CDE Detailed Report

Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Cognitive
CRF: Frontal Systems Behavioral Scale (FrSBe)

Displaying 51 - 63 of 63
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C21007 Frontal Systems Behavior Scale (FrSBE) - Forgetful until prompt frequency scale FrSBeForgetUnlessPromptedFreq Frequency of forgetting to do things but then remembering when prompted or when it is too late as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of forgetting to do things but then remembering when prompted or when it is too late as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Forgets to do things but then remembers when prompted or when it is too late 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21103 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale invalid score indicator FrSBeScaleDInvalidInd Indicator if Disinhibition subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE) Indicator if Disinhibition subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE) Disinhibition subscale invalid indicator No;Yes;Unknown No;Yes;Unknown Numeric Values

If the total number of missing items is 6 or more, the FrSBe can? not be appropriately scored or interpreted and should therefore be considered invalid. Otherwise, assign an item raw score value of "1" for each of the 5 or fewer items with missing responses on the scoring sheet. If there are 3 or more items with missing responses on a particular subscale (A, D, or E), that subscale should be considered invalid and should not be interpreted. However, BEFORE and AFTER raw scores for that subscale should still be calculated (by assigning item raw score values of "1" to the missing items) and used in the calculation of the FrSBe Total score, as long as the total number of missing items on the rating form does not exceed 5.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21032 Frontal Systems Behavior Scale (FrSBE) - Action thoughtful frequency scale FrSBeThinkBeforeActingFreq Frequency of thinking things through before acting (for example, considers finances before spending money) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of thinking things through before acting (for example, considers finances before spending money) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Thinks things through before acting (for example, considers finances before spending money) 5;4;3;2;1 Almost never;Seldom;Sometimes;Frequently;Almost always Numeric Values

Reverse scoring. The instructions may be simplified or repeated as often as necessary until the rater fully understands them. As noted earlier, the examiner should remain available to answer any questions the patient or rater may have (regardless of any cognitive limitations they may have) as they complete the appropriate rating form. It should be noted that there is a visual break on the second page of each rating form between Items 32 and 33, along with the instruction "Read each of the following items carefully before responding." This is to ensure that the rater is alert to the shift in item content, namely from items reflecting negative or maladaptive behaviors (Items 1-32) to items reflecting more positive or adaptive behaviors (Items 33-46). It is recommended that the examiner visually inspect the rater's responses to Items 33-46 to confirm that the pattern of ratings has changed in the appropriate direction. If it appears that the rater has not responded to these items in the expected direction, then the examiner should review with the rater his or her individual responses to these items.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21053 Frontal Systems Behavior Scale (FrSBE) - Age appropriate behavior frequency scale FrSBeActsAppropriatAgeFreq Frequency of acting appropriately for his/her age as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Frequency of acting appropriately for his/her age as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Acts appropriately for his/her age 5;4;3;2;1 Almost never;Seldom;Sometimes;Frequently;Almost always Numeric Values

Reverse scoring. The instructions may be simplified or repeated as often as necessary until the rater fully understands them. As noted earlier, the examiner should remain available to answer any questions the patient or rater may have (regardless of any cognitive limitations they may have) as they complete the appropriate rating form. It should be noted that there is a visual break on the second page of each rating form between Items 32 and 33, along with the instruction "Read each of the following items carefully before responding." This is to ensure that the rater is alert to the shift in item content, namely from items reflecting negative or maladaptive behaviors (Items 1-32) to items reflecting more positive or adaptive behaviors (Items 33-46). It is recommended that the examiner visually inspect the rater's responses to Items 33-46 to confirm that the pattern of ratings has changed in the appropriate direction. If it appears that the rater has not responded to these items in the expected direction, then the examiner should review with the rater his or her individual responses to these items.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C20978 Frontal Systems Behavior Scale (FrSBE) - No concern urine bowel control loss frequency scale FrSBeNoConcrnLosCntrlBowelFreq Frequency of losing control of urine or bowels and seems unconcerned as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Frequency of losing control of urine or bowels and seems unconcerned as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Loses control of urine or bowels and seems unconcerned 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21078 Frontal Systems Behavior Scale (FrSBE) - Apathy subscale T score FrSBeApathyTScore T score for Apathy subscale as part of Frontal Systems Behavior Scale (FrSBE) T score for Apathy subscale as part of Frontal Systems Behavior Scale (FrSBE) Apathy subscale T score Numeric Values

To plot an individual's FrSBe profile, one must first convert the raw scores to T scores using the normative tables located in the appendixes of this manual. Identify the appropriate normative tables according to the rating form used (Self-Rating or Family Rating Form), the gender, age, and education level of the rated individual, and the Total scale or subscale needed. Locate the specific raw score for the Total scale in the Total scale appendix table. Then, locate the corresponding T score for the selected raw score for the Total scale. Enter the T score in the space provided just below the corresponding raw score on the bottom of the profile form. Use the same procedure to convert the subscale raw scores to T scores.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Free-Form Entry

