lack of assistance from people at home or in the child's community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being an inadequate amount or lack of assistance from people at home or in the child's community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of assistance from people at home or in the community or neighborhood Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50824 Child and Adolescent Scale of Environment (CASE) - Physical social environment support description text CASEPhysSocEnvirDescTxt The free-text field describing support for the child in the physical or social environment, as part of the Child Adolescent Scale of Environment (CASE) The free-text field describing support for the child in the physical or social environment, as part of the Child Adolescent Scale of Environment (CASE) Other problems or comments (please specify): Alphanumeric 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points 4000

Free-Form Entry

C50425 Child and Adolescent Scale of Environment (CASE) - Relationship text CASERelateTxt Text describing your relationship to the participant/subject, as part of the Child and Adolescent Scale of Environment (CASE). Text describing your relationship to the participant/subject, as part of the Child and Adolescent Scale of Environment (CASE). Your relationship to child Alphanumeric 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:15:52.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points 100

Free-Form Entry

C50436 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of assistance people school work indicator CASEInadLackAssPplSchoWorkInd The indicator relating to there being an inadequate amount or lack or assistance from people at school or work, depending on which is chosen, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being an inadequate amount or lack or assistance from people at school or work, depending on which is chosen, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of assistance from people at school or work (choose school or work) Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50825 Child and Adolescent Scale of Environment (CASE) - Total item level score CASETotalItemLevelScore The total of the current score based item-level scores, as part of the Child Adolescent Scale of Environment (CASE). The total of the current score based item-level scores, as part of the Child Adolescent Scale of Environment (CASE). Other problems or comments (please specify): Numeric Values 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Free-Form Entry

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C50426 Child and Adolescent Scale of Environment (CASE) - Home design layout problem indicator CASEHomeDesLayProbInd The indicator relating to the child having a problem with the design or layout of his/her home, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to the child having a problem with the design or layout of his/her home, as part of the Child Adolescent Scale of Environment (CASE) Problem with design and layout of home (Hard to get to places and things, or hard to see or hear important information) Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50437 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of transportation indicator CASEInadLackTrsptInd The indicator relating to there being an inadequate amount or lack of transportation for the child, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being an inadequate amount or lack of transportation for the child, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of transportation Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50826 Child and Adolescent Scale of Environment (CASE) - Total summary score CASETotalSummaryScore The total summary score is summing the items responses that are applicable and dividing by maximum possible score and then multiplying this number by 100 to conform to a 100-point scale. The total summary score is summing the items responses that are applicable and dividing by maximum possible score and then multiplying this number by 100 to conform to a 100-point scale. Other problems or comments (please specify): Numeric Values 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Free-Form Entry

0 100
C50427 Child and Adolescent Scale of Environment (CASE) -Community building place design layout problem indicator CASEBuildPlaceDesLayProbInd The indicator relating to the child having a problem with the design or layout of buildings or places that he or she uses in his/her community of neighborhood, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to the child having a problem with the design or layout of buildings or places that he or she uses in his/her community of neighborhood, as part of the Child Adolescent Scale of Environment (CASE) Problem with design and layout of buildings and places your child uses in the community or neighborhood Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50438 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of program service school indicator CASEInadLackProgServSchoolInd The indicator relating to there being an inadequate amount or lack of programs or services for the child at school, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being an inadequate amount or lack of programs or services for the child at school, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of programs or services at school Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50827 Child and Adolescent Scale of Environment (CASE) - Composite score CASECompositeScore The total of the current score based item-level scores for a subsection, as part of the Child Adolescent Scale of Environment (CASE). The total of the current score based item-level scores for a subsection, as part of the Child Adolescent Scale of Environment (CASE). Other problems or comments (please specify): Numeric Values 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Free-Form Entry

0 42
C50428 Child and Adolescent Scale of Environment (CASE) - School work design layout problem indicator CASESchoolWorkDesLayProbInd The indicator relating to the child having a problem with the design or layout of his/her school or workplace, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to the child having a problem with the design or layout of his/her school or workplace, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE) Problem with design or layout of school or work setting (Circle school or work) Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50439 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of program service community indicator CASEInadLackProgSrvcComtyInd The indicator relating to there being an inadequate amount or lack of programs or services for the child in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being an inadequate amount or lack of programs or services for the child in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of programs or services in the community or neighborhood Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50828 Child and Adolescent Scale of Environment (CASE) - Composite school score CASECompositeSchoolScore The total score for children who are in school only, as part of the Child Adolescent Scale of Environment (CASE). The total score for children who are in school only, as part of the Child Adolescent Scale of Environment (CASE). Other problems or comments (please specify): Numeric Values 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Free-Form Entry

0 15
C50429 Child and Adolescent Scale of Environment (CASE) - School work question type CASESchoolWorkQuesTyp The type of setting relating to the school or work question being asked, as part of the as part of the Child Adolescent Scale of Enviroment (CASE) The type of setting relating to the school or work question being asked, as part of the as part of the Child Adolescent Scale of Enviroment (CASE) Choose school or work Alphanumeric

