CDE Detailed Report

Disease: Huntington's Disease
Sub-Domain: Emotional/Behavioral
CRF: Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire

Displaying 1 - 45 of 45
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C16653 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - difficulty staying asleep indicator BRCDifficltStayAslpInd The yes/no indicator for difficulty staying asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for difficulty staying asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). In general do you have difficulty staying asleep? No;Yes No;Yes Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16685 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - treatment psychiatric indicator BRCRxPsychInd The yes/no indicator for taking treatment for a psychiatric problem from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for taking treatment for a psychiatric problem from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you take treatment for a psychiatric problem? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16664 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wet bed unable to move indicator BRCWetBedUnablMovInd The yes/no indicator for getting bed wet because of unable to move properly from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for getting bed wet because of unable to move properly from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you wet the bed because you're not able to move properly? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16675 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - tied sleepy after waking up indicator BRCTiedSlpyAftWakeInd The yes/no indicator for getting tired and sleepy after waking up from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for getting tired and sleepy after waking up from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you get tired and sleepy after waking up? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16654 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wake up long period night indicator BRCWakeUpLongPeriodNghtInd The yes/no indicator for waking up for long period during night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for waking up for long period during night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). In general do you wake up for long periods during the night? No;Yes No;Yes Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16686 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - tobacco indicator BRCTobbacoInd The yes/no indicator for smoking tobacco from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for smoking tobacco from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you smoke tobacco? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16665 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - snore gasp choke sleep indicator BRCSnorGspChkSlpInd The yes/no indicator for snoring loudly, gasping or choking during sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for snoring loudly, gasping or choking during sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you snore loudly, gasp or choke during your sleep? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16676 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - not rested night sleep indicator BRCNotRestedNghtSlpInd The yes/no indicator for not being rested by night's sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for not being rested by night's sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you find you don't seem rested by night's sleep? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16655 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wake up early morning indicator BRCWakeUpEarlyMornInd The yes/no indicator for waking up early in the morning and unable to go back to sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for waking up early in the morning and unable to go back to sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). In general do you wake up early in the morning and are unable to go back to sleep? No;Yes No;Yes Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16687 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - alcohol sleep indicator BRCAlchlSlpInd The yes/no indicator for drinking alcohol to help sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for drinking alcohol to help sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you drink alcohol to help sleep? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16666 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - stop breath asleep indicator BRCStpBreathAslpInd The yes/no indicator for stopping breathing sometimes when asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for stopping breathing sometimes when asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you stop breathing sometimes when asleep? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16645 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - bed time BRCBedTime The time person normally to goes to bed from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The time person normally to goes to bed from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). What time do you normally go to bed? Date or Date & Time

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Free-Form Entry

C16677 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - sudden sleep attacks day indicator BRCSuddnSlpAttckDayInd The yes/no indicator for having sudden attacks of sleep during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for having sudden attacks of sleep during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you have sudden attacks of sleep during the day? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16656 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wake up night reason BRCWakeUpNghtRsn The reason for waking up during night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The reason for waking up during night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Why do you wake up during the night? A;B;C;D;E;F;G;H;I;J;K;L;M;N;O;P Full bladder;Pain;Worry;Choking;Uncomfortable;Bedroom noise;Nightmares;Gasping;Too hot/cold;Heartburn;Night Sweats;Partner/kids/pets;Thirst/hunger;Headache;Snoring;Other Alphanumeric

Choose all that apply

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Multiple Pre-Defined Values Selected

C16688 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - outdoors indicator BRCOutdoorInd The yes/no indicator for going out of doors every day or most days from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for going out of doors every day or most days from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you go out of doors every day or most days? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16667 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - difficulty breathing night indicator BRCDiffcltBreathNghtInd The yes/no indicator for having difficulty breathing at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for having difficulty breathing at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you have difficulty breathing at night? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16646 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wake time BRCWakeTime The time person normally wakes up from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The time person normally wakes up from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). What time do you normally wake up? Date or Date & Time

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Free-Form Entry

C16678 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - night-awake day-sleep indicator BRCNghtAwkDaySlpInd The yes/no indicator for being awake at night but sleep during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for being awake at night but sleep during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you find you are awake at night but sleep during the day? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16657 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - numbness tingling creepy-crawly legs sleep problems indicator BRCNumbTinglCrpyLegSlpProbInd The yes/no indicator for numbness, tingling or creepy-crawly feelings of legs that cause sleep problems from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for numbness, tingling or creepy-crawly feelings of legs that cause sleep problems from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you suffer from numbness, tingling or creepy-crawly feelings of legs that cause sleep problems? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16689 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - treated sleep problem indicator BRCRxSlpProbInd The yes/no indicator for being treated for a sleep problem from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for being treated for a sleep problem from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Are you being treated for a sleep problem? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16668 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - fidget in bed indicator BRCFidgtBedInd The yes/no indicator for fidgeting a lot in bed from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for fidgeting a lot in bed from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you fidget a lot in bed? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16647 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wake up alarm call indicator BRCWakeupAlrmCalInd The yes/no response for alarm clock/wake up call from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no response for alarm clock/wake up call from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you use an alarm clock/wake up call? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16679 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - intentionally nap day indicator BRCIntentNapDayInd The yes/no indicator for napping intentionally during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for napping intentionally during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you nap intentionally during the day? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16658 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - jerking twitching limbs sleep indicator BRCJerkTwtchLimbSlpInd The yes/no indicator for repeated jerking or twitching of arms or legs during sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for repeated jerking or twitching of arms or legs during sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you suffer from repeated jerking or twitching of arms or legs during sleep? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16669 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - frightening dreams night indicator BRCFrghtnDreamNghtInd The yes/no indicator for getting upsetting or frightening dreams at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for getting upsetting or frightening dreams at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you get upsetting or frightening dreams at night? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16648 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - night sleep hours range BRCNghtSlpHrsRang The range of hours of sleep per night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The range of hours of sleep per night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). On average, how many hours of sleep do you have per night? =2;3;4;5;6;7;8;9;10;=11 =2;3;4;5;6;7;8;9;10;=11 Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16680 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - refreshed upon awaking from nap indicator BRCRefrshAwkFrmNapInd The yes/no indicator for feeling refreshed upon awakening from the nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for feeling refreshed upon awakening from the nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). If yes, do you feel refreshed upon awakening from the nap? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16659 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - night cramp limbs wake up indicator BRCNghtCrampLimbWakupInd The yes/no indicator for painful muscle cramps in arms or legs that wake you up at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for painful muscle cramps in arms or legs that wake you up at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you suffer from painful muscle cramps in arms or legs that wake you up at night? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16670 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - frightening things night not exist indicator BRCFrghtnThingNghtNotExstInd The yes/no indicator for seeing or hearing frightening things at night that do not really exist from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for seeing or hearing frightening things at night that do not really exist from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you see or hear frightening things at night that do not really exist? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16649 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - fall asleep time range BRCFallAslpTimeRang The range of time to fall asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The range of time to fall asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). How long does it usually take you to fall asleep? Almost instantly;10-15 mins;30 mins;1 hour;2 hours or more Almost instantly;10-15 mins;30 mins;1 hour;2 hours or more Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16681 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - nap days weekly count BRCNapDaysWklyCt Count days per week individual naps on average from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Count days per week individual napps on average from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). How many days a week do you nap on average? 1;2;3;4;5;6;7 1;2;3;4;5;6;7 Numeric Values