21 158
C21009 Frontal Systems Behavior Scale (FrSBE) - Inflexible frequency scale FrSBeInflexibleFreq Frequency of being inflexible, unable to change routines as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of being inflexible, unable to change routines as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Is inflexible, unable to change routines 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21104 Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale invalid score indicator FrSBeScaleEInvalidInd Indicator if Executive Dysfunction subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE) Indicator if Executive Dysfunction subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE) Executive Dysfunction subscale invalid indicator No;Yes;Unknown No;Yes;Unknown Numeric Values

If the total number of missing items is 6 or more, the FrSBe can? not be appropriately scored or interpreted and should therefore be considered invalid. Otherwise, assign an item raw score value of "1" for each of the 5 or fewer items with missing responses on the scoring sheet. If there are 3 or more items with missing responses on a particular subscale (A, D, or E), that subscale should be considered invalid and should not be interpreted. However, BEFORE and AFTER raw scores for that subscale should still be calculated (by assigning item raw score values of "1" to the missing items) and used in the calculation of the FrSBe Total score, as long as the total number of missing items on the rating form does not exceed 5.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21035 Frontal Systems Behavior Scale (FrSBE) - Memory strategy use frequency scale FrSBeUseMemoryStrategiesFreq Frequency of using strategies to remember important things (for example, writes notes to self) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of using strategies to remember important things (for example, writes notes to self) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Uses strategies to remember important things (for example, writes notes to self) 5;4;3;2;1 Almost never;Seldom;Sometimes;Frequently;Almost always Numeric Values

Reverse scoring. The instructions may be simplified or repeated as often as necessary until the rater fully understands them. As noted earlier, the examiner should remain available to answer any questions the patient or rater may have (regardless of any cognitive limitations they may have) as they complete the appropriate rating form. It should be noted that there is a visual break on the second page of each rating form between Items 32 and 33, along with the instruction "Read each of the following items carefully before responding." This is to ensure that the rater is alert to the shift in item content, namely from items reflecting negative or maladaptive behaviors (Items 1-32) to items reflecting more positive or adaptive behaviors (Items 33-46). It is recommended that the examiner visually inspect the rater's responses to Items 33-46 to confirm that the pattern of ratings has changed in the appropriate direction. If it appears that the rater has not responded to these items in the expected direction, then the examiner should review with the rater his or her individual responses to these items.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21056 Frontal Systems Behavior Scale (FrSBE) - Begin spontaneous conversation frequency scale FrSBeSpontaneousConversatnFreq Frequency of starting conversations spontaneously as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Frequency of starting conversations spontaneously as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Starts conversations spontaneously 5;4;3;2;1 Almost never;Seldom;Sometimes;Frequently;Almost always Numeric Values

Reverse scoring. The instructions may be simplified or repeated as often as necessary until the rater fully understands them. As noted earlier, the examiner should remain available to answer any questions the patient or rater may have (regardless of any cognitive limitations they may have) as they complete the appropriate rating form. It should be noted that there is a visual break on the second page of each rating form between Items 32 and 33, along with the instruction "Read each of the following items carefully before responding." This is to ensure that the rater is alert to the shift in item content, namely from items reflecting negative or maladaptive behaviors (Items 1-32) to items reflecting more positive or adaptive behaviors (Items 33-46). It is recommended that the examiner visually inspect the rater's responses to Items 33-46 to confirm that the pattern of ratings has changed in the appropriate direction. If it appears that the rater has not responded to these items in the expected direction, then the examiner should review with the rater his or her individual responses to these items.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C20980 Frontal Systems Behavior Scale (FrSBE) - Not able multi-task frequency scale FrSBeCantMultitaskFreq Frequency of being unable to do two things at once (for example, talk and prepare a meal) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of being unable to do two things at once (for example, talk and prepare a meal) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Cannot do two things at once (for example, talk and prepare a meal) 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C21080 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale T score FrSBeDisinhibitionTScore T score for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE) T score for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE) Disinhibition subscale T score Numeric Values

To plot an individual's FrSBe profile, one must first convert the raw scores to T scores using the normative tables located in the appendixes of this manual. Identify the appropriate normative tables according to the rating form used (Self-Rating or Family Rating Form), the gender, age, and education level of the rated individual, and the Total scale or subscale needed. Locate the specific raw score for the Total scale in the Total scale appendix table. Then, locate the corresponding T score for the selected raw score for the Total scale. Enter the T score in the space provided just below the corresponding raw score on the bottom of the profile form. Use the same procedure to convert the subscale raw scores to T scores.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Free-Form Entry

25 239
C21010 Frontal Systems Behavior Scale (FrSBE) - Law authority difficulty frequency scale FrSBeTroubleWithAuthorityFreq Frequency of getting in trouble with the law or authorities as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Frequency of getting in trouble with the law or authorities as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Gets in trouble with the law or authorities 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

CSV