Choose school or work

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:21:13.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50440 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of family finance indicator CASEInadLackFmlyFinInd The indicator relating to the child's family having inadequate or a lack of family finances, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to the child's family having inadequate or a lack of family finances, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of family finances Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50829 Child and Adolescent Scale of Environment (CASE) - Composite youth transition score CASECompositeYouthTransScore The total score for questions applicable only to youth in transition to work, as part of the Child Adolescent Scale of Environment (CASE). The total score for questions applicable only to youth in transition to work, as part of the Child Adolescent Scale of Environment (CASE). Other problems or comments (please specify): Numeric Values 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Free-Form Entry

0 12
C50430 Child and Adolescent Scale of Environment (CASE) - Child community support encouragement lack indicator CASEChldComtySuprtEnLackInd The indicator relating to the child lacking support or encouragement in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to the child lacking support or encouragement in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) Lack of support or encouragement for your child in the community or neighborhood Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50441 Child and Adolescent Scale of Environment (CASE) - Family stress indicator CASEFmlyStressInd The indicator relating to the child having stress from his/her family, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to the child having stress from his/her family, as part of the Child Adolescent Scale of Environment (CASE) Family stress Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50830 Child and Adolescent Scale of Environment (CASE) - Composite all children youth score CASECompositeAllChYouScore The total composite score for applicable for all children and youth, as part of the Child Adolescent Scale of Environment (CASE). The total composite score for applicable for all children and youth, as part of the Child Adolescent Scale of Environment (CASE). Other problems or comments (please specify): Numeric Values 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Free-Form Entry

0 39
C50431 Child and Adolescent Scale of Environment (CASE) - Child school work support encouragement lack indicator CASEChldSchWorkSuprtEncLackInd The indicator relating to the child lacking support or encouragement at school or work, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to the child lacking support or encouragement at school or work, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE) Lack of support for your child or school or work (Circle school or work) Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50442 Child and Adolescent Scale of Environment (CASE) - Crime violence community neighborhood indicator CASECrmVlCmmNghInd The indicator relating to crime or violence in the community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to crime or violence in the community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) Crime or violence in the community or neighborhood Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50432 Child and Adolescent Scale of Environment (CASE) - School work attitude towards child problem indicator CASESchWorkAttTowChldProbInd The indicator relating to there being a problem with other people's attitudes towards the child at school or work, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being a problem with other people's attitudes towards the child at school or work, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE) Problems with people's attitudes towards your child at school or work (Circle school or work) Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50443 Child and Adolescent Scale of Environment (CASE) - Government agency policy problem indicator CASEGovtAgenPolicyProbInd The indicator relating to child having problems with government agencies and policies, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to child having problems with government agencies and policies, as part of the Child Adolescent Scale of Environment (CASE) Problems with government agencies and policies Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C06005 Data collected date and time DataCollDateTime Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed. Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed. Date you completed survey Date or Date & Time

When date/time data are prepared for aggregation or sharing they should be converted to the format specified by ISO 8601, YYYY-MM-DDThh:mm:ss.

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 3.00 2013-07-24 21:00:23.88 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Free-Form Entry

C50433 Child and Adolescent Scale of Environment (CASE) - Community attitude towards child problem indicator CASEComtyAttTowChldProbInd The indicator relating to there being a problem with other people's attitudes towards the child in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being a problem with other people's attitudes towards the child in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE) Problems with people's attitudes towards your child in the community or neighborhood Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50444 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of information child diagnosis condition intervention approach indicator CASEInaLacInfChiDiaConIntApInd The indicator relating to there being an inadequate amount or lack of information about the child's diagnosis or condition or interventions or approaches, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being an inadequate amount or lack of information about the child's diagnosis or condition or interventions or approaches, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of information about your child's diagnosis or condition or intervention approaches (e.g., educational, rehabilitation or medical) Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50423 Child and Adolescent Scale of Environment (CASE) - Child name CASEChldName Name of participant/subject, as part of the Child and Adolescent Scale of Environment (CASE). Name of participant/subject, as part of the Child and Adolescent Scale of Environment (CASE). Child's Name Alphanumeric 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:14:14.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points 100

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C50434 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of assistive device equipment indicator CASEInadLackAssistDevEquipInd The indicator relating to there being an inadequate amount or lack of assistive devices or equipment for the child, as part of the Child Adolescent Scale of Environment (CASE) The indicator relating to there being an inadequate amount or lack of assistive devices or equipment for the child, as part of the Child Adolescent Scale of Environment (CASE) Inadequate or lack of assistive devices or equipment Alphanumeric

Please put an X in the box under the appropriate column

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points

Single Pre-Defined Value Selected

C50445 Child and Adolescent Scale of Environment (CASE) - Problem comment other text CASEProbCommOTH The free-text field describing any other problems or comments about the child, as part of the Child Adolescent Scale of Environment (CASE) The free-text field describing any other problems or comments about the child, as part of the Child Adolescent Scale of Environment (CASE) Other problems or comments (please specify): Alphanumeric 1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and participation in children and youths with acquired brain injuries. International Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants or children and youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in press). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF framework to study changes in quality-of-life in children with chronic conditions. Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase. Brain Injury, 20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., & Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity and policy barriers. Archives of Physical Medicine and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning, Disability and Health – Children and Youth Version. Geneva: World Health Organization. Adult;Pediatric Supplemental 1.00 2016-07-26 11:16:40.0 Child and Adolescent Scale of Environment (CASE) Family and Environment Outcomes and End Points 255

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CSV