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16660 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - stiff limbs wake up early morning Indicator BRCStiffLimbWakeEarlyInd The yes/no indicator for waking early in morning with stiff and painful arms or legs from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for waking early in morning with stiff and painful arms or legs from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you suffer from waking early in morning with stiff and painful arms or legs? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16671 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - act out dreams asleep indicator BRCActOutDreamAslpInd The yes/no indicator for acting out dreams e.g. punch or shout while asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for acting out dreams e.g. punch or shout while asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you 'act out' dreams e.g. punch or shout while asleep? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16650 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - awaken times night count BRCAwkenTimesNghtCt The number of times awakening on a typical night sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The number of times awakening on a typical night sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). How many times do you awaken on a typical nights sleep? 0;1;2;3;4;5;6+ 0;1;2;3;4;5;6+ Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16682 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - nap time BRCNapTime Time of the day for nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Time of the day for nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). What time of day do you nap? 8 - 10:00 a.m.;10 - 12:00 noon;12 - 2:00 p.m.;2 - 4:00 p.m.;4 - 6:00 p.m. 8 - 10:00 a.m.;10 - 12:00 noon;12 - 2:00 p.m.;2 - 4:00 p.m.;4 - 6:00 p.m. Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16661 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wander night indicator BRCWandNghtInd The yes/no indicator for wandering about at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for wandering about at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you wander about at night? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16672 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - injure yourself others while dreaming indicator BRCInjurSelfOthrDreamInd The yes/no indicator for injuring yourself or others while dreaming from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for injuring yourself or others while dreaming from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you injure yourself or others while dreaming? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16651 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - sleep amount change measurement BRCSlpAmntChngMeasr The measurement of the change of amount of sleep needed over the last 5 years from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The measurement of the change of amount of sleep needed over the last 5 years from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). How has the amount of sleep you need changed over the last 5 years? I need More sleep;The same amount;Less sleep More sleep;The same amount;Less sleep Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16683 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - nap duration BRCNapDur Duration of nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Duration of nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). How long are your naps? Less than 30 mins;1 - 1.5 hours;1.5 - 2 hours;More than 2 hours;30 mins - 1 hour Less than 30 mins;1 - 1.5 hours;1.5 - 2 hours;More than 2 hours;30 mins - 1 hour Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16662 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - agitated night indicator BRCAgitatNghtInd The yes/no indicator for getting very agitated at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for getting very agitated at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you get very agitated at night? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16673 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - sleep type BRCSlpTyp Pre-specified type of your sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Pre-specified type of your sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). How would you describe your sleep? A;B;C;D;E;F;G;H;I;J Light;Deep;Short;Long;Dreamless;Many Dreams;Uninterrupted;Interrupted;Still;Restless Alphanumeric

Please delete as appropriate

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Multiple Pre-Defined Values Selected

C16652 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - difficulty falling asleep night indicator BRCDifficltFallAslpNghtInd The yes/no indicator for difficulty falling asleep at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for difficulty falling asleep at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). In general do you have difficulty falling asleep at night? No;Yes No;Yes Alphanumeric

circle only one

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16684 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - treatment medical indicator BRCRxMedInd The yes/no indicator for taking treatment for a medical condition from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for taking treatment for a medical condition from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you take treatment for a medical condition? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16663 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - lot toilet night indicator BRCLotToiletNghtInd The yes/no indicator for getting up a lot to go to the toilet at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for getting up a lot to go to the toilet at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you get up a lot to go to the toilet at night? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C16674 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - difficulty waking up morning indicator BRCDifficltWakeMorInd The yes/no indicator for great difficulty waking up in the morning from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for great difficulty waking up in the morning from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). Do you have great difficulty waking up in the morning? No;Yes No;Yes Alphanumeric

No instructions available

Goodman, AO.,Morton AJ, Barker Ra. Identifying sleep disturbances in Huntington's disease using a simple disease-focused questionnaire. PLoS Currents 2010; October 15. (Online access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2957697/ Adult Supplemental 3.00 2013-07-14 19:48:50.273 Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

CSV